Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Test Results Help

Caeryn23

Recommended Posts

Caeryn23 Rookie
Caeryn23
Posted

I wasn't sure where to post this. I have been off gluten for about 2 years. I still have GI issues. I was hospitalized in 1/12 and 6/12 for GI issues. Here are some recent tests.

My CT scan: "thickening of the distal tranverse colon...descending colon and rectum... consistent with colitis." It also shows a lot of stool burden. There was also thickening seen on a 2007 CT scan.

My colonoscopy: the descending colon mucosa is "erythematous, hemorrhagic, ulcerated, and to show loss of vascular markings suggestive of stercoral ulcers due to constipation." Four biopsies were taken. There also was inflammation seen on a 2007 colonoscopy.

My path report.

Descending colon, biopsy:

- Colonic mucosa with edema and hemorrhage

- No evidence of ischemic injury, inflammatory bowel disease or active inflammation.

I also have elevated SED Rate and Lactoferrin.

I don't think any of this is related to Celiac. But, what would these results indicate? The inpatient doctors said I had "end stage constipation." Has anyone heard of this? They said to take Miralax as a bowel regimen. Something must be causing my constipation/GI issues.

Thank you.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kmwondering Rookie
kmwondering
Posted

I'm no doctor but a quick consult with Dr. G(oogle) indicates that these results might be associated with an inflammatory bowel disease...ulcerative colitis or crohns. Good luck with everything and I hope you get answers and relief.

beachbirdie Contributor
beachbirdie
Posted

I wasn't sure where to post this. I have been off gluten for about 2 years. I still have GI issues. I was hospitalized in 1/12 and 6/12 for GI issues. Here are some recent tests.

My CT scan: "thickening of the distal tranverse colon...descending colon and rectum... consistent with colitis." It also shows a lot of stool burden. There was also thickening seen on a 2007 CT scan.

My colonoscopy: the descending colon mucosa is "erythematous, hemorrhagic, ulcerated, and to show loss of vascular markings suggestive of stercoral ulcers due to constipation." Four biopsies were taken. There also was inflammation seen on a 2007 colonoscopy.

My path report.

Descending colon, biopsy:

- Colonic mucosa with edema and hemorrhage

- No evidence of ischemic injury, inflammatory bowel disease or active inflammation.

I also have elevated SED Rate and Lactoferrin.

I don't think any of this is related to Celiac. But, what would these results indicate? The inpatient doctors said I had "end stage constipation." Has anyone heard of this? They said to take Miralax as a bowel regimen. Something must be causing my constipation/GI issues.

Thank you.

I'm confused by the report. Elevated Lactoferrin does point to inflammation and inflammatory bowel disease, and the SED rate is also an idicator of inflammation. Have they tested you for bacterial overgrowth?

Stercoral ulcers (I had to Google that one!) ARE a result of chronic constipation. And they can be dangerous, so you need to take them seriously.

What is your diet like? Do you eat much in the way of fruits and vegetables?

Are you certain you are not getting gluten in your diet anywhere? Have they done any follow-up blood tests to see if you have any celiac antibodies?

Are you active, these ulcers seem to happen more in sedentary people.

Caeryn23 Rookie
Caeryn23
Posted
  • Author

Than you for responding. I have not been tested for bacterial overgrowth. The doctors said the high lactoferrin and sed rate are "nonspecific." I don't know why they ordered them then.

They said the ulcers will heal on their own. The only thing the doctors said was to take Miralax. I wasn't given any other treatment.

I'm some what active and eat fruits and veggies. I have food allergies, so I stay away from those foods. I don't think I am getting glutened. I try to be careful.

I had a celic panel in 2011. The EMA was not ran. Here are the results:

Anti-Gliadin Antibodies

IgG 3 and IgA 1

ranges: 0-19 negative, 20-30 weak positive, >30 moderate to strong positive

Tissue Transglutaminase Antibody IgA <2

ranges: 1-3 negative, 4-10 weak positive, >10 positive

Tissue Transglutaminase Antibody IgG <2

ranges: 0-5 negative, 6-9 weak positive, >9 positive

I have HLA DQ2, DQ8, DR4, and DR7.

  • 5 months later...
razzle51 Apprentice
razzle51
Posted

forget the Mirlax omg got deathly ill from it... alot of other things ... are you the one on ASAP board

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,914
    • Most Online (within 30 mins)
      7,748
    ChrisMary
    Newest Member
    ChrisMary
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Help I’m cross contaminating myself,

      By knitty kitty · Posted

      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By knitty kitty · Posted

      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Gluten free nuts

      By Clear2me · Posted

      Thank you, a little expensive but glad to have this source. 
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      @knitty kitty  Thank you very much for the advice. I did the exam this morning, my doctor actually suggested me to take something called "Celiac duo test" in which I first do the genetic test and if it's positive, then I'll have to do the antigen blood test. I have to attend 1 month until my results are ready, so I have some weeks to increase the amount of gluten I eat daily. It will be hard because my health is not the best right now, but I also did a blood test to cheek my nutritional deficiencies. The results will arrive on Tuesday, so I can ask my doctor what should I do to control my symptoms and blood levels during this month. For now I'm resting and paying attention to what I eat— at least I don’t look like a vampire who just woke up, like I did yesterday. I'm still scared because is the first time I've felt this sick, but this is the right moment to turn things around for the better.  I realized that if I eat gluten at lunch I cannot finish the day properly, I become severely tired and sometimes my stomach hurts a lot - let's not talk about the bloating that starts later. Do you think is it ok to eat gluten just in the morning, like some cookies and slices of bread for breakfast? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.