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- DebJ14 replied to Jhona's topic in Introduce Yourself / Share Stuff30Does anyone here also have Afib
I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies. I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved. Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. ... -
- Hmart posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease0Is this celiac?
The symptoms that led to my diagnosis were stomach pain, diarrhea, nausea, body/nerve tingling and burning and chills. It went away after about four days but led me to a gastro who did an upper endo and found I had marsh 3b. I did the blood test for celiac and it came back negative. I have gone gluten free. In week 1 I had a flare-up that was similar to... -
- Serena Rodriguez replied to klmgarland's topic in Dermatitis Herpetiformis9Help I’m cross contaminating myself,
You've already identified the issue. You cannot have ANY gluten in your home EVER. It's not optional for everyone who lives with you to have a dedicated gluten free diet! And anyone who comes to visit you cannot bring anything gluten-containing into your home. All gluten containing items need to be thrown away, beauty/bath products included. All pots/pans... -
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- tiffanygosci posted a topic in Coping with Celiac Disease0New Celiac Mama in My 30s
Hello all! My life in the last five years has been crazy. I got married in 2020 at the age of 27, pregnant with our first child almost two months later, gave birth in 2021. We had another baby in April of 2023 and our last baby this March of 2025. I had some issues after my second but nothing ever made me think, "I should see a doctor about this." After...- 1
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- knitty kitty replied to klmgarland's topic in Dermatitis Herpetiformis9Help I’m cross contaminating myself,
On the AIP diet, all processed foods are eliminated. This includes gluten-free bread. You'll be eating meats and vegetables, mostly. Meats that are processed, like sausages, sandwich meats, bacons, chicken nuggets, etc., are eliminated as well. Veggies should be fresh, or frozen without other ingredients like sauces or seasonings. Nightshade vegetables...
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I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies. I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved. Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib. He ended up in the hospital in August 2025 when his A Fib would not convert. He took the maximum dose of Flecainide allowed within a 24 hour period. It was a nightmare experience! They took him into the ER immediately. They put in a line, drew blood, did an EKG and chest Xray all within minutes. Never saw another human for 6 hours. Never got any results, but obviously we could see he was still in A fib by watching the monitor. They have the family sign up for text alerts at the ER desk. So glad I did. That is the only way we found out that he was being admitted. About an hour after that text someone came to take him to his room on an observation floor. We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room. It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk. They said someone would be in and finally a nurse arrived. He was told a hospitalist was in charge of his case. Finally the NP for the hospitalist showed up and my husband literally blew his stack. He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there. They got an EKG machine and confirmed it. She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT. He agreed. The echo showed everything fine, just as it was at his annual check up in June and there was no DVT. A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound. It both triggers A Fib and prevents the Flecainide from working. His conversion coincided with the last dose of antibiotic getting out of his system. So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib. This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa. My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low. Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible. The pradaxa gave him a full body rash! He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's. He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil He suggested he take Black Cumin Seed Oil for inflammation. He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation. Oh and I forgot to say the hospital bill was over $26,000. Houston Methodist!
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The symptoms that led to my diagnosis were stomach pain, diarrhea, nausea, body/nerve tingling and burning and chills. It went away after about four days but led me to a gastro who did an upper endo and found I had marsh 3b. I did the blood test for celiac and it came back negative. I have gone gluten free. In week 1 I had a flare-up that was similar to my original symptoms. I got more careful/serious. Now at the end of week 2 I had another flare-up. These symptoms seem to get more intense. My questions: 1. How do I know if I have celiac and not something else? 2. Are these symptoms what others experience from gluten? When I have a flare-up it’s completely debilitating. Can’t sleep, can’t eat, can’t move. Body just shakes. I have lost 10 pounds since going gluten free in the last two weeks.
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By Serena Rodriguez · Posted
You've already identified the issue. You cannot have ANY gluten in your home EVER. It's not optional for everyone who lives with you to have a dedicated gluten free diet! And anyone who comes to visit you cannot bring anything gluten-containing into your home. All gluten containing items need to be thrown away, beauty/bath products included. All pots/pans, dishes, utensils need to go through the dishwasher. Anything too porous or delicate for the dishwasher needs to be thrown away and replaced. Your toaster needs to be thrown away and replaced. Your oven, stovetop, and all surfaces throughout your home (bedrooms and bookshelves too) need to be thoroughly washed. All of this needs to happen in the same day because you risk contaminating other parts of your home if you do only part of the job. There's no such thing as a "safe" amount of gluten in your home. Not putting your foot down means greater risks into the future for vitamin deficiencies, diabetes, damage to your thyroid, cancer, rheumatoid arthritis, and more. -
By tiffanygosci · Posted
Hello all! My life in the last five years has been crazy. I got married in 2020 at the age of 27, pregnant with our first child almost two months later, gave birth in 2021. We had another baby in April of 2023 and our last baby this March of 2025. I had some issues after my second but nothing ever made me think, "I should see a doctor about this." After having my last baby this year, my body has finally started to find its new rhythm and balance...but things started to feel out of sorts. A lot of symptoms were convoluted with postpartum symptoms, and, to top it all off, my cycle came back about 4m postpartum. I was having reoccurring migraines, nausea, joint pain, numbness in my right arm, hand and fingers, tummy problems, hives. I finally went to my PCP in August just for a wellness check and I brought up my ailments. I'm so thankful for a doctor that listens and is thorough. He ended up running a food allergy panel, an environmental respiratory panel, and a celiac panel. I found out I was allergic to wheat, allergic to about every plant and dust mites, and I did have celiac. I had an endoscopy done on October 3 and my results confirmed celiac in the early stages! I am truly blessed to have an answer to my issues. When I eat gluten, my brain feels like it's on fire and like someone is squeezing it. I can't think straight and I zone out easily. My eyes can't focus. I get a super bad migraine and nausea. I get so tired and irritable and anxious. My body hurts sometimes and my gut gets bloated, gassy, constipated, and ends with bowel movements. All this time I thought I was just having mom brain or feeling the effects of postpartum, sleep deprivation, and the like (which I probably was having and the celiac disease just ramped it up!) I have yet to see a dietician but I've already been eating and shopping gluten-free. My husband and I have been working on turning our kitchen 100% gluten-free (we didn't think this would be so expensive but he assured me that my health is worth all the money in the world). There are still a few things to replace and clean. I'm already getting tired of reading labels. I even replaced some of my personal hygiene care for myself and the kids because they were either made with oats or not labeled gluten-free. I have already started feeling better but have made some mistakes along the way or have gotten contamination thrown into the mix. It's been hard! Today I joked that I got diagnosed at the worst time of the year with all the holidays coming up. I will just need to bring my own food to have and to share. It will be okay but different after years of eating "normally". Today I ordered in person at Chipotle and was trying not to feel self-conscious as the line got long because they were following food-allergy protocols. It's all worth it to be the healthiest version of myself for me and my family. I would be lying if I said I wasn't a little overwhelmed and a little overloaded! I am thankful for this community and I look forward to learning more from you all. I need the help, that's for sure! -
By knitty kitty · Posted
On the AIP diet, all processed foods are eliminated. This includes gluten-free bread. You'll be eating meats and vegetables, mostly. Meats that are processed, like sausages, sandwich meats, bacons, chicken nuggets, etc., are eliminated as well. Veggies should be fresh, or frozen without other ingredients like sauces or seasonings. Nightshade vegetables (eggplant, potatoes, tomatoes, peppers) are excluded. They contain alkaloids that promote a leaky gut and inflammation. Dairy and eggs are also eliminated. I know it sounds really stark, but eating this way really improved my health. The AIP diet can be low in nutrients, and, with malabsorption, it's important to supplement vitamins and minerals.
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