Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Rash :(

GlutenFreeAustinite

Recommended Posts

GlutenFreeAustinite Contributor
GlutenFreeAustinite
Posted

So yesterday, I broke out in hundreds of tiny little red bumps that itched on my chest. There were a few on my arms as well. Throughout the rest of yesterday and today, the rash expanded to cover my arms, hands, shoulders, face, feet, and legs. They are little tiny welts, with no head, and Benadryl provided no relief. I saw the doctor this morning, and the man was a total jerk. He wouldn't listen to my concerns about celiac/DH, saying "celiac isn't something that pops up over night. it's something your body's been dealing with for forever." When I explained my circumstances, he didn't even acknowledge it. He diagnosed me with an allergic reaction to either the topical clindamycin my dermatologist put me on for folliculitis or the doxycycline, but he doesn't know for sure. He also gave me prednisone, a steroid to help clear it up. I've only had one dose, but the rash looks worse if anything. This has not been a fun weekend...I can't wait to get off gluten this week!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

CRAP! The prednisone will screw up your tests!!!!!! Yes, even the endoscopy!!!!!! Stop it!!!!!

You've got a gluten rash & I'm saying it's dh.

GlutenFreeAustinite Contributor
GlutenFreeAustinite
Posted
  • Author

Yeah, I'm not taking it anymore.....I only had one dose, that should be okay, right?

squirmingitch Veteran
squirmingitch
Posted

Yes. I think you'll be okay if you only took one dose. Your test is Thursday or is it Friday?

Exactly, celiac isn't something that just pops up overnight. It IS something your body's been dealing with for forever. Stupid jerk off doc! And doc, then one day everything comes to a big head b/c you docs don't know & keep resisting the idea that anyone has celiac disease & so people go through life doing untold damage to their bodies & minds for years & years & years. Oh, that's right! It's all in our heads right?

Sorry --- my rant.

GlutenFreeAustinite Contributor
GlutenFreeAustinite
Posted
  • Author

My test is actually Tuesday......but my mom and I don't think that the dose I took today has had or will have an effect. The rash is still as bad as it was and I've been having normal gluten symptoms all day. I'm hoping that it doesn't cause problems but I'll call my GI's nurse tomorrow, as well as my general practitioner.

And yeah, I totally agree with your rant!!! The doctor didn't even look at my rash. He made some notes. My arms/hands, legs/feet are the worst, but I have them on my chest and face a bit. I'm just hoping they go away ASAP after I go gluten free. I leave for college in six weeks, and I'd like not to look like I have a contagious disease. :P

squirmingitch Veteran
squirmingitch
Posted

I hope it clears up fast! If not, you can always use it for a conversation starter to teach people about celiac disease. I bet you'll find more than a few who either are or have relatives who are celiac or even gluten intolerant.smile.gif

Tally Ho for Tuesday!

GlutenFreeAustinite Contributor
GlutenFreeAustinite
Posted
  • Author

Thanks....my general practitioner wanted me on the prednisone and the GI doctor said it was fine, so I took another dose and it's clearing up, thank heavens. I won't be able to take it until after the biopsy, but it's doing better. Thank you so much for your support and encouragement!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

Sure thing!smile.gif

GlutenFreeAustinite Contributor
GlutenFreeAustinite
Posted
  • Author

I asked my GI doc about the strange rash, and he said that while it would be an atypical appearance for DH, he said it was possible, especially as the prednisone wasn't really working consistently. But I don't know.

squirmingitch Veteran
squirmingitch
Posted

Well I get in my underarms and Pricklypear got it BAD in her pits & I mean BAD!!!!!! And there have been quite a few others on here who get them in their pits. DH can occur anywhere!

GlutenFreeAustinite Contributor
GlutenFreeAustinite
Posted
  • Author

Yeah, the stuff under my arms appears to be responding to the Clindamycin, but I stopped all of my antibiotics because I broke out in this head-to-toe rash. My legs/feet/arms/elbows are covered in bright red dots. They get better after a dose of the prednisone but resurge the next day. Very odd.

squirmingitch Veteran
squirmingitch
Posted

Well, I gotta tell ya..... dh will respond temporarily to steroids but & there's a big BUT..... it comes back with a VENGEANCE! I was misdiagnosed & put on Dexamethasone which is a super duper steroid & I've been down that road ---- not going there again.sad.gif

GlutenFreeAustinite Contributor
GlutenFreeAustinite
Posted
  • Author

That's exactly what's happening to me--it gets better at night and returns during the day. I'm going gluten-free tomorrow and am also going to try low-iodine.

squirmingitch Veteran
squirmingitch
Posted

Okay!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,996
    • Most Online (within 30 mins)
      7,748
    Sasha Bondarev
    Newest Member
    Sasha Bondarev
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • JoJo0611
      Chances of being coeliac

      By JoJo0611 · Posted

      TTG IgA reference range 0.0 to 14.9 KU/L
    • trents
      Chances of being coeliac

      By trents · Posted

      What was the reference range for that test? Each lab uses different reference ranges so a raw score like that makes it difficult to comment on. But it looks like a rather large number.
    • JoJo0611
      Chances of being coeliac

      By JoJo0611 · Posted

      I have had the tTG-IgA blood test my result are >250.0  I am waiting for the appointment with the gastroenterologist for endoscopy and biopsies.    what are the chances it’s not coeliacs.  waiting and not knowing is so hard. Especially the eating of gluten knowing it may be causing you more harm and coping with the symptoms. 
    • knitty kitty
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By knitty kitty · Posted

      @sleuth, Has your son been checked for nutritional deficiencies?  All of those symptoms can be caused by malnutrition.  I had severe malnutrition that went unrecognized by my doctors.  Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick.     Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients.  Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease.   Is your son taking any vitamin supplements?  Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body.  Benfotiamine is a form of thiamine that is shown to promote intestinal healing.  Benfotiamine is available over the counter.  Benfotiamine is safe and nontoxic.   Is your son eating processed gluten-free foods?  Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts.   Is your son following a low histamine diet?  Histamine is released as part of the immune response to gluten and other foods high in histamine.  High levels of histamine in the brain can cause anxiety, insomnia, and depression.  The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine.  DAO supplements are available over the counter.  Vitamin C helps clear histamine as well.  Some people find over the counter antihistamines helpful as well, but they're not for long term use.   Nicotine has antihistamine-like properties, but can also irritate the gut.  Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant).  Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome.  Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa),  Passion Flower, Chamomile, and Bilberry.  They can be taken as supplements, extracts, or tea.  These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful.  Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal.  (L -Theanine supplements are available over the counter, if not a tea drinker.)  Tryptophan, a form of Niacin B3, also helps calm digestive symptoms.  Another amino acid, L-Lysine, can help with anxiety and depression.  I've used these for years without problems.   What ways to cope have you tried in the past?
    • Scott Adams
      Gluten free nuts

      By Scott Adams · Posted

      They are a sponsor here, and I did noticed a free shipping coupon: GFships
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.