Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

More Confused Than Ever


bkjkc

Recommended Posts

bkjkc Newbie

My husband has been pretty sick the last 3 weeks with major explosive gas and diarrhea. Been to a few different docs and ruled out parasites and other infections. Doc ran a celiac panel. Here are the results:

Tissue Transglutaminase IgA: 11

Anti Gliadin Deamidated IGG AB: 2

Anti Gliadin Deamidated IGA AB: 7

Immunoglobulin IgA: 287

I am so confused. The doc said possible celiac but these numbers confuse me. He had a colonoscopy last Friday so we are waiting for those results. Thoughts? Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

I don't know about the blood test results...I think you need to know the range...from the lab.

But I do know that it takes an endoscopy that goes through the mouth and stomach to test for Celiac disease. The colonoscopy can diagnose other things but not Celiac. Others who know more about testing will answer you soon I am sure. Welcome and good luck to both of you.

bkjkc Newbie

I don't know about the blood test results...I think you need to know the range...from the lab.

But I do know that it takes an endoscopy that goes through the mouth and stomach to test for Celiac disease. The colonoscopy can diagnose other things but not Celiac. Others who know more about testing will answer you soon I am sure. Welcome and good luck to both of you.

Sorry. I should have posted the ranges. The first three say normal range is 0-19. The last test says 71-263. There are so many differing opinions it is hard to know what is really "normal". The doc said he also biopsied a part of the small intestine during the colonoscopy so we shall see. Appt Thursday afternoon. Thanks, all.

MitziG Enthusiast

All of his test were within normal range, nothing to indicate celiac there. A full celiac panel was not done however, and it is possible for the other tests to be positive still.

Colonoscopy biopsies can NOT show celiac. It is a common misconception among doctors that they can for some reason. The opposite end of intestine needs to be biopsies, the duodenum, which is near the top of the small intestine. In order to take biopsies from there, they must do an endoscopy.

Your husbands symptoms certainly could point to celiac however, and kudos to your doc for thinking to check. Most docs are ignorant of the prevalence and will rarely think to test an adult.

Your husband could also have developed non-celiac gluten intolerance. Exact same symptoms, and same treatment. Gluten free for life. Unfortunately, their is no way to "test" for ncgi.

When your husband has all of his tests done, definitely trial a gluten-free diet. He may get significant relief. For now, keep him eating normally. Changing his diet before testing is complete (including endoscopy) can cause a false negative.

I hope you get some answers soon. Welcome to the boards.

MitziG Enthusiast

I correct myself, his total IGA was a bit high. I re-read the ranges. That may or may not be a red flag, but isn't necessarily a marker of celiac.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,986
    • Most Online (within 30 mins)
      7,748

    Christine1
    Newest Member
    Christine1
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.