Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To Celiac


Dezzyray123

Recommended Posts

Dezzyray123 Newbie

I'm a 17 year old girl and I was told about two weeks ago I have celiac and have to live gluten free if I want the pains I get to stop. The problem is my family is Italian and my fav food is pasta and seeing all my fav foods that I can't eat is killing me inside and it's really messed with my emotions and I haven't really been happy since I've had to be gluten free and I don't know what to do to get out of this upsetting state. I guess I just really need someone to talk to about it because my boyfriend thinks he understands cuz his dad has celiac but it's not the same and it's just been hard trying to ajust and I would really just like someone to talk. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nay-Nay Newbie

I feel your pain. I just got diagnosed yesterday with Celiacs Disease. I feel very discouraged and scared to eat anything because a lot of foods contain gluten. I am meeting with a nutritionist who can give me more information about gluten free diets. All I know is that I must try my hardest to stick to gluten free living because the abdominal pain is unbearable.

I bought my first gluten free cracker yesterday to see how it tasted. It wasnt bad, tasted kind of bland and super dry but, it went down (with some water and prayer)... I guess I can get use to it. Keep hope, just remember that there is someone somewhere that has it way worse then us.

FYI Try looking into gluten free pastas and rices. They sell at whole foods. They are a lil more pricy but hopefully that will make your transition a little easier.

LexiBrowni Newbie

I'm a 17 year old girl and I was told about two weeks ago I have celiac and have to live gluten free if I want the pains I get to stop. The problem is my family is Italian and my fav food is pasta and seeing all my fav foods that I can't eat is killing me inside and it's really messed with my emotions and I haven't really been happy since I've had to be gluten free and I don't know what to do to get out of this upsetting state. I guess I just really need someone to talk to about it because my boyfriend thinks he understands cuz his dad has celiac but it's not the same and it's just been hard trying to ajust and I would really just like someone to talk. Thanks.

I completely understand what you are going through. The first few months are extremely hard, but your taste buds do get used to eating gluten free foods. Gluten free pasta is amazing and has helped me get through this a TON. It tastes almost exactly the same as regular pasta (my family can't even tell the difference). You can find it in most major grocery stores in the pasta section (I use Walmart/Publix). Also, something else you can look into is seeing if there is an actual gluten free section in the grocery store. My Walmart does in the chip/snacky area. They have granola bar-like things, sweet mixes (brownies are my personal fave), other pastas, cereals (Chex cereal is amazing), and other nice things to have. I hope this helps! It just takes some time to adjust to this new life style but it is well worth it!

P.S. - I have been gluten free now for around 5 months

eatmeat4good Enthusiast

I know it is a huge loss when you have to totally change the way you eat. You will be grieving for a while. But I think you are in for a nice surprise as soon as you start trying gluten free pasta's. They are excellent. My son says they are better than "Regular Pasta" and he really liked his pasta! That is the one thing we had no trouble replacing on the gluten free diet. Wish you the best of luck. We like Ancient Harvest pasta, but there are a whole lot of brands to try. Good luck! :)

  • 2 weeks later...
shauniscrazy Explorer

I'm a 17 year old girl and I was told about two weeks ago I have celiac and have to live gluten free if I want the pains I get to stop. The problem is my family is Italian and my fav food is pasta and seeing all my fav foods that I can't eat is killing me inside and it's really messed with my emotions and I haven't really been happy since I've had to be gluten free and I don't know what to do to get out of this upsetting state. I guess I just really need someone to talk to about it because my boyfriend thinks he understands cuz his dad has celiac but it's not the same and it's just been hard trying to ajust and I would really just like someone to talk. Thanks.

Hi im a 16 year old guy and im sorry you feel so bad. I just recently found out im allergic to gluten and i love pasta type foods too but i cant have it anymore either lol :P but there is gluten free noodles you can buy which i am going to try asap

mamaw Community Regular

Welcome to all of you young new celiac people.. Now, I'm an old celiac person but my two grandkids are 11 & 14 both celiac.. So I go to extremes to find "REAL " tasting gluten-free goodies plus I test market gluten-free goodies. So within this forum there are many conversations for newbies to celiac..All very good & Very helpful.

Here are some of the better gluten-free things..

Pastas:

Bi Aglut ( our fav)

Tinkyada

Le Veneizane ( sp may be off)

Schar

``````````````````````````````````````````````````````````

Egg noodles:

The best to date is Seitenbacher gluten-free egg ribbons...

``````````````````````````````````````````````````````````````````````

Cont'e:

pierogi's

ravioli

`````````````````````````````````````````````````````````````

English muffins, bagels pizza & much more

Joan's gluten-free great bakes

`````````````````````````````````````````````````````````````````````

Egg rolls, Asian dumplings

Feel Good Foods

``````````````````````````````````````````````````````````````````

Gravy mixes & sauces

Full Flavor Foods

``````````````````````````````````````````````````

Donuts, crossiants & more

Celiac Specialites

````````````````````````````````````````````````````

cakes brownies & such

123 gluten free

Betty Crocker

King Arthur

Namaste

many more available

```````````````````````````````````````````````````````

Ready belnded gluten-free flours

Better Batter

Jules

meister's

omata living flour

Tom Sawyer

many more

``````````````````````````````````````````````Breaded fish & Shrimp

Starfish

```````````````````````````````````````````````````````````

Depending where you all live these items may need to be ordered by mailorder....

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,023
    • Most Online (within 30 mins)
      7,748

    Tubbybooboo
    Newest Member
    Tubbybooboo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.