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Dezzyray123

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Dezzyray123 Newbie
Dezzyray123
Posted

I'm a 17 year old girl and I was told about two weeks ago I have celiac and have to live gluten free if I want the pains I get to stop. The problem is my family is Italian and my fav food is pasta and seeing all my fav foods that I can't eat is killing me inside and it's really messed with my emotions and I haven't really been happy since I've had to be gluten free and I don't know what to do to get out of this upsetting state. I guess I just really need someone to talk to about it because my boyfriend thinks he understands cuz his dad has celiac but it's not the same and it's just been hard trying to ajust and I would really just like someone to talk. Thanks.

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Nay-Nay Newbie
Nay-Nay
Posted

I feel your pain. I just got diagnosed yesterday with Celiacs Disease. I feel very discouraged and scared to eat anything because a lot of foods contain gluten. I am meeting with a nutritionist who can give me more information about gluten free diets. All I know is that I must try my hardest to stick to gluten free living because the abdominal pain is unbearable.

I bought my first gluten free cracker yesterday to see how it tasted. It wasnt bad, tasted kind of bland and super dry but, it went down (with some water and prayer)... I guess I can get use to it. Keep hope, just remember that there is someone somewhere that has it way worse then us.

FYI Try looking into gluten free pastas and rices. They sell at whole foods. They are a lil more pricy but hopefully that will make your transition a little easier.

LexiBrowni Newbie
LexiBrowni
Posted

I'm a 17 year old girl and I was told about two weeks ago I have celiac and have to live gluten free if I want the pains I get to stop. The problem is my family is Italian and my fav food is pasta and seeing all my fav foods that I can't eat is killing me inside and it's really messed with my emotions and I haven't really been happy since I've had to be gluten free and I don't know what to do to get out of this upsetting state. I guess I just really need someone to talk to about it because my boyfriend thinks he understands cuz his dad has celiac but it's not the same and it's just been hard trying to ajust and I would really just like someone to talk. Thanks.

I completely understand what you are going through. The first few months are extremely hard, but your taste buds do get used to eating gluten free foods. Gluten free pasta is amazing and has helped me get through this a TON. It tastes almost exactly the same as regular pasta (my family can't even tell the difference). You can find it in most major grocery stores in the pasta section (I use Walmart/Publix). Also, something else you can look into is seeing if there is an actual gluten free section in the grocery store. My Walmart does in the chip/snacky area. They have granola bar-like things, sweet mixes (brownies are my personal fave), other pastas, cereals (Chex cereal is amazing), and other nice things to have. I hope this helps! It just takes some time to adjust to this new life style but it is well worth it!

P.S. - I have been gluten free now for around 5 months

eatmeat4good Enthusiast
eatmeat4good
Posted

I know it is a huge loss when you have to totally change the way you eat. You will be grieving for a while. But I think you are in for a nice surprise as soon as you start trying gluten free pasta's. They are excellent. My son says they are better than "Regular Pasta" and he really liked his pasta! That is the one thing we had no trouble replacing on the gluten free diet. Wish you the best of luck. We like Ancient Harvest pasta, but there are a whole lot of brands to try. Good luck! :)

  • 2 weeks later...
shauniscrazy Explorer
shauniscrazy
Posted

I'm a 17 year old girl and I was told about two weeks ago I have celiac and have to live gluten free if I want the pains I get to stop. The problem is my family is Italian and my fav food is pasta and seeing all my fav foods that I can't eat is killing me inside and it's really messed with my emotions and I haven't really been happy since I've had to be gluten free and I don't know what to do to get out of this upsetting state. I guess I just really need someone to talk to about it because my boyfriend thinks he understands cuz his dad has celiac but it's not the same and it's just been hard trying to ajust and I would really just like someone to talk. Thanks.

Hi im a 16 year old guy and im sorry you feel so bad. I just recently found out im allergic to gluten and i love pasta type foods too but i cant have it anymore either lol :P but there is gluten free noodles you can buy which i am going to try asap

mamaw Community Regular
mamaw
Posted

Welcome to all of you young new celiac people.. Now, I'm an old celiac person but my two grandkids are 11 & 14 both celiac.. So I go to extremes to find "REAL " tasting gluten-free goodies plus I test market gluten-free goodies. So within this forum there are many conversations for newbies to celiac..All very good & Very helpful.

Here are some of the better gluten-free things..

Pastas:

Bi Aglut ( our fav)

Tinkyada

Le Veneizane ( sp may be off)

Schar

``````````````````````````````````````````````````````````

Egg noodles:

The best to date is Seitenbacher gluten-free egg ribbons...

``````````````````````````````````````````````````````````````````````

Cont'e:

pierogi's

ravioli

`````````````````````````````````````````````````````````````

English muffins, bagels pizza & much more

Joan's gluten-free great bakes

`````````````````````````````````````````````````````````````````````

Egg rolls, Asian dumplings

Feel Good Foods

``````````````````````````````````````````````````````````````````

Gravy mixes & sauces

Full Flavor Foods

``````````````````````````````````````````````````

Donuts, crossiants & more

Celiac Specialites

````````````````````````````````````````````````````

cakes brownies & such

123 gluten free

Betty Crocker

King Arthur

Namaste

many more available

```````````````````````````````````````````````````````

Ready belnded gluten-free flours

Better Batter

Jules

meister's

omata living flour

Tom Sawyer

many more

``````````````````````````````````````````````Breaded fish & Shrimp

Starfish

```````````````````````````````````````````````````````````

Depending where you all live these items may need to be ordered by mailorder....

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  • Posts

    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
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