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Need Help After Endoscopy

pinkpandapants

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pinkpandapants Rookie
pinkpandapants
Posted

I just had an upper endoscopy yesterday, and they said so far that everything LOOKED normal. They took biopsies of course, and I still have two weeks or so to wait for those results. My question is, could it be Celiac if my stomach, intestines, etc. LOOK normal? Because I know that Celiac causes the villi of the intestines to flatten... doesn't it? Or can it not and still be Celiac? Just wondering! Thanks!

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GottaSki Mentor
GottaSki
Posted

Welcome pinkpandapants!

Yes, your small intestine can look normal during endoscopy - there can even be negative biopsies in those with Celiac Disease. It is great that your stomach looked good, but not part of Celiac diagnosis - only the small intestine.

Did symptoms lead to the possibility of Celiac Disease? If so, a three month trial of strict gluten free may be the way to confirm whether you need to be gluten free.

Did you have positive antibody tests (tTG IgA or tTG IgG)? Positive means you have Celiac Disease and need to remove all gluten from your diet. Unfortunately, these tests can have false negatives, which brings you back to the option of trialing gluten removal to check for symptom improvement.

Good Luck to you!

pinkpandapants Rookie
pinkpandapants
Posted
  • Author

Yes, I have a TON of symptoms that have made me suspect Celiac - pretty bad digestion issues (including GERD), thyroid disease, eczema and depression/anxiety issues. I had ONE blood test done (TTG IgA) and that came back negative, but then I was referred to a gastroenterologist and she wanted me to get the endoscopy. I haven't tried going gluten-free yet, because I didn't want to mess up any of the test results... but I suppose since the testing is out of the way now, I can give that a try. The only problem is, it's going to be hard!!

GottaSki Mentor
GottaSki
Posted

gluten-free can be difficult at first, but it does become easy somewhere along the line.

Hang in there!

Takala Enthusiast
Takala
Posted

Did they do a full celiac blood test panel, or just the one test ?

Biopsies also miss a lot because the damage is patchy.

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      You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious.
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      Anti TTG (IgA) 2.430 U/mL Anti TTG (IgG) 288.2 U/mL
    • trents
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      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
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      Small Bowel Resection 12 inches

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      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
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