Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dealing With Flare Ups


Crzycatlady

Recommended Posts

Crzycatlady Newbie

Hi, I am new to this site but have already found several threads that were very helpful. I was diagnosed with celiac disease 8 months ago and have been gluten free since. I have had moderate to severe stomach problems for many years and have possibly had this since I was a teen. I have been dairy free for most of this time and also went to a food allergist to find out if there were additional foods I should be avoiding. Just about every food I normally eat came up positive. I eliminated all of them and then introduced them gradually. But I do not feel any better than since before I went gluten free. I get extremely bad stomach pains, diarrhea and constipation, intense muscle pains, fatigue, etc. Also, I normally get flare ups, that's what I call it when my symptoms get much worse and I can hardly get out of bed, at least once a month. Wondering if anyone else is going through this and if they have found relief?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

You may still be healing , for some it can take up to two years or even more. After five years a few still have problems.Plus please check to make sure you are not getting CC by kitchen utensils,hidden gluten,pet food...you may be just a very sensitive celiac that can not eat out in restaurants, use gluten-free foods that are not made in a dedicated place.. You may to go to a very strict food regime of plain meats, fruits, veggies, fish & no gluten-free processed foods to see if that brings more relief..

Another suggestion would be to get a massive blood work-up & be checked for other issues, gallbladder, crohn's, etc.

Do you take digestive enzymes & probiotics? They to may be a big help...Sometimes our gut just needs more help because it doesn't have enough gastric juices to more the food into a digested state ...

Crzycatlady Newbie

Thanks for your advice. Greatly appreciated. I do take Ultimate Flora Critical Care probiotic. Is there a specific enzyme supplement that anyone has had success with?

mamaw Community Regular

Many of us find help with Digest Gold by Enzymedica

Katie C. Newbie

Gluten Flam really helps my daughter. We ran out and forgot to get more, and boy did she start feeling bad. Got much better 4 days after re-starting it. Good luck!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,161
    • Most Online (within 30 mins)
      7,748

    dcajr
    Newest Member
    dcajr
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • Scott Adams
      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.