Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dealing With Flare Ups


Crzycatlady

Recommended Posts

Crzycatlady Newbie

Hi, I am new to this site but have already found several threads that were very helpful. I was diagnosed with celiac disease 8 months ago and have been gluten free since. I have had moderate to severe stomach problems for many years and have possibly had this since I was a teen. I have been dairy free for most of this time and also went to a food allergist to find out if there were additional foods I should be avoiding. Just about every food I normally eat came up positive. I eliminated all of them and then introduced them gradually. But I do not feel any better than since before I went gluten free. I get extremely bad stomach pains, diarrhea and constipation, intense muscle pains, fatigue, etc. Also, I normally get flare ups, that's what I call it when my symptoms get much worse and I can hardly get out of bed, at least once a month. Wondering if anyone else is going through this and if they have found relief?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

You may still be healing , for some it can take up to two years or even more. After five years a few still have problems.Plus please check to make sure you are not getting CC by kitchen utensils,hidden gluten,pet food...you may be just a very sensitive celiac that can not eat out in restaurants, use gluten-free foods that are not made in a dedicated place.. You may to go to a very strict food regime of plain meats, fruits, veggies, fish & no gluten-free processed foods to see if that brings more relief..

Another suggestion would be to get a massive blood work-up & be checked for other issues, gallbladder, crohn's, etc.

Do you take digestive enzymes & probiotics? They to may be a big help...Sometimes our gut just needs more help because it doesn't have enough gastric juices to more the food into a digested state ...

Crzycatlady Newbie

Thanks for your advice. Greatly appreciated. I do take Ultimate Flora Critical Care probiotic. Is there a specific enzyme supplement that anyone has had success with?

mamaw Community Regular

Many of us find help with Digest Gold by Enzymedica

Katie C. Newbie

Gluten Flam really helps my daughter. We ran out and forgot to get more, and boy did she start feeling bad. Got much better 4 days after re-starting it. Good luck!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,201
    • Most Online (within 30 mins)
      7,748

    Judy Wysocki
    Newest Member
    Judy Wysocki
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
    • trents
      @JettaGirl, "Coeliac" is the British spelling of "celiac". Same disease. 
    • JettaGirl
      This may sound ridiculous but is this supposed to say Celiacs? I looked up Coeliacs because you never know, there’s a lot of diseases related to a disease that they come up with similar names for. It’s probably meant to say Celiacs but I just wanted to confirm.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.