Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symtoms


bossley

Recommended Posts

bossley Contributor

the longer I'm gluten free does the bloating get better and better, or is this how I live the rest of my life?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Raisingwhirlwinds Newbie

the longer I'm gluten free does the bloating get better and better, or is this how I live the rest of my life?

It should definitely be getting better but if you are less than 3 months on the gluten-free diet then you could try going dairy free for a few months because the damaged villi often doesn't cope well with dairy.

GFinDC Veteran

Our guts can become sensitive to many different foods, not just gluten. So you need to think about that possibility at some point. Generally though, you should improve if you are eating a clean, whole foods diet for 3 to 6 months. How your body responds to celiac disease may be different from mine or other peoples. It took me 4.5 years to get to felling pretty well most of the time. But many people improve faster than that.

Bubba's Mom Enthusiast

This is what may be happening to you:

A hormone (CCK) is made in the duodenum that is sent to the gallbladder and pancreas telling them to perform their digestive duties. For the gallbladder, it means squeeze out some bile. For the pancreas it means release the digestive enzymes.

If you have damage in your duodenum, which is very common with newly DXed Celiac disease, either you aren't making the CCK, or it isn't being sent. This means your foods aren't being broken down like they should be, so they sit in your intestine and sort of ferment, causing gas..and bloating. If you have any gut dysbiosis going on (an imbalance of yeasts, bacteria, etc) it can cause bloating too.

You can talk to your Dr, about this and get testing, if you want to persue it. Most Dr.s don't seem real sympathetic to it,because it isn't life threatening, just uncomfortable. As you heal it should improve on it's own with time.

In the meantime, it's a very good idea to start taking probiotics daily and digestive enzymes too. Those additions can have you feeling more comfortable and help aid your healing. Food that gets broken down better is easier for your intestine to grab the nutrients from.

bossley Contributor

This is what may be happening to you:

A hormone (CCK) is made in the duodenum that is sent to the gallbladder and pancreas telling them to perform their digestive duties. For the gallbladder, it means squeeze out some bile. For the pancreas it means release the digestive enzymes.

If you have damage in your duodenum, which is very common with newly DXed Celiac disease, either you aren't making the CCK, or it isn't being sent. This means your foods aren't being broken down like they should be, so they sit in your intestine and sort of ferment, causing gas..and bloating. If you have any gut dysbiosis going on (an imbalance of yeasts, bacteria, etc) it can cause bloating too.

You can talk to your Dr, about this and get testing, if you want to persue it. Most Dr.s don't seem real sympathetic to it,because it isn't life threatening, just uncomfortable. As you heal it should improve on it's own with time.

In the meantime, it's a very good idea to start taking probiotics daily and digestive enzymes too. Those additions can have you feeling more comfortable and help aid your healing. Food that gets broken down better is easier for your intestine to grab the nutrients from.

Thank you, this makes sense,sounds like a good explanation. I'm doing probiotics,I'll add digestive enzymes. keep in touch

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,043
    • Most Online (within 30 mins)
      7,748

    Churro
    Newest Member
    Churro
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.