Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any Fellow Cd's In Nc

Lisa

By Lisa
in Introduce Yourself / Share Stuff

Recommended Posts

lizard00 Enthusiast
lizard00
Posted

I'm another Raleigh-ite :)

Momma Goose, we had some friends that used to live in Edenton. It's beautiful there. I grew up in southeastern VA, Suffolk. It's about a hour to Edenton (if I remember) and about an hour and a half to the OBX. I miss being so close to the ocean...

Liz

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
  • Author
I'm another Raleigh-ite :)

Momma Goose, we had some friends that used to live in Edenton. It's beautiful there. I grew up in southeastern VA, Suffolk. It's about a hour to Edenton (if I remember) and about an hour and a half to the OBX. I miss being so close to the ocean...

Liz

Yup, that would be us. :D PM me about your friends, perhaps we know them. Raleigh really is a small town, you know. We send our kids to go to school there and they never want to leave. Well, some appreciate "home".

lizard00 Enthusiast
lizard00
Posted

Where do your kids go to school?

When I first moved here from Suffolk, I though this place was HUGE!! But my husband and I have been here 4 years now and doesn't seem so big anymore. It's big enough for me... of course everything is very compartmentalized, so you really never have to go more than 5 miles from your home if you don't want to. I have two groceries within walking distance, a drug store and a gym... along with quite a few eateries. What else do you need? lol

Your kids will appreciate home as they get older. It probably seems small to them now, but there's nothing quite like home. :)

lmthoma Newbie
lmthoma
Posted

Those living in Hendersonville, NC- I am the manager at Potenza, an italian restaurant downtown, and we just started a gluten-free menu that includes pastas. My younger brother has celiac so I know how difficult it can be to go out to eat. I am not trying to shamelessly promote my restaurant but I do want to let people know that there are options out there and more and more people are becoming aware of celiac disease. I would love feedback on what peoples needs are when they are dining out.

  • 3 months later...
nikken007 Rookie
nikken007
Posted

Hi,

I live in Cary and have been gluten free for at least 3 months. My husband has a gluten intolerance and I highly suspect I do as well. I have no proof, except I feel a lot better! I do have 2 genes for celiac/gluten intolerance. I also have a sister who diagnosed herself with Celiac. We both had the enterolab test. The results were very surprising to us.

I want to let you Raleigh area people know there is a Celiac group that meets once a month at Rex hospital. It's the third thursday of each month. There will be a break for a month and then start back up July 17.

Breila Explorer
Breila
Posted
Hi,

I live in Cary and have been gluten free for at least 3 months. My husband has a gluten intolerance and I highly suspect I do as well. I have no proof, except I feel a lot better! I do have 2 genes for celiac/gluten intolerance. I also have a sister who diagnosed herself with Celiac. We both had the enterolab test. The results were very surprising to us.

I want to let you Raleigh area people know there is a Celiac group that meets once a month at Rex hospital. It's the third thursday of each month. There will be a break for a month and then start back up July 17.

Hi, I was at the meeting last night, were you there?

I'm in Garner, btw.

nikken007 Rookie
nikken007
Posted

Yes, I was there. I was on the end of the table. I have brown, below the shoulder hair. I had a brown sweater and an olive green shirt. I was a little late and sat next to the new lady in pink.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Breila Explorer
Breila
Posted
Yes, I was there. I was on the end of the table. I have brown, below the shoulder hair. I had a brown sweater and an olive green shirt. I was a little late and sat next to the new lady in pink.

Ah yes, I was new, sitting at the other end of the table, short hair and a blue tank top.

Guest digmom1014
Guest digmom1014
Posted

Hi-

Just chiming in, I live in Matthews, south of Charlotte. There is an active Charlotte celiac group that I have not been able to meet with yet.

Has anybody been to the Celiac Cookie House in Cornelius? I am trying convince myself to make the drive. I have been sugar-free, dairy-free, egg-free for 4 months and am not sure I feel comfortable introducing those items again. I went gluten-free in Jan. after many years of being sick.

  • 2 months later...
Stormycubs Newbie
Stormycubs
Posted
Hi, I was at the meeting last night, were you there?

I'm in Garner, btw.

Hi all-

My name is Brandy and I just met Amy at the mall today and she was talking about the rex group. My daughter is 6 and we found out she had celiac when she was 3ish. I have been looking for others around so I am so interested in the rex group. We live in Holly Springs. Can you give me all the info as to where the group meets and the time. I know the next meeting is tonight and I hate that I wont be able to make it. But hopefully I can make the next one. Thanks so much and its so nice to know there are others around going through the same stuff. I can't wait for Kendall to get home from school so I can tell her about the group!!!! :D :D :D :D

Ridgewalker Contributor
Ridgewalker
Posted
Hi all-

My name is Brandy and I just met Amy at the mall today and she was talking about the rex group. My daughter is 6 and we found out she had celiac when she was 3ish. I have been looking for others around so I am so interested in the rex group. We live in Holly Springs. Can you give me all the info as to where the group meets and the time. I know the next meeting is tonight and I hate that I wont be able to make it. But hopefully I can make the next one. Thanks so much and its so nice to know there are others around going through the same stuff. I can't wait for Kendall to get home from school so I can tell her about the group!!!! :D :D :D :D

Well, I got all excited seeing Holly Springs at first... There is a little town called Holly Springs that's just a hop, skip, and a jump from us- We live in Pilot Mountain/Pinnacle. I have two boys, ages 5 and 7. But then I remembered there's a bigger town called Holly Springs down near Raleigh. I bet that's the one you're referring to... Oh well. There are a handful of Raleigh members here, so others should chime in soon! :D

MinRalph Rookie
MinRalph
Posted

Hi everyone :)

I live in Jacksoneville, NC and have celiac disease. I have just recently heard of more people who have or know someone who has celiac disease or wheat allergies. It seems to be becoming much more well known, which I find pretty cool. Our local stores actually have a few gluten-free products in them!

Anyway, I just wanted to throw myself out there :D

  • 1 month later...
Guest elysealec
Guest elysealec
Posted
I am also in Wilmington and would love to meet other celiacs in the area. I was just diagnosed this week.

Holly

I live in Kure Beach and am in Wilmington every day. I know of one other celiac in the area. I am sure there are many more. We were talking about getting a gluten free dinner club together. Any interest?

Vicki

  • 6 months later...
KristynRCP Newbie
KristynRCP
Posted

Hello I was Dx with celiac disease at end of December. I am from Rocky Mount, NC... there is no gluten-free stuff here.. no restaurants or anything.. I have a birthday coming up and I am looking for a gluten free cake.. any ideas from anyone? Im not good at the gluten-free cooking yet..so im looking for a bakery or something like that.....There is no support group here either.. wish i could get one started .....

Kristyn

Lisa Mentor
Lisa
Posted
  • Author

Kristyn,

I am not from Rocky Mount, but I'm not far. Do you have a Food Lion, if so they have a health food section which carries Pamela's Cake Mixes. Make them as you would a regular cake and I would dare anyone to tell the difference. Pillsbury Frosting often has gluten free choices, you just have to read the label. Wal Mart has many options for gluten free. It's out there, ya just have to find 'em.

The best support you will find in your area is right here on C.com.

bear6954 Apprentice
bear6954
Posted

For anyone in Jacksonville, NC, White Oak Bakery makes gluten free cakes and cookies. You need to call and special order and they are expensive. However, I got a gluten-free cake for my son and it was wonderful. He was so happy to eat cake with everyone else. It brought tears to my eyes!

  • 4 weeks later...
sedkins Newbie
sedkins
Posted

Hello. I am new to this board, but have been gluten-free/CF for about 3 years. My son (11) was recently diagnosed as likely having celiac disease, although he has been gluten-free off and on for about 3 years. We are looking for a support group, particularly one where he might be able to meet some other kids his age because he is really struggling with being "different." We are located in Lumberton, south of Fayetteville.

  • 2 months later...
TotalKnowledge Apprentice
TotalKnowledge
Posted
Dear Lisa B.,

I am celiac in Wilmington, NC. Have you heard of any fellow celiacs in this area. I have only been gluten free since Aug 2006 and really haven't found anyone to relate to.

Thanks for your help!

Have a Happy 4th!

Mary Katherine Talley

There is a relatively new support group that is held and Lovey's once a month. I have only been to one meeting, but there were a several people there. They have a sign-up sheet there at the information table right when you come in next to the cafe seating.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

      Years ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came...
    2. Rejoicephd
      - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

      Wow what a helpful article!! I am just seeing this now but I hosted a small group of family for Thanksgiving at my house this year and I did some of these things- got a butterball gluten-free turkey, got gluten-free stuffing, had a few gluten-free sides, and a gluten-free nothing-Bundt-cake. I had other non gluten-free things there too for others, and I also...
    3. Scott Adams
      0

      Rainforest Cafe Fined After Child's Severe Allergic Reaction: What It Means for Gluten-Free Safety

    4. marion wheaton
      - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    5. trents
      - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,416
    • Most Online (within 30 mins)
      7,748
    Heather8280
    Newest Member
    Heather8280
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.