Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any Fellow Cd's In Nc

Lisa

By Lisa
in Introduce Yourself / Share Stuff

Recommended Posts

lizard00 Enthusiast
lizard00
Posted

I'm another Raleigh-ite :)

Momma Goose, we had some friends that used to live in Edenton. It's beautiful there. I grew up in southeastern VA, Suffolk. It's about a hour to Edenton (if I remember) and about an hour and a half to the OBX. I miss being so close to the ocean...

Liz

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
  • Author
I'm another Raleigh-ite :)

Momma Goose, we had some friends that used to live in Edenton. It's beautiful there. I grew up in southeastern VA, Suffolk. It's about a hour to Edenton (if I remember) and about an hour and a half to the OBX. I miss being so close to the ocean...

Liz

Yup, that would be us. :D PM me about your friends, perhaps we know them. Raleigh really is a small town, you know. We send our kids to go to school there and they never want to leave. Well, some appreciate "home".

lizard00 Enthusiast
lizard00
Posted

Where do your kids go to school?

When I first moved here from Suffolk, I though this place was HUGE!! But my husband and I have been here 4 years now and doesn't seem so big anymore. It's big enough for me... of course everything is very compartmentalized, so you really never have to go more than 5 miles from your home if you don't want to. I have two groceries within walking distance, a drug store and a gym... along with quite a few eateries. What else do you need? lol

Your kids will appreciate home as they get older. It probably seems small to them now, but there's nothing quite like home. :)

lmthoma Newbie
lmthoma
Posted

Those living in Hendersonville, NC- I am the manager at Potenza, an italian restaurant downtown, and we just started a gluten-free menu that includes pastas. My younger brother has celiac so I know how difficult it can be to go out to eat. I am not trying to shamelessly promote my restaurant but I do want to let people know that there are options out there and more and more people are becoming aware of celiac disease. I would love feedback on what peoples needs are when they are dining out.

  • 3 months later...
nikken007 Rookie
nikken007
Posted

Hi,

I live in Cary and have been gluten free for at least 3 months. My husband has a gluten intolerance and I highly suspect I do as well. I have no proof, except I feel a lot better! I do have 2 genes for celiac/gluten intolerance. I also have a sister who diagnosed herself with Celiac. We both had the enterolab test. The results were very surprising to us.

I want to let you Raleigh area people know there is a Celiac group that meets once a month at Rex hospital. It's the third thursday of each month. There will be a break for a month and then start back up July 17.

Breila Explorer
Breila
Posted
Hi,

I live in Cary and have been gluten free for at least 3 months. My husband has a gluten intolerance and I highly suspect I do as well. I have no proof, except I feel a lot better! I do have 2 genes for celiac/gluten intolerance. I also have a sister who diagnosed herself with Celiac. We both had the enterolab test. The results were very surprising to us.

I want to let you Raleigh area people know there is a Celiac group that meets once a month at Rex hospital. It's the third thursday of each month. There will be a break for a month and then start back up July 17.

Hi, I was at the meeting last night, were you there?

I'm in Garner, btw.

nikken007 Rookie
nikken007
Posted

Yes, I was there. I was on the end of the table. I have brown, below the shoulder hair. I had a brown sweater and an olive green shirt. I was a little late and sat next to the new lady in pink.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Breila Explorer
Breila
Posted
Yes, I was there. I was on the end of the table. I have brown, below the shoulder hair. I had a brown sweater and an olive green shirt. I was a little late and sat next to the new lady in pink.

Ah yes, I was new, sitting at the other end of the table, short hair and a blue tank top.

Guest digmom1014
Guest digmom1014
Posted

Hi-

Just chiming in, I live in Matthews, south of Charlotte. There is an active Charlotte celiac group that I have not been able to meet with yet.

Has anybody been to the Celiac Cookie House in Cornelius? I am trying convince myself to make the drive. I have been sugar-free, dairy-free, egg-free for 4 months and am not sure I feel comfortable introducing those items again. I went gluten-free in Jan. after many years of being sick.

  • 2 months later...
Stormycubs Newbie
Stormycubs
Posted
Hi, I was at the meeting last night, were you there?

I'm in Garner, btw.

Hi all-

My name is Brandy and I just met Amy at the mall today and she was talking about the rex group. My daughter is 6 and we found out she had celiac when she was 3ish. I have been looking for others around so I am so interested in the rex group. We live in Holly Springs. Can you give me all the info as to where the group meets and the time. I know the next meeting is tonight and I hate that I wont be able to make it. But hopefully I can make the next one. Thanks so much and its so nice to know there are others around going through the same stuff. I can't wait for Kendall to get home from school so I can tell her about the group!!!! :D :D :D :D

Ridgewalker Contributor
Ridgewalker
Posted
Hi all-

My name is Brandy and I just met Amy at the mall today and she was talking about the rex group. My daughter is 6 and we found out she had celiac when she was 3ish. I have been looking for others around so I am so interested in the rex group. We live in Holly Springs. Can you give me all the info as to where the group meets and the time. I know the next meeting is tonight and I hate that I wont be able to make it. But hopefully I can make the next one. Thanks so much and its so nice to know there are others around going through the same stuff. I can't wait for Kendall to get home from school so I can tell her about the group!!!! :D :D :D :D

Well, I got all excited seeing Holly Springs at first... There is a little town called Holly Springs that's just a hop, skip, and a jump from us- We live in Pilot Mountain/Pinnacle. I have two boys, ages 5 and 7. But then I remembered there's a bigger town called Holly Springs down near Raleigh. I bet that's the one you're referring to... Oh well. There are a handful of Raleigh members here, so others should chime in soon! :D

MinRalph Rookie
MinRalph
Posted

Hi everyone :)

I live in Jacksoneville, NC and have celiac disease. I have just recently heard of more people who have or know someone who has celiac disease or wheat allergies. It seems to be becoming much more well known, which I find pretty cool. Our local stores actually have a few gluten-free products in them!

Anyway, I just wanted to throw myself out there :D

  • 1 month later...
Guest elysealec
Guest elysealec
Posted
I am also in Wilmington and would love to meet other celiacs in the area. I was just diagnosed this week.

Holly

I live in Kure Beach and am in Wilmington every day. I know of one other celiac in the area. I am sure there are many more. We were talking about getting a gluten free dinner club together. Any interest?

Vicki

  • 6 months later...
KristynRCP Newbie
KristynRCP
Posted

Hello I was Dx with celiac disease at end of December. I am from Rocky Mount, NC... there is no gluten-free stuff here.. no restaurants or anything.. I have a birthday coming up and I am looking for a gluten free cake.. any ideas from anyone? Im not good at the gluten-free cooking yet..so im looking for a bakery or something like that.....There is no support group here either.. wish i could get one started .....

Kristyn

Lisa Mentor
Lisa
Posted
  • Author

Kristyn,

I am not from Rocky Mount, but I'm not far. Do you have a Food Lion, if so they have a health food section which carries Pamela's Cake Mixes. Make them as you would a regular cake and I would dare anyone to tell the difference. Pillsbury Frosting often has gluten free choices, you just have to read the label. Wal Mart has many options for gluten free. It's out there, ya just have to find 'em.

The best support you will find in your area is right here on C.com.

bear6954 Apprentice
bear6954
Posted

For anyone in Jacksonville, NC, White Oak Bakery makes gluten free cakes and cookies. You need to call and special order and they are expensive. However, I got a gluten-free cake for my son and it was wonderful. He was so happy to eat cake with everyone else. It brought tears to my eyes!

  • 4 weeks later...
sedkins Newbie
sedkins
Posted

Hello. I am new to this board, but have been gluten-free/CF for about 3 years. My son (11) was recently diagnosed as likely having celiac disease, although he has been gluten-free off and on for about 3 years. We are looking for a support group, particularly one where he might be able to meet some other kids his age because he is really struggling with being "different." We are located in Lumberton, south of Fayetteville.

  • 2 months later...
TotalKnowledge Apprentice
TotalKnowledge
Posted
Dear Lisa B.,

I am celiac in Wilmington, NC. Have you heard of any fellow celiacs in this area. I have only been gluten free since Aug 2006 and really haven't found anyone to relate to.

Thanks for your help!

Have a Happy 4th!

Mary Katherine Talley

There is a relatively new support group that is held and Lovey's once a month. I have only been to one meeting, but there were a several people there. They have a sign-up sheet there at the information table right when you come in next to the cafe seating.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Ferritin levels. And see what your hemoglobin looks like too, that will tell you if you are anemic? You can have 'low normal' levels that will not be flagged by blood tests. I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial...
    2. Mari
      - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

      Hi Katht - I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was...
    3. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Yes thyroid was tested.. negative Iron ...I'm. Not sure ... Would that fall under red blood count? If so I was ok Thank you for the detailed response..☺️
    4. Colleen H
      - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines? Did it work ?? Thank you !!
    5. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse. But it is important not to stop the treatment. Regarding your problems with anxiety, again that is another symptom of a B12 deficiency. I didn't know...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,879
    • Most Online (within 30 mins)
      7,748
    Peta Dunn
    Newest Member
    Peta Dunn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      New here

      By Mari · Posted

      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Methylprednisone treatment for inflammation?

      By Colleen H · Posted

      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.