Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help! Not Sure What This Is, But Trying To Figure It Out...

josh052980

By josh052980
in Coping with Celiac Disease

Recommended Posts

josh052980 Enthusiast
josh052980
Posted

Ok, the really crappy part here is that it seems to happen only after eating at Five Guys. It's not a glutening, so I'm not sure what is going on.

If I eat at Five Guys (and I've been known to be a real ass there. The Five Guys in my neighborhood seems to be the worst of them. They have to be CONSTANTLY reminded about CC, to the point that I had them remake a burger and change their gloves. I know I'm not getting glutened for that reason, and this is just different symptoms than my glutening symptoms.

About 5 hours after I eat the burger, I get jittery. My joint begin to ache (when I'm glutened it's my entire body that aches) I'll get a bit of a headache, some heart palpitations and the most noticable of all, SWEATING. Last night for example. I had Five Guys for lunch, dealt with joint aches from about 7pm on, then I went to sleep. I was jolted awake for no reason around 2am, and the sheets had several sweat spots in them, where they were just soaked, but my body was dry. My heart wasn't racing, but it was pounding.

My first thought with all of this is MSG, but I'm not sure. I kept the burger pretty plain (ketchup, onions, green peppers and mayo, didn't have any fries). Anyone have any ideas?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Ok, the really crappy part here is that it seems to happen only after eating at Five Guys. It's not a glutening, so I'm not sure what is going on.

If I eat at Five Guys (and I've been known to be a real ass there. The Five Guys in my neighborhood seems to be the worst of them. They have to be CONSTANTLY reminded about CC, to the point that I had them remake a burger and change their gloves. I know I'm not getting glutened for that reason, and this is just different symptoms than my glutening symptoms.

About 5 hours after I eat the burger, I get jittery. My joint begin to ache (when I'm glutened it's my entire body that aches) I'll get a bit of a headache, some heart palpitations and the most noticable of all, SWEATING. Last night for example. I had Five Guys for lunch, dealt with joint aches from about 7pm on, then I went to sleep. I was jolted awake for no reason around 2am, and the sheets had several sweat spots in them, where they were just soaked, but my body was dry. My heart wasn't racing, but it was pounding.

My first thought with all of this is MSG, but I'm not sure. I kept the burger pretty plain (ketchup, onions, green peppers and mayo, didn't have any fries). Anyone have any ideas?

Are you ok with peanuts/legumes? I know the ones I've been to fry the potatoes in peanut oil.

josh052980 Enthusiast
josh052980
Posted
  • Author

I kept the burger pretty plain (ketchup, onions, green peppers and mayo, didn't have any fries). Anyone have any ideas?

I am fine with peanuts/legumes, and it wouldn't matter anyways, I didn't have any fries.

jerseyangel Proficient
jerseyangel
Posted

I am fine with peanuts/legumes, and it wouldn't matter anyways, I didn't have any fries.

Whoops, my mistake. Can't think of anything else, I'm sure you are normally ok with the things you had on the burger or you wouldn't have ordered it that way. Sometimes I get reactions that I just can't pin to any one thing. It's frustrating, I know. Hopefully someone else will chime in with other ideas. :)

josh052980 Enthusiast
josh052980
Posted
  • Author

Whoops, my mistake. Can't think of anything else, I'm sure you are normally ok with the things you had on the burger or you wouldn't have ordered it that way. Sometimes I get reactions that I just can't pin to any one thing. It's frustrating, I know. Hopefully someone else will chime in with other ideas. :)

I'm still thinking it's MSG. I've heard they lace the burgers with it too, but I've never been able to find a way to substantiate that claim.

kareng Grand Master
kareng
Posted

Just a thought but, if everytime you eat there, you feel bad.....don't eat there? :)

josh052980 Enthusiast
josh052980
Posted
  • Author

Just a thought but, if everytime you eat there, you feel bad.....don't eat there? :)

I may just do that. I can't seem to narrow down the culprit. It's not every time I eat there though, that's the kicker. I guess it's going to have to be a once in a while thing.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Salax Contributor
Salax
Posted

My first thought was a possibility of MSG as well. I wonder if you could get them to put no seasoning on it if it would help? Or even call the corporate office and ask if they use MSG? Or like someone else said, don't eat there LOL. B)

josh052980 Enthusiast
josh052980
Posted
  • Author

My first thought was a possibility of MSG as well. I wonder if you could get them to put no seasoning on it if it would help? Or even call the corporate office and ask if they use MSG? Or like someone else said, don't eat there LOL. B)

I HATE the possibility of not eating there; there's not many places near me that are safe to go out and eat, so it's yet another limitation. But waking up in a sweat kinda sucks too...

Salax Contributor
Salax
Posted

Understandable. So maybe see if they put seasoning on it while it's cooking and ask them not too and see what happens? Hopefully that will solve it. B)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      18

      My journey is it gluten or fiber?

      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state...
    2. olivia11
      - olivia11 replied to olivia11's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      suggest gluten free food

      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
    3. knitty kitty
      - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      GI DX celiac despite neg serology and no biopsy

      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent. People of Mediterranean descent have HLA DQ 7. People of Asian descent have HLA DQ 9. There's other Indigenous populations that have other HLA genes that code for Celiac disease. Are you still having symptoms? What do...
    4. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      18

      My journey is it gluten or fiber?

      There are eight essential B vitamins. They are all water soluble. Any excess of B vitamins is easily excreted by the kidneys. Thiamine is Vitamin B 1. Thiamine is safe and nontoxic even in high doses. Benfotiamine and TTFD are forms of Thiamine that the body can utilize very easily. The form of Thiamine in the supplements you mentioned is...
    5. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      18

      My journey is it gluten or fiber?

      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,754
    • Most Online (within 30 mins)
      7,748
    Brmorrison74
    Newest Member
    Brmorrison74
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state a laxative affect as side affect. SHould I take with my super B complex or just these 2 and multivitamin? I will do further research but I appreciate the wonderful explanation you provided on Thiamine.
    • olivia11
      suggest gluten free food

      By olivia11 · Posted

      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
    • knitty kitty
      GI DX celiac despite neg serology and no biopsy

      By knitty kitty · Posted

      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent.   People of Mediterranean descent have HLA DQ 7.  People of Asian descent have HLA DQ 9.   There's other Indigenous populations that have other HLA genes that code for Celiac disease.   Are you still having symptoms?   What do you include in your diet?  Are you vegetarian? Are you taking any prescription medication?  Omeprazole?  Metformin?   Do you have anemia?  Thyroid problems? Are you taking any vitamins or herbal supplements?  
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      There are eight essential B vitamins.  They are all water soluble.  Any excess of B vitamins is easily excreted by the kidneys.   Thiamine is Vitamin B 1.  Thiamine is safe and nontoxic even in high doses.  Benfotiamine and TTFD are forms of Thiamine that the body can utilize very easily.   The form of Thiamine in the supplements you mentioned is Thiamine Mononitrate, a form that the body does not absorb well and does not utilize well.  Only about thirty percent of the amount on the label is actually absorbed in the small intestine.  Less than that can actually be used by the body.  Manufacturers add thiamine mononitrate to their products because it's cheap and shelf-stable.  Thiamine and other B vitamins break down when exposed to light and heat and over time.  Thiamine Mononitrate is a form that does not break down over time sitting on a shelf waiting for someone to buy them.  What makes Thiamine Mononitrate shelf stable makes it difficult for the body to turn into a useable form.  In fact, it takes more thiamine to turn it into a useable form.   Gastrointestinal Beriberi is a localized shortage of Thiamine in the gastrointestinal tract.  High carbohydrate meals can result in gastrointestinal symptoms of Gastric Beriberi.  Fiber is a type of carbohydrate.  So, high fiber/carbohydrate snacks could trigger Gastric Beriberi.   Since blood tests for Thiamine and other B vitamins are so inaccurate, the World Health Organization recommends trying Thiamine and looking for health improvement because it's safe and nontoxic.  
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.