Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help! Not Sure What This Is, But Trying To Figure It Out...

josh052980

By josh052980
in Coping with Celiac Disease

Recommended Posts

josh052980 Enthusiast
josh052980
Posted

Ok, the really crappy part here is that it seems to happen only after eating at Five Guys. It's not a glutening, so I'm not sure what is going on.

If I eat at Five Guys (and I've been known to be a real ass there. The Five Guys in my neighborhood seems to be the worst of them. They have to be CONSTANTLY reminded about CC, to the point that I had them remake a burger and change their gloves. I know I'm not getting glutened for that reason, and this is just different symptoms than my glutening symptoms.

About 5 hours after I eat the burger, I get jittery. My joint begin to ache (when I'm glutened it's my entire body that aches) I'll get a bit of a headache, some heart palpitations and the most noticable of all, SWEATING. Last night for example. I had Five Guys for lunch, dealt with joint aches from about 7pm on, then I went to sleep. I was jolted awake for no reason around 2am, and the sheets had several sweat spots in them, where they were just soaked, but my body was dry. My heart wasn't racing, but it was pounding.

My first thought with all of this is MSG, but I'm not sure. I kept the burger pretty plain (ketchup, onions, green peppers and mayo, didn't have any fries). Anyone have any ideas?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Ok, the really crappy part here is that it seems to happen only after eating at Five Guys. It's not a glutening, so I'm not sure what is going on.

If I eat at Five Guys (and I've been known to be a real ass there. The Five Guys in my neighborhood seems to be the worst of them. They have to be CONSTANTLY reminded about CC, to the point that I had them remake a burger and change their gloves. I know I'm not getting glutened for that reason, and this is just different symptoms than my glutening symptoms.

About 5 hours after I eat the burger, I get jittery. My joint begin to ache (when I'm glutened it's my entire body that aches) I'll get a bit of a headache, some heart palpitations and the most noticable of all, SWEATING. Last night for example. I had Five Guys for lunch, dealt with joint aches from about 7pm on, then I went to sleep. I was jolted awake for no reason around 2am, and the sheets had several sweat spots in them, where they were just soaked, but my body was dry. My heart wasn't racing, but it was pounding.

My first thought with all of this is MSG, but I'm not sure. I kept the burger pretty plain (ketchup, onions, green peppers and mayo, didn't have any fries). Anyone have any ideas?

Are you ok with peanuts/legumes? I know the ones I've been to fry the potatoes in peanut oil.

josh052980 Enthusiast
josh052980
Posted
  • Author

I kept the burger pretty plain (ketchup, onions, green peppers and mayo, didn't have any fries). Anyone have any ideas?

I am fine with peanuts/legumes, and it wouldn't matter anyways, I didn't have any fries.

jerseyangel Proficient
jerseyangel
Posted

I am fine with peanuts/legumes, and it wouldn't matter anyways, I didn't have any fries.

Whoops, my mistake. Can't think of anything else, I'm sure you are normally ok with the things you had on the burger or you wouldn't have ordered it that way. Sometimes I get reactions that I just can't pin to any one thing. It's frustrating, I know. Hopefully someone else will chime in with other ideas. :)

josh052980 Enthusiast
josh052980
Posted
  • Author

Whoops, my mistake. Can't think of anything else, I'm sure you are normally ok with the things you had on the burger or you wouldn't have ordered it that way. Sometimes I get reactions that I just can't pin to any one thing. It's frustrating, I know. Hopefully someone else will chime in with other ideas. :)

I'm still thinking it's MSG. I've heard they lace the burgers with it too, but I've never been able to find a way to substantiate that claim.

kareng Grand Master
kareng
Posted

Just a thought but, if everytime you eat there, you feel bad.....don't eat there? :)

josh052980 Enthusiast
josh052980
Posted
  • Author

Just a thought but, if everytime you eat there, you feel bad.....don't eat there? :)

I may just do that. I can't seem to narrow down the culprit. It's not every time I eat there though, that's the kicker. I guess it's going to have to be a once in a while thing.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Salax Contributor
Salax
Posted

My first thought was a possibility of MSG as well. I wonder if you could get them to put no seasoning on it if it would help? Or even call the corporate office and ask if they use MSG? Or like someone else said, don't eat there LOL. B)

josh052980 Enthusiast
josh052980
Posted
  • Author

My first thought was a possibility of MSG as well. I wonder if you could get them to put no seasoning on it if it would help? Or even call the corporate office and ask if they use MSG? Or like someone else said, don't eat there LOL. B)

I HATE the possibility of not eating there; there's not many places near me that are safe to go out and eat, so it's yet another limitation. But waking up in a sweat kinda sucks too...

Salax Contributor
Salax
Posted

Understandable. So maybe see if they put seasoning on it while it's cooking and ask them not too and see what happens? Hopefully that will solve it. B)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Florence Lillian
      - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Celiac friendly probiotics

      In response to your questions regarding probiotics. I have had Celiac for 40 years. Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything. I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference. After reading about people with Crones, IBS, etc, who made...
    2. slkrav
      - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    3. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Ferritin levels. And see what your hemoglobin looks like too, that will tell you if you are anemic? You can have 'low normal' levels that will not be flagged by blood tests. I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial...
    4. Mari
      - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

      Hi Katht - I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was...
    5. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Yes thyroid was tested.. negative Iron ...I'm. Not sure ... Would that fall under red blood count? If so I was ok Thank you for the detailed response..☺️
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,882
    • Most Online (within 30 mins)
      7,748
    Nicole King
    Newest Member
    Nicole King
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Florence Lillian
      Celiac friendly probiotics

      By Florence Lillian · Posted

      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Gluten free beer ?

      By slkrav · Posted

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ibuprofen

      By cristiana · Posted

      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      New here

      By Mari · Posted

      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.