Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ethical (And Legal) Question On Enterolab


JaneWhoLovesRain

Recommended Posts

JaneWhoLovesRain Enthusiast

I want to order the mouth swab test (Gluten Sensitivity Gene Test (Molecular HLA-DQB1 analysis)) from Enterolab to see if I have one of the celiac genes. However, my state is one of the two in the country that does not allow the paitent to directly purchase this test, it must be ordered through the doctor. Would it be ethically wrong for me to order this test and have it sent to a friend in a neighboring state and is it even legal for me to do it this backhanded way? Does anyone know if I have to click some kind of disclaimer stating where I live? Or will they know by my credit card info and then not send it to me or worse send it to me and then slap me with a heavy federal fine a month later? I'm the kind of person who goes by the book so the idea of doing something illegal kind of freaks me out a bit. Yet I want to know if I have the gene and don't want to go through the doctor at this time.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sharilee Rookie

How did you find out that you live in a state that requires the order be submitted through the doctor? A lot would depend on why it is illegal to do so in your state. Which would depend on your state's particular law. It may only be illegal to order it directly if you intend to use those results for submitting to insurance or something like that. But using the results for your own personal information may not be illegal to order.

I can't say for certain but I do not remember having to sign a disclaimer as to the state I live in when I ordered from Enterolab. I only remember having to sign a disclaimer as to who I am, my date of birth, weight and height (information I guess they use in interpreting test results).

I doubt seriously they pay attention to the amount of orders they receive that the shipping address and credit card billing address do not match. Also that is probably fairly common with their orders anyway as a family member may be paying for another family member's test so they would not match.

I doubt you would be slapped with a federal fine as although federal law would apply because of more than one state being involved and the mail, the feds have much bigger problems, if you were to get in trouble it would more likely be with your individual state but that is unlikely to as your state is probably not concerned with minor violations either.

JaneWhoLovesRain Enthusiast

Sharilee - it says so on their web site

sharilee Rookie

Sharilee - it says so on their web site

JaneWhoLovesRain Enthusiast

Sharilee - THANK YOU SO MUCH for doing all that reasearch. I really appreciate that you took the time for this. Based on what you found I will not be ordering the test and having it sent elsewhere. I don't want to be a partner in crime, the law is the law and I will go along with that. I'll go through my doctor and hopefully he will agree to it.

Thanks, Jane

sharilee Rookie

Sharilee - THANK YOU SO MUCH for doing all that reasearch. I really appreciate that you took the time for this. Based on what you found I will not be ordering the test and having it sent elsewhere. I don't want to be a partner in crime, the law is the law and I will go along with that. I'll go through my doctor and hopefully he will agree to it.

Thanks, Jane

Your welcome, glad I could help

1974girl Enthusiast

Would it be wrong for someone to order it for you and you pay them back? It doesn't allow THEIR residents to order it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    2. - tiffanygosci posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Aldi Pueblo Lindo Yellow Corn Tortillas

    3. - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    4. - trents replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    5. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,977
    • Most Online (within 30 mins)
      7,748

    Riley.
    Newest Member
    Riley.
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
    • Mari
      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.