Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hey Everyone


shauniscrazy

Recommended Posts

shauniscrazy Explorer

Hi I'm Shaun I recently found out I am allergic to gluten and cow dairy. I would like to talk to people about when they found out so i can learn more. I would prefer to talk to people closer to my age lol but i will listen to anyone. :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Hi Shaun,

I was close to your age at one time, but it has only been a few decades, 3 maybe 4 tops. I stared out having lactose intolerance for 9 years or so, and then found out I had celiac disease. Celiac is not actually an allergy, allergies are IgE immune reactions. Celiac is IgA or IgG or some other immune reactions. IgE reactions are like hayfever type reactions where it affects breathing, skin, eyes etc,. People can take anti-histamines for IgE reactions, but they don't help much for celiac disease reactions. Well, that was pretty boring!

Anyhow, there are some other younger members on the forum, so maybe they will show up with some rad info for you. Do they still say rad? :) And welcome to forum we are glad to have you here!

shauniscrazy Explorer

Hi Shaun,

I was close to your age at one time, but it has only been a few decades, 3 maybe 4 tops. I stared out having lactose intolerance for 9 years or so, and then found out I had celiac disease. Celiac is not actually an allergy, allergies are IgE immune reactions. Celiac is IgA or IgG or some other immune reactions. IgE reactions are like hayfever type reactions where it affects breathing, skin, eyes etc,. People can take anti-histamines for IgE reactions, but they don't help much for celiac disease reactions. Well, that was pretty boring!

Anyhow, there are some other younger members on the forum, so maybe they will show up with some rad info for you. Do they still say rad? :) And welcome to forum we are glad to have you here!

Thanks for your help and my doctor thinks i might have celiac disease but we dont know yet.

GFinDC Veteran

Hi Shaun,

Have you had the blood antibody tests and an endoscopy? If the blood antibodies are positive you may not need an endoscopy. Usually it takes a couple weeks to get the antibody results from a lab. It is helpful to get a paper copy of the resutls for yourself also. You might want to review them with another doctor later or even post them on the forum. There are some medical people on the forum who can help interpret them. It's important to keep eating gluten until all the tests are done.

Eating gluten-free is quite a challenge at first. We end up making a lot of our own food and snacks since some times you can't find things when you are out. Although fruit is often a good choice or nuts and they are widely available.

Take care,

Paul

shauniscrazy Explorer

Hi Shaun,

Have you had the blood antibody tests and an endoscopy? If the blood antibodies are positive you may not need an endoscopy. Usually it takes a couple weeks to get the antibody results from a lab. It is helpful to get a paper copy of the resutls for yourself also. You might want to review them with another doctor later or even post them on the forum. There are some medical people on the forum who can help interpret them. It's important to keep eating gluten until all the tests are done.

Eating gluten-free is quite a challenge at first. We end up making a lot of our own food and snacks since some times you can't find things when you are out. Although fruit is often a good choice or nuts and they are widely available.

Take care,

Paul

I just heard from my doctor today and she said that i tested negative and thanks.

eatmeat4good Enthusiast

Are you still going to be gluten free?

I am not your age, I'm 49, but I wondered if this means you will be eating gluten or if you will be gluten free due to allergy to it?

shauniscrazy Explorer

Are you still going to be gluten free?

I am not your age, I'm 49, but I wondered if this means you will be eating gluten or if you will be gluten free due to allergy to it?

i am gluten and dairy free still


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



justlisa Apprentice

Yes...I'm hijacking your thread (I just wanted to support my fellow geriatrics. I've got a good 3 decades on you, too, kiddo ;) )

But, seriously... I'm curious about how you came to suspect gluten/dairy? Symptoms? Any progress yet?

shauniscrazy Explorer

Yes...I'm hijacking your thread (I just wanted to support my fellow geriatrics. I've got a good 3 decades on you, too, kiddo ;) )

But, seriously... I'm curious about how you came to suspect gluten/dairy? Symptoms? Any progress yet?

Well i go to a doctor every now and then for my anxiety and i mentioned i feel sick all the time and she is a celiac so she thought i was and we did some tests that revealed that i have a bunch of allergies i was unaware of lol

justlisa Apprentice

Well i go to a doctor every now and then for my anxiety and i mentioned i feel sick all the time and she is a celiac so she thought i was and we did some tests that revealed that i have a bunch of allergies i was unaware of lol

So...how long have you been gluten/dairy free? Any improvement?

What allergies?

shauniscrazy Explorer

So...how long have you been gluten/dairy free? Any improvement?

What allergies?

My main food allergies are gluten and dairy. I have been mostly free of these for about 2 weeks i think. I have noticed a lot of improvement on how i feel.

kaitlynrose Rookie

Hi Shaun,

My name is Kaitlyn and I'm 17. I started eating gluten-free when I was 14. I was not officially diagnosed with celiac, but my cousin has it and her gastrointerologist said I most likely have it as well. Either way, eating gluten-free has changed my life for the better.

shauniscrazy Explorer

Hi Shaun,

My name is Kaitlyn and I'm 17. I started eating gluten-free when I was 14. I was not officially diagnosed with celiac, but my cousin has it and her gastrointerologist said I most likely have it as well. Either way, eating gluten-free has changed my life for the better.

Thank you for the reply kaitlyn. I believe it has changed my life for the better too. Is there any foods or resturants you would recommend?

kaitlynrose Rookie

Shaun- Yes, PF Changs is my favorite. It's a little pricey, but they have a menu with a great variety of dishes, and the gluten-free entrees are even served on completely different dishes. I have never had a bad experience there (i.e. cross contamination). The nearest one to my house is like an hour away though, so it's just for special occasions. I eat at a lot of mexican restaurants. I just have them prepare my meal with a corn tortilla in the usual flour one's place. Honestly I do not eat out very often, so I don't have many suggestions...

shauniscrazy Explorer

Shaun- Yes, PF Changs is my favorite. It's a little pricey, but they have a menu with a great variety of dishes, and the gluten-free entrees are even served on completely different dishes. I have never had a bad experience there (i.e. cross contamination). The nearest one to my house is like an hour away though, so it's just for special occasions. I eat at a lot of mexican restaurants. I just have them prepare my meal with a corn tortilla in the usual flour one's place. Honestly I do not eat out very often, so I don't have many suggestions...

Thank you lol. The nearest pf changs is about an hour from here too. So since you dont eat out often what do you make to eat?

Guest Runningdream

I love pf changs!!

shauniscrazy Explorer

I love pf changs!!

Ok lol but there arent any near me.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748

    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.