Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My One Week Update


tctwhite

Recommended Posts

tctwhite Apprentice

Today has been a week in my gluten-free life. Ive had more energy this week than I have in years. And the kids are back in school so Ive been getting up early. Yesterday morning I washed AND waxed my truck :blink: and then in the evening I bathed my dog. Which I paid for last night because I was sore, but it was a good kind of sore. Not the debilitating aches. Its obvious that my body is going to have to get used to all this moving around again. I was talking to DH last night and I told him that I feel better, and that I wasn't sure if it was all in my head or if I really am improving. I want to believe that its true progress and its not all in my head. I guess Ive been told "its all in your head" one too many times.

My headaches seem to be lessening in intensity, but not frequency. One thing that is bothering me though. I am absolutely ravenous. I was that way before but this has just taken it over the top. Could that be a gluten withdrawal? I don't feel the absolute need to go raid the bread box per se but I feel as though Im starving. That is not a good feeling, and the scale is starting to creep up, which really bothers me since I constantly struggle with weight. Just curious as to if others have experienced this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kittty Contributor

Today has been a week in my gluten-free life. Ive had more energy this week than I have in years. And the kids are back in school so Ive been getting up early. Yesterday morning I washed AND waxed my truck :blink: and then in the evening I bathed my dog. Which I paid for last night because I was sore, but it was a good kind of sore. Not the debilitating aches. Its obvious that my body is going to have to get used to all this moving around again. I was talking to DH last night and I told him that I feel better, and that I wasn't sure if it was all in my head or if I really am improving. I want to believe that its true progress and its not all in my head. I guess Ive been told "its all in your head" one too many times.

My headaches seem to be lessening in intensity, but not frequency. One thing that is bothering me though. I am absolutely ravenous. I was that way before but this has just taken it over the top. Could that be a gluten withdrawal? I don't feel the absolute need to go raid the bread box per se but I feel as though Im starving. That is not a good feeling, and the scale is starting to creep up, which really bothers me since I constantly struggle with weight. Just curious as to if others have experienced this.

I started feeling better after a week too, but not completely healed. It's been over four months, and I sometimes have setbacks, but the healing is still continuing. The first things to disappear were the D and the headaches, and the energy came back very quickly too. But the anxiety part, although reduced, is something I'm still struggling with. The brain fog comes and goes too, but less frequently.

As for the hungry feeling - I didn't have that. It could just be a mental thing, where you feel so deprived by not being able to eat the foods you're used to that your brain tells you to eat to overcome the deprival. I used to get that when I was trying to lose weight by cutting out certain foods. Not eating gluten will get easier though.

katrnc Newbie

I'm a week free too! I feel amazing! I have so much energy and I feel so light on the inside! I'm happier, calmer...my family even noticed a difference! I do get terrible cravings, and I get very hungry. I try to just suppress these and ride it out, they will go away I believe.

Well done! :lol: Go us! :)

BigSweaty Newbie

I am just over a week gluten-free..I can say the main thing that is constant is that I have an abundance of energy (or its normal energy that was not present due to the gluten intolerance). Also, I have seen a slight decrease in my belly (it was always "swollen".

Lost about 5 lbs. yet still eating when hungry(hunger has diminished, prob due to higher protein intake.

I dont crave wheat or wheat products and since I also cut back on sugar(to stop any yeast that may have been present), sweet tasting items seem much more sweet now.

GFinDC Veteran

HI,

Yes, I went through time of being extra hungry after going gluten-free. But it passed after a while and now I eat less than did before gluten-free.

tctwhite Apprentice

Well either last night I got CC'd or just had a bad night in general. I was blown up like a balloon looking pregnant, stomach pains, nausea, and just felt like I could throw up at any second.

Im still blowing up like a balloon after meals. And these are meals I have made with no one else around and have been oober careful of CC possibilities.

I was just looking at labs that were done on me at the beginning of this year and just about all my vitamin deficiency tests were either right at the lowest normal level or just below normal. The writing has been on the wall for a long time and no one has caught it......or cared enough to delve deeper into what was going on. So many pieces of the puzzle are fitting together, even if it is self diagnosing. No way am I going to do the gluten challenge to try the blood work, and I dang sure am not having another endo done. :rolleyes:

GFinDC Veteran

HI,

Being low on vitamins is a sign you may have damage to your villi preventing absorption. That's probably something doctors should always test people for, vitamin deficiencies. You are still very new to the gluten-free diet, so it is not surprising it hasn't cleared all your symptoms up yet. It may be a few months up to a year or more for you to get back to feeling right digestion wise. Healing can take some time.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KMMO320 Contributor

The longest I went gluten-free was 3 weeks and I felt A M A Z I N G!!!!

I fell off the wagon and have been feeling pretty crappy all the time again. I do not have Celiac, I am Gluten Intolerant. I just went 4 days and felt great again and then stupidly ate some stupid cake at work today. I am not in pain, just feel lousy. I cannot say why I do this to myself, its all mental, I know that.

My energy level the last few days have been so amazing. Tonight I feel like I am ready to pass out but the last few days I had to find ways to get myself to sleep because I had so much energy!

nvsmom Community Regular

That's great you are feeling better so soon! Congrats! I'm sorry to hear you were cc'd though; it's amazing how noticeable the symptoms are when we've been off gluten a while (I'm 2 months in).

I was extra hungry the first week or two, and now I find I'm less hungry. I can go more than 2hours without eating. LOL I used to get the shakes if I did that. In those first weeks, I did eat gluten-free snack foods a lot, and I still lost a couple pounds. Now, after 8 weeks, I'm down about 10-15 lbs. I don't know if it's the lack of inflammation, or just eating healthier foods, but it's working for me so I'm going with it! LOL

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.