Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Day 8...still Glutened


kittty

Recommended Posts

kittty Contributor

This is really frustrating. I was glutened last Tuesday and I'm still having symptoms today. They are also getting worse instead of better! I was up all night with stomach cramps, D and nausea, and still have lingering anxiety.

When I first went gluten-free I was also lactose intolerant, but overcame that after a month or so. Is it possible that being glutened has left me temporarily lactose intolerant again? That could explain the stomach issues, because I ate some cheese last night.

As for the anxiety, I called my doctor this morning and asked for a prescription of Xanax. It took the edge off a little bit when dealing with anxiety before (or at least it helped me sleep). I usually get the generic alprazolam. Does anyone know if this medication is really gluten free? I did a search on past posts on this board and there were people who strongly claimed it wasn't gluten free, and others who strongly claimed it was gluten free. I'm really confused!

I have a hard time overcoming the anxiety, because it sort of self-perpetuates and I can't shake those anxious feelings very well on my own. But, I don't want to take something for it only to continue being glutened and ending up in a loop.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

Xanax is listed at glutenfreedrugs.com as gluten-free in all forms but an't say about the generic. And here are the gluten-free ones listed for the generic -- Alprazolam (Geneva, Greenstone, Mylan, Novapharm, Sandoz) Alprazolam XR (Geneva, Greenstone, Mylan, Novapharm, Sandoz). Of course formulations can change, but the VAST majority of medications are gluten-free. It's really quite rare to find a prescription med that isn't.

If you're taking the generic, the only way to know for certain is to find out who makes it and call them. Even then you might get the CYA routine.

richard

kittty Contributor

Thanks for the response! It makes me feel better than this medication is gluten free.

However, I called the doctors office and they won't give me a refill. I need to make an appointment first, and the earliest they can get me in is next Thursday afternoon. :(

Oh well. I'll have to stick it out until then. Hopefully the glutening will be over by then anyway. I am feeling less consistently anxious at the moment, but it comes and goes.

  • 2 weeks later...
quincy Contributor

Thanks for the response! It makes me feel better than this medication is gluten free.

However, I called the doctors office and they won't give me a refill. I need to make an appointment first, and the earliest they can get me in is next Thursday afternoon. :(

Oh well. I'll have to stick it out until then. Hopefully the glutening will be over by then anyway. I am feeling less consistently anxious at the moment, but it comes and goes.

Klonapin is also a benzo drug like Xanax but it is more effective for longer term use. Xanax can cause very bad rebound anxiety so you wind up having to take it every 6 hours indefinitely or you will get awful rebound anxiety worse than the initial anxiety.

Xanax works for the night terrors and panic attacks, but you really don't want to use it more than an attack here and there. Klonapin allows you to take a dose and it will keep the anxiety awayall day pretty much. I am very sensitive to meds to .5 mgs really works for me. I take it at night before bed if I have to, but thankfully my most recent bout with anxeity depression passed with minimal klonapin use.

kittty Contributor

Klonapin is also a benzo drug like Xanax but it is more effective for longer term use. Xanax can cause very bad rebound anxiety so you wind up having to take it every 6 hours indefinitely or you will get awful rebound anxiety worse than the initial anxiety.

Xanax works for the night terrors and panic attacks, but you really don't want to use it more than an attack here and there. Klonapin allows you to take a dose and it will keep the anxiety awayall day pretty much. I am very sensitive to meds to .5 mgs really works for me. I take it at night before bed if I have to, but thankfully my most recent bout with anxeity depression passed with minimal klonapin use.

I haven't noticed any rebound anxiety with Xanax, probably because the dose is only 0.25, and I cut those in half. I'm also not on it long term - just when the anxiety is really bad.

Mateto Enthusiast

How about soy, or any nuts? Maybe it's not just lactose but casein as well?

I know exactly how you feel.

I'd suggest an elimination diet and see what happens. Of course I'm only new to this myself, so don't take my word as prescription!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,772
    • Most Online (within 30 mins)
      7,748

    Brandi J
    Newest Member
    Brandi J
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • trents
      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
    • Tammy Pedler
      As soon as I see gluten free I read the labels. I always find stuff that I cannot have on the products them selfs. Like spices, when the labels says  everything listed and then after like say garlic salt then the next thing is spices. When it says that that can contain wheat and other things I can’t have.. 
    • Scott Adams
      While hypoglycemia isn't a direct, classic symptom of celiac disease, it's something that some individuals with well-managed celiac disease report, and there may be a few plausible explanations for why the two could be connected. The most common theory involves continued damage to the gut lining or nutrient deficiencies (like chromium or magnesium) that can impair the body's ability to regulate blood sugar effectively, even after gluten is removed. Another possibility is delayed stomach emptying (gastroparesis) or issues with the hormones that manage blood sugar release, like glucagon. Since your doctors are puzzled, it may be worth discussing these specific mechanisms with a gastroenterologist or endocrinologist. You are certainly not alone in experiencing this puzzling complication, and it highlights how celiac disease can have long-term metabolic effects beyond the digestive tract.
    • trents
      Paracetamol, aka, acetaminophen (Tylenol) just does not do anything for me as far as pain relief. It does help with fevers, though.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.