Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Teens :d

shauniscrazy

Recommended Posts

shauniscrazy Explorer
shauniscrazy
Posted

I am new and would love tips. I would like to here what other people did when they first found out too.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Persei V. Enthusiast
Persei V.
Posted

I felt desperate. I was sick for a couple of weeks when I put the pieces together and went to a doctor, and my diet was only liquids, not to mention I was rail thin. How was I supposed to reach a healthy weight again, if I am not supposed to eat anything with wheat? My diet was basically cookies, bread and juice, back then.

So I sat down and started to list foods I liked and could eat. Then I went on trying new ones when I got better, and my food list has expanded greatly ever since. Processed foods around where I live hardly are gluten free, so I had to look before leap.

And that's about it. Thinking about what you can eat safely for the time being until well enough to try out other things seems to be the reasonable thing to do.

shauniscrazy Explorer
shauniscrazy
Posted
  • Author

I felt desperate. I was sick for a couple of weeks when I put the pieces together and went to a doctor, and my diet was only liquids, not to mention I was rail thin. How was I supposed to reach a healthy weight again, if I am not supposed to eat anything with wheat? My diet was basically cookies, bread and juice, back then.

So I sat down and started to list foods I liked and could eat. Then I went on trying new ones when I got better, and my food list has expanded greatly ever since. Processed foods around where I live hardly are gluten free, so I had to look before leap.

And that's about it. Thinking about what you can eat safely for the time being until well enough to try out other things seems to be the reasonable thing to do.

Thanks and i have been trying new foods. I have also found new ones to replace what i cant eat anymore. I cant really get anything at restaurants anymore :P. Sandwiches on gluten free bread is about the only thing i have been eating now though and that is getting old quick lol. What would you recommend?

Sage122 Explorer
Sage122
Posted

I completely feel you. This weekend, I had to be rushed to the ER cause I had an anaphylactic reaction to wheat and milk. Now I can't eat wheat (gluten) or milk (cheese, butter, ice cream, yogurt, rtc). It's hard but I HAVE to stick to it. The next time i accidentally consume it, I could die.

I've been scared to eat now too, after all had happened. But like the other user said, you just need to sit down and write what you CAN eat. I'm making cheese less Mexican pizza tonight (refried beans, salsa , corn) with a dairy free wheat free crust I found at whole foods. You can manage. Here are some ideas for you:

Chicken/fish/meat and veggie

Rice and meat

Tacos

Corn tortillas with stuff inside

What did you eat before you found out you had celiac??? You can pretty much eat the same things. Now you just have to substitue pasta and bread for Gluten free pasta and bread

shauniscrazy Explorer
shauniscrazy
Posted
  • Author

I completely feel you. This weekend, I had to be rushed to the ER cause I had an anaphylactic reaction to wheat and milk. Now I can't eat wheat (gluten) or milk (cheese, butter, ice cream, yogurt, rtc). It's hard but I HAVE to stick to it. The next time i accidentally consume it, I could die.

I've been scared to eat now too, after all had happened. But like the other user said, you just need to sit down and write what you CAN eat. I'm making cheese less Mexican pizza tonight (refried beans, salsa , corn) with a dairy free wheat free crust I found at whole foods. You can manage. Here are some ideas for you:

Chicken/fish/meat and veggie

Rice and meat

Tacos

Corn tortillas with stuff inside

What did you eat before you found out you had celiac??? You can pretty much eat the same things. Now you just have to substitue pasta and bread for Gluten free pasta and bread

Thanks for your reply and im sorry that happened to you. I have never had any really bad reactions, i just felt sick and really tired all the time. But i cant have wheat or dairy either now. I have found substitutes for most things like they have dairy free cheese which would go great with your pizza lol and i have been drinking rice milk instead.

  • 2 weeks later...
Guest Runningdream
Guest Runningdream
Posted

That seems hard. Have you gone to whole foods? They have tons of gluten free and dairy free stuff

shauniscrazy Explorer
shauniscrazy
Posted
  • Author

That seems hard. Have you gone to whole foods? They have tons of gluten free and dairy free stuff

I want to go to one but the closest is more than an hour away i believe. But ingles has a bunch of gluten free and dairy free. There is also an Earth Fare near here.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
    2. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    3. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in...
    4. SilkieFairy
      - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash...
    5. catnapt
      - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      learned I had a high PTH level in 2022 suspected to be due to low vit D got my vit D level up a bit but still have high PTH I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      By catnapt · Posted

      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.