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Anyone Have A Child Currently Doing A Gluten Challenge?


beebs

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beebs Enthusiast

My DS who is 6 will be starting next week. I am not looking forward to it at all, the though makes me feel ill. But I am not 100% sure that his problem was gluten? It seems as if it is the case, but I am not sure. And I need to be sure. Anyhow our GI wanted him to do a challenge later, when he had a few good years at school without illness. He missed a year out of his 2 years of pre school because he was so ill all the time. But we have found out that he has been sneaking gluten at school so the GI said lets get it over and done with.

Some of you may remember the awful time we had with him when he was young, he became so sick with Iron deficiency that he couldn't walk, couldn't play, had trouble breathing, couldn't eat and developed a heart murmur. Truly the scariest thing we have ever been through.


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    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • Scott Adams
      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
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