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Your Symptoms...


SwtRandi

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SwtRandi Rookie

Everyone's symptoms are different. What are your symptoms when you have gluten?! Do you have Celiac or Gluten Intolerance? I am just curious what others go through when exposed. Thank you :)


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1desperateladysaved Proficient

I have experienced some or all of the following:

fatigue

dizziness

foggy mind

temperary rash

swelling

bloating

extreme hunger

lack of appetite

nausea

weakness

anxiety

depression

diarrhea

I am not sure these all stem from celiac, because I think I actually might have allergies.

bartfull Rising Star

I'm STILL discovering symptoms I had but never realized they even WERE symptoms.

Psoriasis

Insomnia

Brainfog

Minor digestive issues

Edema in feet and ankles

Heart palpatations

Snoring

Asthma

Hair falling out

And probably some others I can't think of right now. With the exception of the asthma, every one of these symptoms is now GONE. But I included the asthma in the list because even though I still have it, I find that some of my "triggers" don't trigger it anymore. I never could go down the soap aisle in the grocery store before. Now, even though I don't like the smell, it doesn't trigger an attack anymore. And wood smoke used to be the worst. Now, it gets me a little wheezy, but not as bad as it used to.

Persei V. Enthusiast

I have gluten intolerance and my symptoms are:

bloating

cramps

diarrhea

nausea

discomfort

I've dealt with another intolerance before so I know what the red alerts are and cut the food making me sick before the thing scalates. At first I thought it was giardiasis (and was giardiasis, too) because the symptoms would go away as soon as I restricted my diet to liquids only i.e only juice. And then when I went back to my normal diet, very hungry, I would stuff my face in bread and cookies and fall sick again in the next day. It didn't take me a month to put the pieces together, gladly, and it never went really serious.

But here and then I get ill again because restaurants here aren't gluten-free and you have to make a bet everytime you order.

  • 2 weeks later...
SwtRandi Rookie

Thanks for responding!! I have been tested once for celiac and it came back negative. I still went on a gluten-free diet and felt somewhat better. Of course, I wasn't that educated and I am sure I ate alot that still had gluten ingredients. I then became pregnant and I could consume gluten with no issue! Yay!! Then I had my son 1/4/12. I still could consume gluten with no issues. Or so I thought. I am sure they were more hidden then I realized. I then got my gallbladder removed 6/26/12 because I was having many attacks and had tons of gallstones! I am assuming that was from gluten not digesting correctly. Is that something that could be true?! Now, I have been eating gluten and realize that I feel like crap. I think all these symptoms are gluten related. Let me know!

Fatique

Anxiety/Depression (I have been on Paxil/Celexa since 16 years old)

Bloating/Gas (silent, but deadly kind)

Constipation/Diarrhea (depends)

Nausea

Headaches/Aura Migraines (sometimes I can't see anything, but black floaters)

Arthritis Pain (all over my body- mainly legs and hands)

Hair Loss (not to the point of balding though)

Brain Fog/Lack of Concentration

Sound like it?! Should I get tested? Or just do it myself?

kittty Contributor

Are you eating gluten right now, or did you recently stop again? Not eating gluten can give you a negative blood test (which is what happened to me).

I had all of your symptoms, minus the constipation (only had the D).

Do you always have migraine pain with the auras? When I had auras they usually occurred with no migraine pain. It's odd to not have the pain with the auras, and I'm wondering if that's a gluten thing.

SwtRandi Rookie

Today is my #1 day of not eating gluten. I decided to go gluten-free again because I hate the way I feel. Just horrible!

No, I dont have the pain when I have the aura migraines. I will have a headache with no aura. Or aura with no pain. Weird right?!


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Aprilelayne Newbie

If you want to get officially tested you will need to continue eating gluten for now.

By removing the gluten or even going gluten-light, you may end up with a falst negative on your test. Its recommended you stay on gluten until after testing to ensure a more accurate (but not a perfect guarantee) result.

SwtRandi Rookie

Thanks for the reply! See this is where I struggle. I need to be gluten-free in order to feel good, but I don't think I can handle much more gluten to actually get tested. Should I just do gluten-free and 'self diagnose' or actually get tested? Ahhh!! Such a struggle :(

Making-A-Change Newbie

I have many of these symptoms as well. I had my blood test today but dont know if I should continue eating glutens until i hear from my doctor. Guess I should keep eating for awhile. I am almost positive that this is what I have to!!! I am of course, self diagnosing but I have no choice since no one else seems to know whats wrong....

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    • cristiana
      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
    • Charlie1946
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