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Will My Daughter Be Able To Have Children Of Her Own With This.disease.


for my daughter

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for my daughter Newbie

I have a daughter who just found out she has Celiac Disease. She is berg upset and is wanting to know if she will be able to have her own children one day, and if the baby will then carry the same Disease? I would love all the in put on this subject please and thank you so much.


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tarnalberry Community Regular

As long as she is following the gluten free diet, her fertility will not be impacted by having celiac.

It's genetic, so she can pass the genes on to her children, but that is not a guarantee they will develop celiac disease. It requires both the genes AND a trigger. And even if she does, it's not the end of the world to eat gluten free.

JillianLindsay Enthusiast

I have celiac disease and am currently 29 1/2 weeks pregnant and very healthy, and there are lots of other moms on the board :) your daughter may or may not pass it on, but she can certainly have healthy children in her future if she so desires. There is a leaning curve, but living gluten-free is fairly easy once you get used to it. Good luck to you and your daughter!

BitterGrad Newbie

I just posted on another thread but my sister and I have kids and went through pregnancies without being diagnosed! We weren't gluten free while pregnant because we didn't know. Having children with Celiac disease is completely possible. My sister has 3 kids and I have 2. In both our cases, only one child has celiac (both boys).

upwitht21 Rookie

I have 2 beautiful children and one on the way. They were both born before I was diagnosed and both have celiacs as well.

  • 2 weeks later...
SmileyKylie Rookie

We spent 3 years going thru infertility treatment before we discovered the problem was my celiac's disease. After 30 days 100% gluten free, we conceived our first child NATURALLY! Not only can she get pregnant, many of us find it fixes our infertility :)

  • 1 month later...
megsybeth Enthusiast

I have two wonderful boys I conceived before being diagnosed, though I believe I've had celiac since I was at least six. I think as long as she stays healthy and on the diet she should have every reason to expect to be able to conceive and have healthy babies. My first born is celiac, which is how I came to my diagnosis, but I am thinking about having a third and the thought of having another child with celiac doesn't really phase me. Maybe I'm too early in my diagnosis to have it hit me very hard but I don't find the diet to be that big of a deal.


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1desperateladysaved Proficient

I had one misccarriage and after that 5 healthy births when I had undiagnosed celiac. After that I had 12+ years of infertility. I think it is possible to have babies with celiac. You want healthy ones though, so follow the diet. I didn't know I had celiac at the time.

modiddly16 Enthusiast

I've been a celiac for 9 years and am 39 weeks pregnant today. As long as she follows her diet and stays healthy, she should have no problems having children. Also, there is no way of knowing if the child will have celiac...it's a trial and error process once they start eating solid foods.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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