Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help With Test Results?

coupdecoeur

Recommended Posts

coupdecoeur Newbie
coupdecoeur
Posted

Can anyone help me understand my test results? I was tested for Celiac a while back and the results came back negative, but I'm not sure if my total IgA level was tested or not (I've heard an IgA deficiency can cause a false negative). I'm still having symptoms that may or may not be related to gluten sensitivity - digestive issues, very irregular/no periods, extreme fatigue, brain fog, etc. - it seems to be somewhat better on a gluten-free diet, but it's hard to pin down. I don't have health insurance and so am a bit reluctant to see yet another doctor for yet another round of blood tests to figure out what, if anything, is wrong with me. Here's what I have:

Test: Anti-Human Tissue Transglutaminase IgA ELISA

Value: 0.2 U/ml

Reference range: < 10.3 U/ml

Help?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Takala Enthusiast
Takala
Posted

That is all they did ? :huh:

One test ? :o

GottaSki Mentor
GottaSki
Posted

Welcome!

Many doctors will only run the tTG IgA as an initial screening. Your's is negative, but that does not rule out Celiac Disease or Gluten Intolerance. Do you know if your doctor ran any Vitamin or Mineral blood tests? Not absorbing nutrients can indicate Celiac Disease.

Since you had some improvement while trying gluten-free, it would be a good idea remove ALL gluten from your diet for at least three months to monitor improvements. Living gluten free is often the best test.

Should you wish to be tested again, you'll need to be eating gluten for some time before testing and will want to get a Full Celiac Panel.

coupdecoeur Newbie
coupdecoeur
Posted
  • Author

Thank you for the help! It was a free celiac screening - none of the doctors I've seen have even suggested a celiac test, so I went on my own - hence the single test.

Since mostly cutting out gluten a couple weeks ago I have felt a bit better and have already had a period, so it seems at least worth pursuing. But I suspect I will want to see a doctor at some point in the near future - anyone have any recommendations in NYC, or have an idea of how much something like this costs out of pocket? Also, I work as a pastry cook and am literally breathing in flour all day - could this be causing problems too?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748
    PattyPagnanelli
    Newest Member
    PattyPagnanelli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Unexpected gluten exposure risk from cultivated mushrooms

      By Scott Adams · Posted

      I agree with @trents, but thank you for bringing this up here!
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Hi @trents, yes I've had my levels checked in Dec 2025 which revealed vit D deficiency. I considered eggs although they only contain about 45 IU vitamin D/egg. I need 2000 IU vitamin D for maintenance as per my doctor. Although now, I likely need way more than that to treat the deficiency. My doctor has yet to advise me on dosing for deficiency. I've also considered cod liver oil, although again, if it's processed in a facility that has gluten, especially on flour form, I worried to test it, even if they have protocols in place to mitigate cross-contamination with gluten.
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Welcome to celiac.com, @Jane02! Have you had your serum D levels checked for deficiency/sufficiency? What about cod liver oil? Egg yolks can also be a good source of vitamin D.
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Hello, I'm very discouraged. I've been trying to find a safe vitamin mineral supplement brand for months and am tired of testing one after the other and experiencing my typical 'glutening' reactions. I'm really feeling the nutritional deficiencies set in. I'm doing the best I can to get these nutrients from my food, although it's impossible for me to intake enough vitamin D as I can't have dairy and have insufficient sun exposure in the northern hemisphere. I've tried B Complex from Country Life (certified gluten-free) - horrible reaction. I've tried Metagenics vitamin D tab (certified glute-free) - bad reaction. I've tried liquid vitamin D Thorne and D Drops - reactions were mild since I tried a drop of a drop. I understand there could be other things I'm reacting to in my diet, although my diet/intake is pretty consistent with minimal variables so I do think it's something in these supplements. I understand I could be reacting to the active ingredient vitamin/mineral itself or even the filler ingredients. I tried the vitamin D drops since the only filler ingredient is coconut oil, in some brands, which I know I can tolerate really well on its own - I cook with coconut oil frequently and have no 'glutening' reactions at all. Perhaps I'm reacting to the vitamin D itself, although I eat fatty fish every few days, an entire fillet with no 'glutening' reactions, which contains anywhere between 400-600 IU per fillet so I shouldn't be sensitive to vitamin D. All this to say, I'm desperately looking for at least a safe vitamin D supplement. Does anyone know of a safe vitamin D supplement brand? I'd love to know if there are any supplement brands that have absolutely no gluten (especially in flour form) in their facilities. I've heard of Kirkman having no grains in their facility - I may try this brand. Has anyone reacted to this brand?   
    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.