Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should I Go To The Doctor To Be Tested (Please Help Me)


sweetcheeks

Recommended Posts

sweetcheeks Newbie

Hi everyone,

I have had problems for almost a year now my most common symptoms are bloating, really bad stomach pains like someone is stabbing me and punching me, headaches and fatigue. For most of this time I just thought I was being silly until I decided to go off wheat to help with my weight loss as it was suggested to me by my aunty because my little cousin has problems with wheat. A few weeks ago I had to visit my grandmother who is not able to eat wheat at all, and that


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

Get tested to the best of your ability, and when it is done, try going gluten free anyway to see what happens, it is no use making yourself miserable, when you can feel better. The doctor will need to run a complete celiac blood panel, to start.

Some people test negative no matter what. It happens. But they are healthier off of wheat and gluten anyway.

eatmeat4good Enthusiast

Yes it is possible for Celiac disease to be triggered by environmental factors or stressful events.

I think you are dealing with more than gluten intolerance.

I think you should get tested for Celiac.

Tell your Dr. you want a full Celiac Panel done and see what results.

Even if it is negative, you should go gluten free. Your body clearly does not like gluten.

Even the urinary symptoms you are having are consistent with Celiac.

I had the symptoms of bladder infection, painful urination, blood in urine, bladder spasms for most of my life. I was repeatedly tested for bladder infections and it was usually negative but they dosed me with antibiotics anyway. I was even put on a daily antibiotic to prevent the "infections". All the urinary symptoms went away as soon as I went gluten free. No more symptoms at all...ever...unless I get gluten.

It isn't difficult and it doesn't have to be expensive to eat gluten free. You don't have to eat all the gluten free products they make. They are only made to replace the wheaty gluteny products we all grew up on. But you weren't raised on wheat so you just need to go back to eating what you were raised on. What did you eat growing up?

I eat meat, chicken, vegetables, fruits, nuts and good fats...with an occasional dose of chocolate for good measure.

It feels really good not to be sick all the time.

You shouldn't be scared of your Dr. If he doesn't respect you as a partner in your own treatment then you need another Dr. If you can't get one, and you can't get tested, then you should just assume you are Celiac. Your family history screams Celiac and your body is screaming Celiac too. You don't need a Dr. prescription to eat gluten free. It isn't scary or expensive, just a little more time consuming having to do more cooking and being careful of cross contamination which if you are Celiac you will have to learn to pay close attention to.

Sorry you have been feeling so bad. My son is Celiac too. His description of stomach pain from gluten is like having shards of glass in his stomach. Your stomach pain sounds much the same. That, along with all of your other symptoms means that your body really doesn't like gluten at all.

If you don't want to test, you don't have to. You can just go gluten free. The only danger in that is that sometimes when Celiacs heal from going gluten free when they don't know for certain they are Celiac, they can sometimes forget that they thought they were Celiac and they go back to eating gluten because they find it no longer bothers them. This is dangerous for a Celiac. Sometimes the antibodies die down and the body no longer reacts to gluten as quickly as it once did. However, the damage is still being done and you can end up with secondary auto-immune diseases and worse if you truly are Celiac and you don't stay gluten free.

Some people need to know for sure in order to stay gluten free.

I hope your Dr. will listen to you when you ask for the tests, but if not, you know you have the option of finding another Dr. or just going gluten free.

I hope you feel better soon.

sweetcheeks Newbie

Yes it is possible for Celiac disease to be triggered by environmental factors or stressful events.

I think you are dealing with more than gluten intolerance.

I think you should get tested for Celiac.

Tell your Dr. you want a full Celiac Panel done and see what results.

Even if it is negative, you should go gluten free. Your body clearly does not like gluten.

Even the urinary symptoms you are having are consistent with Celiac.

I had the symptoms of bladder infection, painful urination, blood in urine, bladder spasms for most of my life. I was repeatedly tested for bladder infections and it was usually negative but they dosed me with antibiotics anyway. I was even put on a daily antibiotic to prevent the "infections". All the urinary symptoms went away as soon as I went gluten free. No more symptoms at all...ever...unless I get gluten.

It isn't difficult and it doesn't have to be expensive to eat gluten free. You don't have to eat all the gluten free products they make. They are only made to replace the wheaty gluteny products we all grew up on. But you weren't raised on wheat so you just need to go back to eating what you were raised on. What did you eat growing up?

I eat meat, chicken, vegetables, fruits, nuts and good fats...with an occasional dose of chocolate for good measure.

It feels really good not to be sick all the time.

You shouldn't be scared of your Dr. If he doesn't respect you as a partner in your own treatment then you need another Dr. If you can't get one, and you can't get tested, then you should just assume you are Celiac. Your family history screams Celiac and your body is screaming Celiac too. You don't need a Dr. prescription to eat gluten free. It isn't scary or expensive, just a little more time consuming having to do more cooking and being careful of cross contamination which if you are Celiac you will have to learn to pay close attention to.

Sorry you have been feeling so bad. My son is Celiac too. His description of stomach pain from gluten is like having shards of glass in his stomach. Your stomach pain sounds much the same. That, along with all of your other symptoms means that your body really doesn't like gluten at all.

If you don't want to test, you don't have to. You can just go gluten free. The only danger in that is that sometimes when Celiacs heal from going gluten free when they don't know for certain they are Celiac, they can sometimes forget that they thought they were Celiac and they go back to eating gluten because they find it no longer bothers them. This is dangerous for a Celiac. Sometimes the antibodies die down and the body no longer reacts to gluten as quickly as it once did. However, the damage is still being done and you can end up with secondary auto-immune diseases and worse if you truly are Celiac and you don't stay gluten free.

Some people need to know for sure in order to stay gluten free.

I hope your Dr. will listen to you when you ask for the tests, but if not, you know you have the option of finding another Dr. or just going gluten free.

I hope you feel better soon.

Thank you both so much for your support I will go speak to my doctor soon. When I was younger I wasn't allowed much sugar my diet was pretty much fruit, salads, vegetables, meat of all kinds, mostly school lunches was a sanwhich and when I was able I use to pay for a chocolate brownie. My Nan had me living on natural foods from the health food shops.

ravenwoodglass Mentor

Yes you should be tested but you need to be eating a regular gluten diet. If you are already gluten light or gluten free your tests will be a false negative.

sweetcheeks Newbie

Yes you should be tested but you need to be eating a regular gluten diet. If you are already gluten light or gluten free your tests will be a false negative.

Well I have not gone completely gluten free as I havn't done the shopping for next week, I will call the doctor tomorrow to get in on monday so I will spend the weekend eating gluten and continue eating it untill I get tested. Not looking forward to it, I look like a pregnant women from the bloating.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    2. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    4. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    5. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,324
    • Most Online (within 30 mins)
      7,748

    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.