Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Now I'm Getting Frustrated

cdford

By cdford
in Related Issues & Disorders

Recommended Posts

cdford Contributor
cdford
Posted

My husband has surgery scheduled for this morning. I have to have him at the hospital around 7:30. It is now 4am and I am still not sleeping. I don't have the luxury of falling asleep at 5 and resting until noon today. This day I have to have my brain and body working yet I cannot fall asleep. I lay down and my legs ache, my brain runs from one thing to another, and I toss. All three cats are giving me the evil eye because I can't be still. At least my husband is snoring away...but he will get to sleep all day!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest nini
Guest nini
Posted

Ahh Donna, sorry to hear you had a rough nite. I had one of those nite before last... not fun. Good luck with hubby's surgery.

It's funny cos you were on my mind when I got up this morning... anyway. Hope you can get some rest soon.

nettiebeads Apprentice
nettiebeads
Posted

I know it won't help you now, but on nights that my brain won't shut down, I take an OTC (gluten-free of course) antihistimine. Cheap, non-habit forming and works. Dr. Gott (he has a newspaper column) recommends it.

Mjohnson73 Apprentice
Mjohnson73
Posted

I know what you are going through....I had a night like that the other night...where I just could not sleep.... I didn't have any of my clonazapam and that is what helps me sleep... so when I couldn't sleep I just tossed and turned for a while and then finally fell asleep at around 4 am...and had to get up at 8...ick....

Hope everything goes well with your husbands surgery...

--Maya

jenvan Collaborator
jenvan
Posted

donna-will pray for your husband's surgery. am trying not to put my head down on my desk at work right now. our power was off, and b/c i am such a bad sleeper to begin with (when everything is normal) i of course slept only a few moments. hate that feeling. hope you can be energized for the day and rest thereafter....

cdford Contributor
cdford
Posted
  • Author

Thanks for the support and encouragement. I knew you guys had been there and I was so frustrated that I had to vent somewhere. The evil eyes from that cats were the last straw. If I had not been so tired it would have been funny. Sorry to take it out on you!

Charles surgery went well. It took about four hours which is long for any surgery nowadays. They straightened his nose, took out his tonsils and uvula, and trimmed up the soft tissue at the back of his throat. A tonsillectomy at age 50 is a big deal. Hopefully he will be able to breathe somewhat normally again when this is all over. His sleep apnea was really bad. He is in a lot of pain and spent the night in ICU. When I called a little while ago the doctor had still not come in to determine whether they will let him go home today. I am supposed to call back in a little while.

I made it through the day amazingly. It had to be the grace of God. Of course I was exhausted and in pain myself by the time someone got me home last night, but a pain pill and a good night's sleep helped that. (Well, as good a night's sleep as I get anyway.)

Thank you again for thinking of me. I am off to the hospital again. Talk with you soon.

jenvan Collaborator
jenvan
Posted

Donna-

Adult tonsillectemies are awful! I had mine out in college--let's just say I had tears running down my face everytime I had to try to eat a popsicle so I could take my pain meds. I feel for him!! I guess he must have had a really hard time since they took his uvula too. I remember mine was so swollen from the surgery that for 2 weeks I had to sleep sitting up b/c I kept choking on it :blink: ! I will definitely say a prayer of quick recovery for him today...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,959
    • Most Online (within 30 mins)
      7,748
    jenny44
    Newest Member
    jenny44
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does anyone here also have Afib

      By Scott Adams · Posted

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.