Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Colonoscopy - What To Ask And What To Expect


Pegleg84

Recommended Posts

Pegleg84 Collaborator

Hello all

so, I finally saw my GP today to get a referral to a gastroenterologist. I've been gluten free for 3.5 years, and still haven't seen a GI!

I've been having a lot of stomach pain and (likely) non-gluten related symptoms lately, so want to see if something else is wrong, or if I need to cut more out of my diet. (I have told my Dr flat-out that I'm not willing to do a gluten challenge for an endoscopy/official diagnosis. As far as my genetics and symptoms say, I have Celiac.)

Anyway, she is sending me for a colonoscopy first, then will see a GI (in hopefully not too many months). I have a consultation appointment next week, where I'm sure I'll get the low-down on the whole procedure.

For you professionals, any advice on what to ask at the consultation? And what to prepare for with the procedure?

This is necessary, but I'm not exactly excited, so the more info the better.

Thanks!

Peg


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

GI docs do the colonoscopy so I think you would see one before the procedure. While they are doing the colonoscopy, they can do an endo, too. Get both ends at once.

ravenwoodglass Mentor

I agree get both procedures done at the same time. They won't be able to diagnose celiac if you have been gluten free for years but they can rule out other problems like ulcers and make sure your villi are fully healed and that you are not dealing with refractory celiac.

Pegleg84 Collaborator

Thanks guys

I'll be sure to ask about getting an endoscopy done as well. Get all the pain over at once.

(part of the reason why i've never been officially diagnosed was not wanting to suffer any longer to wait and get a biopsy done. Also, having things down my throat/up my arse not exactly on my to-do list...)

love2travel Mentor

The procedures themselves are easy peasy. You are given a memory-erasing drug so it is as though you are knocked out the entire time. The colonoscopy prep isn't the most fun thing in the world (you drink a lot of liquid in a certain timeframe that causes serious diarrhea) but it is really not that bad. I had zero pain before, during or after both procedures. The last thing I remember is talking to my surgeon about cooking then suddenly I was in the recovery room, with my blurry husband holding my hand. My gut felt ever-so-slightly odd for two days but it was negligible. Two hours after the procedure I ate a full dinner with no problems.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,810
    • Most Online (within 30 mins)
      7,748

    rdwells
    Newest Member
    rdwells
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.