Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dehydration


Jodster72

Recommended Posts

Jodster72 Rookie

hello and good morning all:)

Just wondering if anyone as dealt with this along their journey.

Because I am obviously malabsorbing everything I have started to get dehydrated the last week. I first noticed I was very pasty in my mouth abd white tongue despite how much water I am drinking as well as my bottom eyelids are white rather than red/pink. I'm thinking this could be the reason that my heart rate as been jumping over 100 this week as well. Can anyone suggest any vitamins I could try while I wait to see doctor in a few days. They must also be sugar free as well. Any ideas would be appreciated xo

Have a great morning xo


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

I also had dehydration for quite some time, hon but I also have a hubs who pestered me to drink water all day long. When I was very dehydrated pre-DX from (I'll just say it) vomiting and the Big D, he had me drinking 16 oz. glasses of water with a tsp. of salt/a TBLS. of sugar in it to balance my electrolytes. It was that --or go to the ER for a bag of saline again. It helped immensely.

That said, I drink about 68-72 ounces of water a day now and I found that being hydrated helps with muscle and tissue repair as well as a keeping a clear head, smooth -running bowels, and better digestion.

My heart palps stopped, the "funky tongue" cleared up, my kidneys function better (the doc loved my last lab test results) and I push water on everyone now.

I say: Drink up! It may take some time for all these issues to resolve. Hang in there.

1desperateladysaved Proficient

Can you do coconut? I was having dehydration problems with a recent cold. My tongue was cleaving to the roof of my mouth. I believe my red eyes might have been assoicated with the dehydration. Water just seemed to be going straight through. I tried coconut water. In a couple of hours my mouth was moistened again. It seemed to stick better than water.

I look for a brand that has only Coconut water in it. Young coconut water actually tastes good. I read that Coconut water can be a good sport drink and that is what made me think of it. Regular sport drinks aren't hydrating and are too much sugar for me.

It advertised that it has natural potassium in it. My only problem is that I bought out all 4 bottles at the local store and need to go further for more. One store has 4 different brands of coconut water for me to choose from!

Diana

mommida Enthusiast

I think you are actually having symptoms of anemia (low iron).

Please see your doctor. You should start with tests to see what your iron level is and where it needs to be. There is a serious problem of taking too much iron called toxicity.

Symptoms of iron defiency... paleness (can be noticed first in areas known to be pink, like gums of the mouth), heart palpatations, weakness, constipation, and the list goes on.

IrishHeart Veteran

I think you are actually having symptoms of anemia (low iron).

Please see your doctor. You should start with tests to see what your iron level is and where it needs to be. There is a serious problem of taking too much iron called toxicity.

Symptoms of iron defiency... paleness (can be noticed first in areas known to be pink, like gums of the mouth), heart palpatations, weakness, constipation, and the list goes on.

Brilliant advice!!!!

I had B-12, iron and folate anemias--and yes, they all can cause those symptoms as well.

And I echo the thought-do not start supplementing until your levels are checked.

Nice catch, mommida :)

gfreejz Rookie

I have dehydration problems as well and would like to second irishheart's suggestion with the salt sugar water. It has helped myself alot. My recipe is a shake of salt and one teaspoon sugar to about 20 ounces of filtered water. Also I'd like to add that I don't consume any other added salt or sugar on my diet. I also no longer have any blood pressure or blood sugar problems to worry about so I'm not worried about adding in more salt or sugar.( I still check my BP daily ) Too me this water reminds me of milk, so it shouldnt taste bad or weird, if it does add more water. I also gave up caffeine recently because coffee was simulating my bowels alot, and it seems that I would have to pee before I even set my cup down. Now I have to get up in the middle of the night to pee, for the first time ever! The salt/sugar makes the water stick. Oh and since I'm taking b12 now I never even think about caffine . I'm almost two years gluten-free now and I think I've almost figured it all out with the help of this board and a few posters. I'm Med free too! ( only vitamins and ptobiotics ) Two years ago I was on a high dose of hypertension meds that barely worked, asthma inhailer that didn't help my lung function, Ppi's that didn't help and I'm only 31!

Also, I am somewhat underweight with very low fat from the years of malabsorbson and the salt sugar water makes my obnoxiously large veins on my arms dissappear.

Gluten free, dairy/casien free, msg free, caffine free, alcohol free, headache free, grumpy free ;)

IrishHeart Veteran

I'm almost two years gluten-free now and I think I've almost figured it all out with the help of this board and a few posters. I'm Med free too! ( only vitamins and ptobiotics ) Two years ago I was on a high dose of hypertension meds that barely worked, asthma inhailer that didn't help my lung function, Ppi's that didn't help and I'm only 31!

Also, I am somewhat underweight with very low fat from the years of malabsorbson and the salt sugar water makes my obnoxiously large veins on my arms dissappear.

Gluten free, dairy/casien free, msg free, caffine free, alcohol free, headache free, grumpy free ;)

"Grumpy-free" :D ...Love this.

Congrats on your rebound to good health!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

More vegetables, you need the fiber in them to hold the moisture in your gut. Put the stuff in a blender for a smoothie with a piece of fruit, if you can't stand the thought of just eating it.

Other than that, I agree w/ the above suggestions that you sound like you're also a bit anemic. At one point I was sucking down blackstrap molasses every day like manna as a source of iron, besides gluten free B complex vitamins/mineral supplements. If you can't do the home made electrolyte sugar/salt in water, (normal summer temps here hit a high of 100

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      nothing has changed

    2. - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

    4. - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

    5. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.