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If It's Not Celiac, What Is It?

KC in KC

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KC in KC Newbie
KC in KC
Posted

Well, my celiac panel came back negative for celiac. I've asked them to mail me the actual lab results, so I don't know yet exactly what was found.

Endoscopy showed "moderate inflammation". I've got no idea just what that means.

Currently undergoing antibiotics for H.pylori, and then I'm due for a repeat endoscopy.

And just for fun, this has pushed me into finally getting my daughter's frequent tummyaches investigated. Her first visit is this afternoon.

I'm really fighting the urge to go ahead an go gluten-free as a trial, but I'm afraid of screwing up the test results. So here I sit. :(

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mushroom Proficient
mushroom
Posted

I guess you are stuck until your repeat endoscopy to see if the inflammation has cleared up, or not!!

kareng Grand Master
kareng
Posted

Get a copy of the pathology report, too. This is the report of the biopsy specimens he took during the endoscopy. If he didn't take any biopsies, he can't say you don't have Celiac. Also, if he only took 2, he might have missed the actual damage. It is usually very hard to see with the scope.

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