Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Think I Am Worrying Far To Much

nickhills1

Recommended Posts

nickhills1 Rookie
nickhills1
Posted

Hi everyone.

First time posting on this board, and had a couple of thoughts that i wanted peoples opinions on.

I am 30, and about 6 months ago, i started getting occasional severe stomach pains (as though i had really bad trapped wind). It was so painful that i wanted to go to hospital and get a needle popped into my stomach to release the pressure. It was also putting so much pressure on my stomach that it was made me physically sick.

After a few months of this occasional occurence, i worked out that it happened just after i had eaten bread. The strange thing is that it doesnt appear to be consistent, in that i sometimes eat bread and i am fine, and sometimes, i am doubled up in pain for about 3 hours.

I am now living in Paris, and went to the doctor today, who told me to try avoiding Gluten for a couple of weeks, and then go back and see him again. Does anyone think this is Celiac, or do bread and me just not get on?

Many thanks for your thoughts..

Nick

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted

Could be a possibility of celiac so you should get tested. Even if you do not have it, it is still worth being tested for because it can be very serious and deadly if it goes untreated.

Some people get no symptoms at all and there are over 200 symptoms associated with it so you can't tell from the symptoms. You could maybe only be getting symptoms with certain amounts. I don't think it is just bread because it is obvious it is something in the bread causing it-and that is found in many other products.

I would not go gluten free until you are tested though because that can interfere with the results. You need to be eating equal to 2-3 pieces of bread a day for 3 months before testing.

If you do not want to be tested but just eliminate all gluten to see how you feel that's fine but most people do not want to make that change in diet unless they need to.

nickhills1 Rookie
nickhills1
Posted
  • Author

Kaiti..

Thanks for the advice.. When you say that i need to be eating the equivalent to 2-3 pieces of bread per day for 3 months prior to the test, do you mean that i actually need to eat bread, or a substitue?

Its just that i dont think i could put up with the pain of the bloating etc for 3 months..

I am also worried about how i go about getting these tests done in France? I dont know how big this is over here..

But i agree that i should be tested, as i have been doing some research this afternoon into having a Gluten free diet.. Man Alive.. How tough is that!!!! I have suddenly realised how lucky i am/was..

Nick

Merika Contributor
Merika
Posted

Nick,

It doesn't need to be bread. could be pasta, beer, graham crackers, just the equivalent of several slices of bread a day. I don't know about France, but I hear that celiac is better known in Europe than the US, and so I would think a test would be available.

Funny, French bread used to make me feel real bloated, but I was ok with sourdough and other forms (or so I used to think...).

Hth,

Merika

Jnkmnky Collaborator
Jnkmnky
Posted
Nick,

It doesn't need to be bread. could be pasta, beer, graham crackers, just the equivalent of several slices of bread a day. I don't know about France, but I hear that celiac is better known in Europe than the US, and so I would think a test would be available.

<{POST_SNAPBACK}>

Be careful with the BEER, or you'll find yourself on another kind of self-help website in no time! :lol:

nickhills1 Rookie
nickhills1
Posted
  • Author

Great..

Thanks for that Merika.. I have another doctors appointment in 2 weeks time. I think that i will mention this, and ask him about getting tested. Although, he suggested that i avoid gluten for the next 2 weeks, and now i am getting advice to keep having gluten, for the test..

Hmm.. This isnt easy is it?

;-)

Nick

aikiducky Apprentice
aikiducky
Posted

I don't think your doctor's suggestion is all that crazy... He's probably thinking, try gluten free for a couple weeks, see if you feel any better, go back on gluten, see if you feel worse, and then do the test.

At least it sounds like he's taking it seriously!

Pauliina

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


VydorScope Proficient
VydorScope
Posted

His suggestion is not crazy, but you could speed upthe proccess with a simple blood test now while your still eating gluten, I suggest you get the test right away and the you will know.

It could also be a wheat or egg allergy.

But i am not a doctor...so take that with a grain of sugar :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jay Heying
      - Jay Heying replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Celiac friendly probiotics

      Thank you so much for the advice!! I will try to make a batch this weekend. Have a great weekend,
    2. Florence Lillian
      - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Celiac friendly probiotics

      In response to your questions regarding probiotics. I have had Celiac for 40 years. Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything. I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference. After reading about people with Crones, IBS, etc, who made...
    3. slkrav
      - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    4. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Ferritin levels. And see what your hemoglobin looks like too, that will tell you if you are anemic? You can have 'low normal' levels that will not be flagged by blood tests. I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial...
    5. Mari
      - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

      Hi Katht - I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,885
    • Most Online (within 30 mins)
      7,748
    KateFC
    Newest Member
    KateFC
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jay Heying
      Celiac friendly probiotics

      By Jay Heying · Posted

      Thank you so much for the advice!! I will try to make a batch this weekend. Have a great weekend,
    • Florence Lillian
      Celiac friendly probiotics

      By Florence Lillian · Posted

      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Gluten free beer ?

      By slkrav · Posted

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ibuprofen

      By cristiana · Posted

      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      New here

      By Mari · Posted

      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.