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joolsjewels

Depression

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Dissappointing Day: i went to my fibro dr today and told her about the last 6 weeks. She looked right at me and said, "Well, I am sorry that things have been going so badly, but there is nothing else I can do for you. Just continue looking for the medical causes."!!!!!?????? No advice, no general direction, just continue with what you are doing. Thanks! I started crying in the office as i was so frustrated ( i rarely cry in front of others).

The "good" news is that i have arthritis in my right foot too!

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How frustrating.

It seems once again the patient has to do all the hard work. I am so sorry you didn't get more help.

Sending hugs

Mw


- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!

- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol

- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.

- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.

- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)

- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.

It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein hidsmile2t.gif

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are you still taking pristiq and is it working


Judy in Southern CA

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joolsjewels - i saw you were online earlier today, and although you didn't bump up this post, i wondered how you are doing.

have you had another test run to see if you are still producing antibodies? there's an RN who has celiac, who has become a specialist in the topic, speaks internationally, consults, etc. i think she really knows her stuff. she has people go gluten & dairy free, because of what the person earlier said - the casein (milk protein) and gluten strands can look alike to the body. here's her website: http://glutenfreern.com/ take a look at the link mid-way down the front page under "frequent misdiagnoses" and then at her link under fibromyalgia. reading through your post, i wonder if you are still getting exposed to gluten. she does do phone consultations - i think she knows more about this topic than any doctor i've encountered. after i talked to her, i had my primary care doc order the blood tests for me. he didn't think i had it. he didn't think my daughter had it (his words were that all her stomach problems were in her head.) we appreciate that very much. :angry: however after the daughter being gluten-free for 4 weeks, she's a world better, both mentally and physically.

you can't take this with other antidepressants, but 5HTP is something I take that helps your brain produce melatonin to sleep and serotonin for a good mood. but DON'T take it while you're taking another anti-depressant. you don't want serotonin overload. i'd encourage you to do some research into it. sounds to me like you might be still having antibodies causing all these other symptoms, like the fibromyalgia. If a person's intestine isn't absorbing tryptophans, they don't sleep well and might feel anxious or depressed. those are all linked together. i took paxil for a few months (bully boss was making me insane) and my son (college student) took celexa for anxiety attacks and depression. both of us went off of them and found the 5HTP helped more than anything else - and the only side effect is that it can make you sleepy. i take just one a night - i buy mine from pureformulas.com and get the one made by Thorne Research Labs (cuz they are the researchers).

but again, please do some research and if you want to take it, do it safely. i just didn't want to ignore your post because so much there sounds like you're still having antibodies, your gut is may be not absorbing nutrients and you may be malnourished.


Childhood: canker sores, zillions of cavities, and multiple dental enamel defects (not decay). Acne began at age 9, became cystic acne at 15ish, was bad til early 20's, occasional break-outs now only if i eat certain foods.

1968 - allergic to bacon (arm rashes) & orange juice; sensitive to soy

1970s - lots of digestive problems, allergy to citrus, citric acid, cinnamon, lactose intolerant, rosacea from foods

1980s - allergic to oregano, basil, thyme, pork, strawberries, paprika, smokehouse-type seasonings, peppers

1990s - discovered digestive enzymes (YAY!) and my stomach issues resolved by 90%

2012 - diagnosed with celiac via blood tests (tTG) and genes (HLA DQA1*0201: DQB1*0202)

After learning about celiac, it is obvious my mom had it (ulcerative colitis), my brother has it, and my 3 young adult children have it (2 have digestive problems + anxiety; one has DH). we all went gluten-free november 2012.

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