Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Work Results

KikiB

Recommended Posts

KikiB Explorer
KikiB
Posted

Hi! Looks like a lot of blood work coming back today. Dr. said it's a 90% chance I don't have Celiac, but she does recommend having the endoscopy to verify based on my reaction to gluten. I wonder if it's because the Mono I got in April triggered it and it's too new in my body to show up?

IGA <11

IGG <14

IGM <12

Each one of these is one number short of "indeterminate" according to the sheet she gave me.

I have an appointment with the Gastroenterologist on Oct 23rd for a consultation. I know I have to start eating gluten again, but I'm scared. (What a baby, right?) How long before the endoscopy should I be eating gluten? It's not even scheduled yet, but should I just bite the bullet and eat it?

Sigh.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


beachbirdie Contributor
beachbirdie
Posted

Hi! Looks like a lot of blood work coming back today. Dr. said it's a 90% chance I don't have Celiac, but she does recommend having the endoscopy to verify based on my reaction to gluten. I wonder if it's because the Mono I got in April triggered it and it's too new in my body to show up?

IGA <11

IGG <14

IGM <12

Each one of these is one number short of "indeterminate" according to the sheet she gave me.

I have an appointment with the Gastroenterologist on Oct 23rd for a consultation. I know I have to start eating gluten again, but I'm scared. (What a baby, right?) How long before the endoscopy should I be eating gluten? It's not even scheduled yet, but should I just bite the bullet and eat it?

Sigh.

The tests, as you list them, are not celiac specific tests. Do you have a sheet with the full names?

Not a bad thing that the doc will do an endoscopy even with unremarkable blood work. That is highly unusual! Glad they are willing to look, sorry you have to be eating gluten.

KikiB Explorer
KikiB
Posted
  • Author

The tests, as you list them, are not celiac specific tests. Do you have a sheet with the full names?

Not a bad thing that the doc will do an endoscopy even with unremarkable blood work. That is highly unusual! Glad they are willing to look, sorry you have to be eating gluten.

I may have used the wrong references. I have 3 pages of blood test results (she tested me for lots of things) -- what names should I be looking for?

GottaSki Mentor
GottaSki
Posted

You should continue to eat gluten until the endoscopy is complete. Aside from the endo, your GI may want to order more specific blood work and any time gluten free can cause these tests to be less accurate. I know it is frustrating and counter-intuitive but for the best possible results from the available tests, you need to keep eating gluten. If you haven't started eating gluten, I suggest a grilled cheese or bowl of pasta for snack or dinner TODAY!

Like BB said the numbers you posted do not relate to specific celiac blood tests. Do you have written or electronic results you can post here so we can help interpret the results?

KikiB Explorer
KikiB
Posted
  • Author

You should continue to eat gluten until the endoscopy is complete. Aside from the endo, your GI may want to order more specific blood work and any time gluten free can cause these tests to be less accurate. I know it is frustrating and counter-intuitive but for the best possible results from the available tests, you need to keep eating gluten. If you haven't started eating gluten, I suggest a grilled cheese or bowl of pasta for snack or dinner TODAY!

Like BB said the numbers you posted do not relate to specific celiac blood tests. Do you have written or electronic results you can post here so we can help interpret the results?

Thanks for making me smile, Lisa! You are too cute suggesting a grilled cheese.

I have 3 pages of test results, I guess I picked wrong -- I wouldn't know which results to give you. :(

nora-n Rookie
nora-n
Posted

IgA IgG IgM ate classes of antibodies, just general tests.

Now the celiac tests are like deaminated gliadin IgG or tissue transglutaminase IgA or endomysium Ab

Also vitamin D is often lowish with celiac, and iron/hemoglobin or ferritin too.

GottaSki Mentor
GottaSki
Posted

You are looking for keywords like tTG, Gliadin, Endomysial, IgA and IgG -- below are the names of the tests in the celiac panel, many labs do use slightly different names and abbreviations.

Total Serum IgA

Tissue Transglutaminase IgA and IgG

Gliadin IgA and IgG

Endomysial Antibody IgA

Deamidated Gliadin Peptide IgA and IgG

Also any tests that indicate you are low in nutrients.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KikiB Explorer
KikiB
Posted
  • Author

You are looking for keywords like tTG, Gliadin, Endomysial, IgA and IgG -- below are the names of the tests in the celiac panel, many labs do use slightly different names and abbreviations.

Total Serum IgA

Tissue Transglutaminase IgA and IgG

Gliadin IgA and IgG

Endomysial Antibody IgA

Deamidated Gliadin Peptide IgA and IgG

Also any tests that indicate you are low in nutrients.

I've been low on D, B12 and Iron for almost 4 years that I know of. I take a prescription B12 nasal spray, and supplements for D and Iron.

Tissue Transglutaminase AB, IGA <1

Tissue Transglutaminase AB, IGG <1

Gliadin (Deamidated) AB (IGG) 2

Thanks for your help!

GottaSki Mentor
GottaSki
Posted

It is great that your doc has recommended an endo even with negative celiac blood tests. Given your reaction to gluten and nutrient deficiency it will be good to rule out intestinal damage.

Good Luck :)

KikiB Explorer
KikiB
Posted
  • Author

It is great that your doc has recommended an endo even with negative celiac blood tests. Given your reaction to gluten and nutrient deficiency it will be good to rule out intestinal damage.

Good Luck :)

I had a burger last night with the bun, and the muscle weakness came back within an hour and still bothering me today. Just whining. I wish I could get this over with. :)

  • 1 month later...
KikiB Explorer
KikiB
Posted
  • Author

Here are the new blood test results:

IgA 223 (reference range is 81-463)

Transglutaminase IgG Result <3.0 (less than 6.0 is negative)

Transglutaminase IgA Result <3.0 (less than 4.0 is negative)

Endomysial Ab (IgA) only says Negative. No reference numbers.

Gliadin (Deamidated) IgG Result 4 Reference Range <20 Antibody Not Detected

Gliadin (Deamidated) IgA Result 4 Reference Range <20 Antibody Not Detected

So it looks like they are all negative. Still waiting on the Endoscopy results.

I know mono can trigger Celiac Disease -- but can it/would it just trigger a gluten intolerance? That seems so odd to me.

jwblue Apprentice
jwblue
Posted

What the heck is the point of a blood test if the doctor still recommends an endo?

Waste of money.

GottaSki Mentor
GottaSki
Posted

What the heck is the point of a blood test if the doctor still recommends an endo?

Waste of money.

Celiac Disease can be very difficult to diagnose. Until we have alternatives, we must utilize the mechanisms currently available - this often necessitates using:

Blood Work

Endoscopic Pathology

Dietary Response

Genetic Testing

IMO the waste occurs when doctors don't suspect or test for Celiac Disease - the years of health I and others have lost to misdiagnosis and undiagnosed Celiac are far more costly than these tests.

GottaSki Mentor
GottaSki
Posted

So it looks like they are all negative. Still waiting on the Endoscopy results.

I know mono can trigger Celiac Disease -- but can it/would it just trigger a gluten intolerance? That seems so odd to me.

They are negative - technically a very good thing - but frustrating none the less.

The unknown factors in Celiac Disease and NCGI are incredibly frustrating. So much remains unknown about celiac disease and next to nothing has been studied thoroughly in NCGI.

I remain hopeful your endo pathology will provide a firm diagnosis, but if it doesn't it is possible that you either have Celiac and were fortunate to catch it before damage can be measured OR you have NCGI.

I know this doesn't help much with the frustration factor :unsure:

jwblue Apprentice
jwblue
Posted

Celiac Disease can be very difficult to diagnose. Until we have alternatives, we must utilize the mechanisms currently available - this often necessitates using:

Blood Work

Endoscopic Pathology

Dietary Response

Genetic Testing

IMO the waste occurs when doctors don't suspect or test for Celiac Disease - the years of health I and others have lost to misdiagnosis and undiagnosed Celiac are far more costly than these tests.

Most doctors are inherently incompetent.

GottaSki Mentor
GottaSki
Posted

Most doctors are inherently incompetent.

In my experience - the training and experience of doctors is incomplete with regard to Celiac Disease.

I - along with members of my family and several friends owe our lives to very competent doctors.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess...
    2. Roses8721
      - Roses8721 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      gluten-free Oatmeal

      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    3. Roses8721
      - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
    4. Scott Adams
      - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      5

      Shingles - Could It Be Related to Gluten/ Celiac

      As recommended by @Flash1970, you may want to get this: https://www.amazon.com/Curist-Lidocaine-Maximum-Strength-Topical/dp/B09DN7GR14/
    5. Scott Adams
      - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Challenges eating gluten before biopsy

      For those who will likely remain gluten-free for life anyway due to well-known symptoms they have when eating gluten, my general advice is to ignore any doctors who push to go through a gluten challenge to get a formal diagnosis--and this is especially true for those who have severe symptoms when they eat gluten. It can take months, or even years to recover...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,474
    • Most Online (within 30 mins)
      7,748
    Silk tha Shocker
    Newest Member
    Silk tha Shocker
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess one or both of the primary genes known to be associated with the development of active celiac disease but only about 1% of the population actually develop active celiac disease. So, the gene test is an effective "rule out" tool but not an effective diagnostic tool.
    • Roses8721
      gluten-free Oatmeal

      By Roses8721 · Posted

      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
    • Scott Adams
      Shingles - Could It Be Related to Gluten/ Celiac

      By Scott Adams · Posted

      As recommended by @Flash1970, you may want to get this: https://www.amazon.com/Curist-Lidocaine-Maximum-Strength-Topical/dp/B09DN7GR14/
    • Scott Adams
      Challenges eating gluten before biopsy

      By Scott Adams · Posted

      For those who will likely remain gluten-free for life anyway due to well-known symptoms they have when eating gluten, my general advice is to ignore any doctors who push to go through a gluten challenge to get a formal diagnosis--and this is especially true for those who have severe symptoms when they eat gluten. It can take months, or even years to recover from such a challenge, so why do this if you already know that gluten is the culprit and you won't be eating it anyway?  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS--but those in this group will usually have negative tests, or at best, elevated antibodies that don't reach the level of official positive. Unfortunately test results for celiac disease are not always definitive, and many errors can be made when doing an endoscopy for celiac disease, and they can happen in many ways, for example not collecting the samples in the right areas, not collecting enough samples, or not interpreting the results properly and giving a Marsh score.  Many biopsy results can also be borderline, where there may be certain damage that could be associated with celiac disease, but it just doesn't quite reach the level necessary to make a formal diagnosis. The same is true for blood test results. Over the last 10 years or so a new "Weak Positive" range has been created by many labs for antibody results, which can simply lead to confusion (some doctors apparently believe that this means the patient can decide if they want more testing or to go gluten-free). There is no "Weak Negative" category, for example. Many patients are not told to eat gluten daily, lots of it, for the 6-8 week period leading up to their blood test, nor asked whether or not they've been eating gluten. Some patients even report to their doctors that they've been gluten-free for weeks or months before their blood tests, yet their doctors incorrectly say nothing to them about how this can affect their test, and create false negative results. Many people are not routinely given a total IGA blood test when doing a blood screening, which can lead to false negative interpretations if the patient has low IGA. We've seen on this forum many times that some doctors who are not fully up on how interpret the blood test results can tell patients that the don't need to follow a gluten-free diet or get more testing because only 1 of the 2 or 3 tests done in their panel is positive (wrong!), and the other 1 or 2 tests are negative.  Dermatologists often don't know how to do a proper skin biopsy for dermatitis herpetiformis, and when they do it wrongly their patient will continue to suffer with terrible DH itching, and all the risks associated with celiac disease. For many, the DH rash is the only presentation of celiac disease. These patients may end up on strong prescriptions for life to control their itching which also may have many negative side effects, for example Dapsone. Unfortunately many people will continue to suffer needlessly and eat gluten due to these errors in performing or interpreting celiac disease tests, but luckily some will find out about non-celiac gluten sensitivity on their own and go gluten-free and recover from their symptoms. Consider yourself lucky if you've figured out that gluten is the source of your health issues, and you've gone gluten-free, because many people will never figure this out.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.