Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Work Results

KikiB

Recommended Posts

KikiB Explorer
KikiB
Posted

Hi! Looks like a lot of blood work coming back today. Dr. said it's a 90% chance I don't have Celiac, but she does recommend having the endoscopy to verify based on my reaction to gluten. I wonder if it's because the Mono I got in April triggered it and it's too new in my body to show up?

IGA <11

IGG <14

IGM <12

Each one of these is one number short of "indeterminate" according to the sheet she gave me.

I have an appointment with the Gastroenterologist on Oct 23rd for a consultation. I know I have to start eating gluten again, but I'm scared. (What a baby, right?) How long before the endoscopy should I be eating gluten? It's not even scheduled yet, but should I just bite the bullet and eat it?

Sigh.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


beachbirdie Contributor
beachbirdie
Posted

Hi! Looks like a lot of blood work coming back today. Dr. said it's a 90% chance I don't have Celiac, but she does recommend having the endoscopy to verify based on my reaction to gluten. I wonder if it's because the Mono I got in April triggered it and it's too new in my body to show up?

IGA <11

IGG <14

IGM <12

Each one of these is one number short of "indeterminate" according to the sheet she gave me.

I have an appointment with the Gastroenterologist on Oct 23rd for a consultation. I know I have to start eating gluten again, but I'm scared. (What a baby, right?) How long before the endoscopy should I be eating gluten? It's not even scheduled yet, but should I just bite the bullet and eat it?

Sigh.

The tests, as you list them, are not celiac specific tests. Do you have a sheet with the full names?

Not a bad thing that the doc will do an endoscopy even with unremarkable blood work. That is highly unusual! Glad they are willing to look, sorry you have to be eating gluten.

KikiB Explorer
KikiB
Posted
  • Author

The tests, as you list them, are not celiac specific tests. Do you have a sheet with the full names?

Not a bad thing that the doc will do an endoscopy even with unremarkable blood work. That is highly unusual! Glad they are willing to look, sorry you have to be eating gluten.

I may have used the wrong references. I have 3 pages of blood test results (she tested me for lots of things) -- what names should I be looking for?

GottaSki Mentor
GottaSki
Posted

You should continue to eat gluten until the endoscopy is complete. Aside from the endo, your GI may want to order more specific blood work and any time gluten free can cause these tests to be less accurate. I know it is frustrating and counter-intuitive but for the best possible results from the available tests, you need to keep eating gluten. If you haven't started eating gluten, I suggest a grilled cheese or bowl of pasta for snack or dinner TODAY!

Like BB said the numbers you posted do not relate to specific celiac blood tests. Do you have written or electronic results you can post here so we can help interpret the results?

KikiB Explorer
KikiB
Posted
  • Author

You should continue to eat gluten until the endoscopy is complete. Aside from the endo, your GI may want to order more specific blood work and any time gluten free can cause these tests to be less accurate. I know it is frustrating and counter-intuitive but for the best possible results from the available tests, you need to keep eating gluten. If you haven't started eating gluten, I suggest a grilled cheese or bowl of pasta for snack or dinner TODAY!

Like BB said the numbers you posted do not relate to specific celiac blood tests. Do you have written or electronic results you can post here so we can help interpret the results?

Thanks for making me smile, Lisa! You are too cute suggesting a grilled cheese.

I have 3 pages of test results, I guess I picked wrong -- I wouldn't know which results to give you. :(

nora-n Rookie
nora-n
Posted

IgA IgG IgM ate classes of antibodies, just general tests.

Now the celiac tests are like deaminated gliadin IgG or tissue transglutaminase IgA or endomysium Ab

Also vitamin D is often lowish with celiac, and iron/hemoglobin or ferritin too.

GottaSki Mentor
GottaSki
Posted

You are looking for keywords like tTG, Gliadin, Endomysial, IgA and IgG -- below are the names of the tests in the celiac panel, many labs do use slightly different names and abbreviations.

Total Serum IgA

Tissue Transglutaminase IgA and IgG

Gliadin IgA and IgG

Endomysial Antibody IgA

Deamidated Gliadin Peptide IgA and IgG

Also any tests that indicate you are low in nutrients.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KikiB Explorer
KikiB
Posted
  • Author

You are looking for keywords like tTG, Gliadin, Endomysial, IgA and IgG -- below are the names of the tests in the celiac panel, many labs do use slightly different names and abbreviations.

Total Serum IgA

Tissue Transglutaminase IgA and IgG

Gliadin IgA and IgG

Endomysial Antibody IgA

Deamidated Gliadin Peptide IgA and IgG

Also any tests that indicate you are low in nutrients.

I've been low on D, B12 and Iron for almost 4 years that I know of. I take a prescription B12 nasal spray, and supplements for D and Iron.

Tissue Transglutaminase AB, IGA <1

Tissue Transglutaminase AB, IGG <1

Gliadin (Deamidated) AB (IGG) 2

Thanks for your help!

GottaSki Mentor
GottaSki
Posted

It is great that your doc has recommended an endo even with negative celiac blood tests. Given your reaction to gluten and nutrient deficiency it will be good to rule out intestinal damage.

Good Luck :)

KikiB Explorer
KikiB
Posted
  • Author

It is great that your doc has recommended an endo even with negative celiac blood tests. Given your reaction to gluten and nutrient deficiency it will be good to rule out intestinal damage.

Good Luck :)

I had a burger last night with the bun, and the muscle weakness came back within an hour and still bothering me today. Just whining. I wish I could get this over with. :)

  • 1 month later...
KikiB Explorer
KikiB
Posted
  • Author

Here are the new blood test results:

IgA 223 (reference range is 81-463)

Transglutaminase IgG Result <3.0 (less than 6.0 is negative)

Transglutaminase IgA Result <3.0 (less than 4.0 is negative)

Endomysial Ab (IgA) only says Negative. No reference numbers.

Gliadin (Deamidated) IgG Result 4 Reference Range <20 Antibody Not Detected

Gliadin (Deamidated) IgA Result 4 Reference Range <20 Antibody Not Detected

So it looks like they are all negative. Still waiting on the Endoscopy results.

I know mono can trigger Celiac Disease -- but can it/would it just trigger a gluten intolerance? That seems so odd to me.

jwblue Apprentice
jwblue
Posted

What the heck is the point of a blood test if the doctor still recommends an endo?

Waste of money.

GottaSki Mentor
GottaSki
Posted

What the heck is the point of a blood test if the doctor still recommends an endo?

Waste of money.

Celiac Disease can be very difficult to diagnose. Until we have alternatives, we must utilize the mechanisms currently available - this often necessitates using:

Blood Work

Endoscopic Pathology

Dietary Response

Genetic Testing

IMO the waste occurs when doctors don't suspect or test for Celiac Disease - the years of health I and others have lost to misdiagnosis and undiagnosed Celiac are far more costly than these tests.

GottaSki Mentor
GottaSki
Posted

So it looks like they are all negative. Still waiting on the Endoscopy results.

I know mono can trigger Celiac Disease -- but can it/would it just trigger a gluten intolerance? That seems so odd to me.

They are negative - technically a very good thing - but frustrating none the less.

The unknown factors in Celiac Disease and NCGI are incredibly frustrating. So much remains unknown about celiac disease and next to nothing has been studied thoroughly in NCGI.

I remain hopeful your endo pathology will provide a firm diagnosis, but if it doesn't it is possible that you either have Celiac and were fortunate to catch it before damage can be measured OR you have NCGI.

I know this doesn't help much with the frustration factor :unsure:

jwblue Apprentice
jwblue
Posted

Celiac Disease can be very difficult to diagnose. Until we have alternatives, we must utilize the mechanisms currently available - this often necessitates using:

Blood Work

Endoscopic Pathology

Dietary Response

Genetic Testing

IMO the waste occurs when doctors don't suspect or test for Celiac Disease - the years of health I and others have lost to misdiagnosis and undiagnosed Celiac are far more costly than these tests.

Most doctors are inherently incompetent.

GottaSki Mentor
GottaSki
Posted

Most doctors are inherently incompetent.

In my experience - the training and experience of doctors is incomplete with regard to Celiac Disease.

I - along with members of my family and several friends owe our lives to very competent doctors.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,902
    • Most Online (within 30 mins)
      7,748
    Patty6133
    Newest Member
    Patty6133
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      Yes, you are right. Indeed, I’ve been feeling anemic since the beginning of this week, and today I felt horrible during a lecture at the university, I was trembling a lot and felt all my body incredibly heavy, so I had to come back home. I’ll do a blood test tomorrow, but I’m just worried about the possibility of it coming back negative. I’ve been eating two cookies in the morning as my only source of gluten over the past two weeks—could that affect the final result?
    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.