Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wanting To Support My Beloved.


Andres Rosales

Recommended Posts

Andres Rosales Explorer

I just joined maybe 2 or 3 minutes ago. I joined because my beloved was diagnosed with Celiac TODAY. When I found out, I was really worried that her life may be in danger and all sorts of other things along those lines. I immediately began trying to find out as much as possible in terms of diet, symptoms, risks, lifestyle choices, and nearly every other aspect of her life that may be effected by this disease.

I'm sure my use of "beloved", in reference to the young woman I am courting, may have confused some people. We've decided to use this word to relate to each other by, because it is so different from the norm of today's society, and that's how we want our relationship to be; our "courtship" is a serious relationship, with the intention of marriage in a little under 2 years. We want the world to not see us for our age or the fact that we're together, but rather that we're two people growing to love each other, and wanting to do it right. That being said, I want to begin learning how to help her with this in any way I can, so that by the time we're married, it'll be second nature and it'll just be our way of life. It will also probably improve my own eating habits/diet, so it's probably in my best interest to begin learning about it right now anyways.

If anyone has information they think would be good for me to have as well, please share! I would be very happy to receive any advice from people who have already been traveling down the path which I've just begun walking towards.

Thank you all and God Bless,

-Andr


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

What a "beloved" you are for making the time and effort to learn how you can support her through this difficult transition in her life. And yes, it is difficult, because you have to change the whole way you think about food. Whereas before you could just grab anything that looked appetizing, now the first question has to be, "Is it gluten free?" And frustratingly, there is no way most often when you are outside the home of answering that question. It is relatively easy to turn the home you are going to make together into a gluten free zone, but while your beloved iis still living with her parents(if she is) it is going to be difficult to get them to understand how to keep her safe.

The first thing you should do is read Newbie 101 on this board, as if it were you who had the condition (I always hesitate to call it a disease because if you don't eat gluten you are normally well) because this way you will understand her reactions and what she is going through. It will help if you don't try to take her to restaurants that don't have gluten free menus (Mom and Pop Diners are out for you), and it will also help if you don't go to restaurants at all until you have both mastered the basics of the gluten free diet. To do this, it always helps if you start off eating whole foods only (with the exception perhaps of some Udi's bread, some Tinkyada pasta, perhaps some frozen gluten free waffles if you are so inclined). Corn tortillas are excellent substitutes for bread and there are brown rice wraps (try Trader Joe's) that are useful for making burrito or pita type foods. But shop the outside of the market, meats, vegetables, fruits of all kinds, maybe try some you haven't even tried before (you can always google, e.g., swiss chard recipe gluten free). Then add in rice, beans, nuts, seeds. Try to avoid the substitute gluten free foods as much as possible at first - it is just too much label reading, as is all the processed food in boxes and cans. Save that for later.

Once you have got that far, come back and ask whatever questions you need, and encourage your beloved to come on here and post too. There is always someone with an answer to a question. :)

Welcome to the board, Andres, and good luck to you both in your future life together.

1desperateladysaved Proficient

First, I would like to thank you for your caring for your beloved. Also, for wanting to do your courtship right. While first on the diet she will be healing and during that time the body could be demanding for a time. It is also an emotionaly hard time. She needs to understand your commitment is 100%. It is difficult, but she is in a good spot having found out fairly young(?) and having you to back her up. Please help shield her from the gluten that can hurt her. That can mean constantly having the mind engaged to possible dangers. Please do read up on everything needed for treatment.

Next, I want to wish you strength and health from the Lord for both of you. I would also like you to have other friends that support and understand celiac.

If you have any more questions feel free to post again.

Diana

GottaSki Mentor

Welcome Andres!

You already have what you need most in order to help. Your desire to learn the ins and outs of her diagnosis is the most important part of tackling this issue.

As Mushroom mentioned start with the Newbie 101 info. Read as much as you can and ask any questions - it will speed the learning curve. If she doesn't already know of this board, make sure your beloved is aware of it so she can find help processing the transition to living gluten-free!

I'll leave you with what melted my heart when I was newly diagnosed. I very much disliked causing a fuss when ordering at restaurants. I was a bit embarrassed, but it was more a matter of growing up with a parent that complained every time we dined out so I really disliked being in a position that seemed like I was acting the same. Anyway...my husband learned the proper way to order safely for me...when I would not speak up, he did it for me. He made it very clear that my health was important to him and that the restaurant needed to use great care with my food. He also helped family and friends understand the need for safe food. Should your "beloved" not want to make a fuss, do it for her.

Best wishes to you both, along with hopes for speedy healing for her :)

Andres Rosales Explorer

Thank you all for your kind messages :). I was very encouraged by your support of my motion to support my love in this. I understand that it will be difficult at first for her and I to both adjust. She is still living with her parents at this point, and I'm sure that they're already learning about the different ways to protect her, as I am. Her mom is a stay-at-home mom who makes herbal remedies and such (the legit kind, not drugs haha), so I'm sure she's already on top of this. We are both still pretty young; herself seventeen and I eighteen, both this year. I'm planning to go gluten-free as well... I can't remember if I put that up in the original post--*checks*--nope guess not lol. This is going to be an even bigger change for me than it is her I believe. She already almost only ate healthy food, whereas I myself am quite a junk food fanatic ^.^; . But I'm praying for strength and diligence. I know it will pay off in the end. I'm thinking this will almost definitely improve my health also so I'm looking forward to that as well :).

Thanks again to all of you who replied to my original post. I look forward to hearing from you and other users in the near future.

-Andrés Rosales

Huggenkiss27 Rookie

You've found a great place for advice! I do not post often but I spend a good bit of time reading through the posts. There is so much information.

I am glad to hear of your support for your Beloved. My boyfriend has been beyond supportive when we found out about my diagnosis 5 months ago. He suggested when we moved to our new house about 2 months post diagnosis that it should be gluten free. He also went through everything in our house and threw it away if it contained gluten. He is gluten free at home and normally gluten free outside of the house as well. Most days I think he copes with it better than I do.

  • 1 month later...
Clintsbride Newbie

I am Lawana, Mom to Mary-Hannah (Andres' beloved). It has taken me a while to get over here and check out the forum. You can all imagine what a sweet surprise it was to read the posts that Andres wrote. I have been immersed in helping my daughter get rest and rein in her life to allow the rest her doctor recommended and revamping my kitchen (with help from Andres' mom) as well as preparing meals with excellent nutrition that taste good enough to tempt her still queasy tummy. Now I am here as well hoping to learn as much as I can from you folks.

Hi Andres. I finally got over here. I am so thankful that you are learning about Celiac. I am even more touched reading your posts. I look forward to learning more together. I am also looking forward to sharing our first gluten free Thanksgiving with you! BTW to Andres and the forum, I think I am seeing some improvements in the way Andres' beloved looks and feels already. It has just been a little over a month with only one accidental glutening. I think M-H is losing the dark circles. She is no longer cold all the time and though she is still sleeping 12 hours per day, she seems to wake up rested!!! I am thanking God for this diagnosis. I feel badly that we didn't figure it out years ago but I am thankful that she seems to be responding so well.

I would love any hints for moms changing over the entire family to gluten free. I also look forward to meeting you all.

BTW Dre' what are your favorite Thanksgiving foods?

Lawana


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 3 weeks later...
Andres Rosales Explorer

haha a bit late for the favorite foods, but I really loved being with you guys on thanksgiving : ) I had a wonderful time with Mary-Hannah and the rest of you guys ^_^ can't wait to see you all again!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.