Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dh?


MrsSprinkles

Recommended Posts

MrsSprinkles Rookie

Does this look like anyone's DH? It's affecting both elbows and itches like crazy...this is actually my little sister and she has had flares of this rash for the last two years and it always happens on both elbows at the same time and always looks like this but sometimes worse...

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jlaw Apprentice

Hi Mrs Sprinkles. Does the rash appear anywhere else? Does it show any signs of inflammation? I would say that DH is a small possibility but would probably expect to see more areas involved by now. This is how my son looked about 5 weeks ago, and of course I am suspicious because of my own diagnosis! So I googled something like 'bumpy skin on elbows' and came up with a number of other possibilities that could be worth checking out. Sorry your sister is so itchy. Good luck on your quest and please ask any questions you might think of.

MrsSprinkles Rookie

She gets it on her knees every so often too. Some backstory: she has had the rash for two years now on and off but mostly on...she has suffered constipation since infancy, and her enamel is discolored...

Yesterday she stayed home from school because she had a severe stomach ache and interestingly her elbows flared up the same day her stomach hurt and said they itched more than they typically do.

She has gone to the doctor and did all sorts of tests minus vitamins which I found odd because both my mother and I struggle to maintain iron and Vit D levels even with supplements. They tested for AI issues and came back well within normal limits...unlike my doctors who think I'm crazy, her docs are moving towards testing her for celiac disease an sending her to GI.

MrsSprinkles Rookie

Forgot to mention...doctors said rash is not eczema and derm said she wasn't sure what it was because it comes and goes and has been an ongoing issue...my mother wasn't willing to biopsy then because my sister was only 7 and my mom is the type of person who would tell you to put a bandaid over your severed leg so she isn't one to rush to doctors for anything even if its recommended.

Hopeful1950 Explorer

I have a friend who has DH. This is how his rash presented for many years before it spread to his ankles and the back of his neck.

MrsSprinkles Rookie

She is also ALWAYS complaining of a severe stomach ache (which is a reason the did an X-ray and only saw she was constipated--nothing new) and her stomach problems have been so severe she has cried in pain and missed several days of school.

jlaw Apprentice

Oh no :-( Definitely starting to sound more suspicious. Hopeful's information is interesting too. As I said, this is how my son looked 5 weeks ago. Now he has suspicious patches on his ankles, back of his neck and back of his hand...maybe the same path as your friend, Hopeful, just a little quicker...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,019
    • Most Online (within 30 mins)
      7,748

    Wilson1984
    Newest Member
    Wilson1984
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.