Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going Out?

Kate35

By Kate35
in Coping with Celiac Disease

Recommended Posts

Kate35 Apprentice
Kate35
Posted

The nature of my work involves meeting people which inevitably involves going out and eating out. I always get nervous when ordering but at the same time I don't want to attract too much attention and cause my disease to become atopic of conversation.... How do you handle it? What do you typically order? I am most,y having problems with "let's meet at this coffee place for deserts" thing... Thank you! This is a great group! Hopefully I will be able to offer advice one day myself...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JNBunnie1 Community Regular
JNBunnie1
Posted

I'd say the 'coffee place for desserts' thing is pretty easy- get a fancy coffee for dessert. Say you're full?

Adalaide Mentor
Adalaide
Posted

I think the coffee place is a great idea. I agree that a simple "I don't eat sweets" and a fancy coffee or tea should do the trick.

Kate35 Apprentice
Kate35
Posted
  • Author

Are you concerned about coffe or tea being contaminated with gluten? What kind of "fancy coffee"? Do you not even bring it up (gluten issue) at the restaurant? Ideally, I would like to not mention it.

Adalaide Mentor
Adalaide
Posted

You can check the Torani website to see which flavors contain gluten, but the list is extremely short and if you order coffees flavored with those it won't be a problem. I don't drink coffee myself but love to indulge in a nice rooibos chai latte occasionally.

If you screen places ahead of time you won't have any issues when you go. You can quickly and simply address it with a "that is still gluten free, right?" and carry on without drawing attention. Although in my case, with tea, spice and milk I wouldn't be concerned or bother if I were worried about issues with the people I was with. Of course, if you react like I react to the slightest contamination you need to be careful about being sure you choose a place that you are 100% comfortable with. You are better off being "that celiac person" than the person who had to use the restroom 6 times in a 40 minute coffee meeting.

Juliebove Rising Star
Juliebove
Posted

Gluten is not an issue for me but if it were, I likely wouldn't have coffee at a place that served desserts. Too much risk of cross contamination. Unless perhaps they made the desserts elsewhere. And even then there is still the chance of it. Does this place serve fresh fruit? If so, that might be an option. But even at that there could be cross contamination.

I used to meet up with some people at a coffee place. I just got a bottle of water because frankly I didn't like their coffee or their tea. And I don't eat dresserts.

Adalaide Mentor
Adalaide
Posted

I used to be dear friends with a family that owned a small coffee shop. The desserts were all made in the back kitchen and the coffees and teas were all made out front right in front of you, absolutely no risk there. There is no way in hell I will eat a fruit salad in a place that handles gluten. That is far riskier than ordering a drink unless you grill them about their cutting boards and should never be done.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Takala Enthusiast
Takala
Posted

Get a beverage that you think is safe, and have a safe, gluten-free snack in your purse or briefcase to eat with it.

Example, recently I decided to risk this, and got the plain coffee, and put half and half in it, but, to my surprise, there was a gluten free snack bar with acceptable ingredients for sale at the counter, (this is rare for me) so I got that, instead of eating the one in my purse. My friends already know I have a food "glitch," and I will be intently reading labels, so this is no big deal. If anyone would ask I tell them the truth - I don't want to get a migraine, and then have vision problems, which is how this would start off, as I get neurological symptoms. And I'm a bit leery of coffee shops, because I've gotten hammered a few times, so it's best to stick to really plain things. You can also carry your own tea bags and sweeteners, and just get hot water, if you think you'll have a problem. I've gotten the wrong tea (with gluten in the flavorings) at the name brand place inspite of ordering plain, and I was not a happy camper.

There are a lot of people avoiding all sorts of different ingredients for many different reasons healthwise, so really, avoiding gluten is no different than avoiding sugar, or avoiding aspertame, or saturated fats, it is only the reaction that differs from person to person.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Finding gluten free ingredients

      I shop a fair bit with Azure Standard. I bought Teff flour there and like it. they have a lot of items on your list but probably no soy flour, at least not by that name. https://www.azurestandard.com/shop/product/food/flour/teff/brown/teff-flour-brown-unifine-gluten-free/11211?package=FL294 As mentioned in another answer, Palouse is a high quality...
    2. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Finding gluten free ingredients

      fwiw, I add nutritional yeast to some of my recipes. since going gluten free I eat almost no processed foods but I imagine you could sprinkle yeast on top.
    3. knitty kitty
      - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues. The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves...
    4. cristiana
      - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem. Just a few other thoughts. I had debilitating anxiety prior to my diagnosis. I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice: for depression, The Depression...
    5. trents
      - trents replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,902
    • Most Online (within 30 mins)
      7,748
    WOLINM
    Newest Member
    WOLINM
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Finding gluten free ingredients

      By Aretaeus Cappadocia · Posted

      I shop a fair bit with Azure Standard. I bought Teff flour there and like it. they have a lot of items on your list but probably no soy flour, at least not by that name. https://www.azurestandard.com/shop/product/food/flour/teff/brown/teff-flour-brown-unifine-gluten-free/11211?package=FL294 As mentioned in another answer, Palouse is a high quality brand for dry beans, peas and other stuff. I buy some foods on your list from Rani. I've been happy with their products. https://ranibrand.com/ Azure and Rani often use terms that skirt around explicit "gluten free". I've contacted both of them and gained some comfort but it's always hard to be certain. FWIW, my IgA antibody levels are very low now, (after including their foods in my diet) so it appears I am being successful at avoiding gluten. 
    • Aretaeus Cappadocia
      Finding gluten free ingredients

      By Aretaeus Cappadocia · Posted

      fwiw, I add nutritional yeast to some of my recipes. since going gluten free I eat almost no processed foods but I imagine you could sprinkle yeast on top.
    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Severe severe mouth pain

      By cristiana · Posted

      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      Severe severe mouth pain

      By trents · Posted

      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.