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doalltheyoga

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doalltheyoga Newbie
doalltheyoga
Posted

Hi there :)

my name is alexandra, i'm almost 21 and i'm a week out from getting the blood work back for my diagnosis.

my story is quite crazy. to keep it short, i've been reading this forum for about a year and decided to become a member today :) i'm trying my hardest to make the most out of this new life style.

i went to the doctor on and she said that with my symptoms, blood work really wasnt unnecessary; she's pretty sure I have a gluten problem. but I decided that for a peace of mind (and for my husbands peace of mind), I needed to get the blood work done. I've been gluten free off and on for a while, but I realize that I'm just being stubborn and I really do feel better not eating any gluten (went to Applebees last night, ordered gluten free and still got really sick today).

I'm just here for support.. and to support others if I can :)... this new life style definitely takes some getting used to!!

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shadowicewolf Proficient
shadowicewolf
Posted

Eeeek, applebees has a habit of having major CC issues :( not good.

GottaSki Mentor
GottaSki
Posted

Welcome DATY!

Glad you have been able to determine your body doesn't like gluten.

Were you gluten-free in the months before your blood tests were drawn? If so, they may be falsely negative - even gluten-lite can reduce the amount of antibodies measured in the celiac panel.

It is also possible that you have Non-Celiac Gluten Intolerance. NCGI has many of the same symptoms of Celiac Disease, but no antibodies are produced in reaction to gluten consumption. The only test for NCGI is the complete elimination of gluten. Take a look at the "Newbie 101" thread and ask questions with anything that you find confusing. The transition is very tough, but it does get easier with time and knowledge.

Good luck to you :)

doalltheyoga Newbie
doalltheyoga
Posted
  • Author

Welcome DATY!

Glad you have been able to determine your body doesn't like gluten.

Were you gluten-free in the months before your blood tests were drawn? If so, they may be falsely negative - even gluten-lite can reduce the amount of antibodies measured in the celiac panel.

It is also possible that you have Non-Celiac Gluten Intolerance. NCGI has many of the same symptoms of Celiac Disease, but no antibodies are produced in reaction to gluten consumption. The only test for NCGI is the complete elimination of gluten. Take a look at the "Newbie 101" thread and ask questions with anything that you find confusing. The transition is very tough, but it does get easier with time and knowledge.

Good luck to you :)

thank you for the warm welcome! I'm still getting the hang of this forum..

I wish I had known about applebees infamous CC issues. I woke up feeling very ill and then it dawned on me :(

As for being gluten free before my test, I wasn't very strict... at all! teriyaki stir fry the Monday before my test and Diet coke (Carmel Coloring) the day before.

I also had no idea the many ways I was CC my body - spices, cooking pans, GV brand of food from WM.. :blink: I never even realized! so I'm pretty sure it'll come up positive.

I'm doing some research on the NCGI, thats very intersting! Never heard of it before.

I'm sure I'll be asking many many questions about my new life style, hopefully nobody minds!!

psawyer Proficient
psawyer
Posted

Caramel color is not a concern. All Coke versions are gluten-free, as are all variations of Pepsi.

  • 2 weeks later...
kaityxo Newbie
kaityxo
Posted

hey alexandra! im in a similar position! im almost 21 and was just diagnosed celiac a couple of months ago! its tought to get into, but its great feeling so much better!

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      how much gluten do I need to eat before blood tests?

      By trents · Posted

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      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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