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Hematuria & Gluten Intolerance?


Janice1014

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Janice1014 Newbie

Hi,

Just diagnosed myself as wheat/gluten intolerant during the past 8 mos, so I am new to this whole thing. I am struggling sometimes to figure out what I can eat. Recently went for a physical as part of a DOT requirement (Dept of Transportation) for my CDL license. Found out I have trace amounts of blood in my urine and so far the medical community can't figure out why. Has anyone ever had a correlation between celiac disease/wheat intolerance to this symptom? My health has not changed otherwise so I can't figure out why it would appear now. Oh by the way, I am non-typical in that my symptoms of wheat/gluten is that of difficulty breathing -- no intestinal upset. Any info would help. Thanks.


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Skysmom03 Newbie

I would not self diagnose. Sounds like something other than celiac. You could be doing more harm to yourself by not having more invasive testing done. Has your GP not recommended that? Just my opinion, but that's what I would do. Celiac is quite serious and even if you do have it and are"treating" it right now, you could have some other issues related to having the celiac for an unknown amount of time.

my3monkees Rookie

Hi,

Just diagnosed myself as wheat/gluten intolerant during the past 8 mos, so I am new to this whole thing. I am struggling sometimes to figure out what I can eat. Recently went for a physical as part of a DOT requirement (Dept of Transportation) for my CDL license. Found out I have trace amounts of blood in my urine and so far the medical community can't figure out why. Has anyone ever had a correlation between celiac disease/wheat intolerance to this symptom? My health has not changed otherwise so I can't figure out why it would appear now. Oh by the way, I am non-typical in that my symptoms of wheat/gluten is that of difficulty breathing -- no intestinal upset. Any info would help. Thanks.

Some people do seem to have issues with the urinary tract that is related to Celiac. I am actually trialing gluten free, to see if I can clear up the same problem. I always have trace blood in my urine and abnormal cells. They tell me the cells are probably due to inflammation somewhere. Celiac can cause inflammation. I was thoroughly checked, to make sure that it was nothing else. Urologist has run all kinds of test, but can find no answers. I have been told that some people just have the microscopic blood, and as long as everything else is fine, not to worry about it. I will be curious to see if gluten free helps. I do know that my knees feel great, I can bend them completely. I was able to climb on a chair using my left leg to push off with the other day. My knees haven't been strong enough to do that in a very long time! So I apparently had inflammation in my knees, that I didn't even know I had. I just attributed it to age and weight! HTH

Judyin Philly Enthusiast

I have always had blood in urine too

New urologist just gave me new DX of IC

Anyone have some info on that for me?

  • 4 weeks later...
jelizmay Newbie

Hi,

I'm new here. I've had microscopic amount of blood in my urine all my life - couldn't figure it out. After years of testing and anoying UTIs etc, I was diagnosed with interstacial cystitis.

About 4 years ago I started having a huge amount of stomach issues, plus sinus problems. Also, at the time, I believe I was having a lot of pasta. I was always sick and tired.

About 2 years ago, I started getting these sinus "headaches" that a neuro diagnosed as migraines. But I'm not so sure they are.

My stomach is better except I always tend to be bloated.

My doc tested for celiac bec. my Vit D level was low and I had no energy. It came back negative.

But I'm wondering if I do have a gluten sensitivity.

I went to a chriropractor, which is a little out of my comfort zone and he suggested a food test - which I'm not sure why he wanted to do it. Anyway, the results said I have an issue with dairy, wheat, yeast, eggs.

(1) I don't know if this test is valid and (2) I'm wondering if I do have a gluten sensitivity.

I don't know where to start, I just want these sinus headaches to go away.

Has anyone had similar to above, particularly with sinus issues?

Also, my B12 was extremely high, 2000, and I have no odea why.

I'm scared. I'm 41 and feel like I'm 90.

Thanks.

Jill

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    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
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