Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should I Try Gluten Free?

adambryant

Recommended Posts

adambryant Explorer
adambryant
Posted

Hi, I'm a 17 year old male, I've already posted a similar topic about symtoms, I just want advice to just try the gluten free diet. Basically my mums got celiac(as of 8 or 9 years) and I've been having syntoms for 9 months (constipation, lack of appetite, tummy rumbling after meals, bloating, bad gas, and I did have some weird rashes on my leg a long while back not sure if its connect) well I've been to the doctors time and time again, had blood tests and they came bacl negative. Been to a specialist and he just said take a fibre supplement for your constipation.. And that was it, and I've been to the doctors recently and he said try the gluten free diet. This is my third day now. Is it worth trying? Could I be celiac? Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

Hi Adam,

The gluten-free diet is not going to hurt you, so why not? Gluten-free is a very healthy diet if you stick with whole foods and not many processed foods. Your celiac test may not have shown anything if you are early in the damage process, plus younger people tend to heal faster. If you do gluten-free for 3 or so months, and then do a gluten challenge, it should cause some kind of symptoms if there is a poblem. That is using your own body as the test intstrument, vs the doctors tests. Keep in mind there are 300 symptoms of celiac spread around all parts of the body. So you may have headaches, rashes, GI symptoms, joint aches, brain fog, muscle aches etc as a symptoms and not always think they are gluten related. Allergies and gum problems tend to be worse too. People also sometimes report having worse GI symptoms after being off gluten for a while and then being re-exposed. There is also something claled NCGI that isa gluten reaction but there are no tests for it right now.

http://Non celiac wheat sensitivity article https://www.celiac.com/articles/23033/1/Non-Celiac-Wheat-Sensitivity-It-Exists/Page1.html

adambryant Explorer
adambryant
Posted
  • Author

Yeah, think ill stick to it, as when I ate rice (no gluten) my bloating was never as bad. Thanks for your feedback!:)

nvsmom Community Regular
nvsmom
Posted

My kids tested negative but have some symptoms, and since I'm celiac, we thought the same thing as you: why not try gluten-free... it can't hurt. :)

I hope you feel better gluten-free. With your family history, I think it's a wise choice you've made. :) Good luck.

adambryant Explorer
adambryant
Posted
  • Author

Did it decrease the symtoms of your kids? Hopefully it did!

Thanks a lot anyway!:)

nvsmom Community Regular
nvsmom
Posted

So far it has decreased some of my boys' symptoms: My 5 year old used to visit the bathroom up to 8 times a day, and often during a meal. He's down to a couple of times a day now. My 10 year has noticed a decrease in his stomach pains and headaches andI've noticed that he is able to concentrate better on his school work and he's gained a couple of pounds; we're hoping it will impact his growth in a positive way as his growth has really slowed down and his 8 year old brother is now taller than him.

Best wishes. :)

Cara in Boston Enthusiast
Cara in Boston
Posted

You can be gluten intolerant and all the tests will be negative. The most important test is to try the diet yourself. Try to do it for 3 months and take it very, very seriously (no cheating). Sometimes it takes a while to notice that you are feeling better. I found that keeping a journal (just a calendar will do) and tracking your symptoms helps. Then, if you suddenly start having symptoms again, you can usually trace it back to a mistake you made (mine was my vitamins.) When I went gluten free (positive blood test but negative endoscopy) some of my symptoms went away right away, while others took several weeks.

My son had negative blood tests, but a positive biopsy. The tests are confusing and not accurate. You are making the right decision.

Stick with it, it is worth it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


adambryant Explorer
adambryant
Posted
  • Author

Thankyou:) ill definitely stick it out.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. DebD5
      - DebD5 replied to Bebygirl01's topic in Related Issues & Disorders
      26

      How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?

      I would like to say you saved me. I’ve been so sick the last few years, celiac since 1997. And reading your post about the other glutens/grains that can be sensitive to celiacs, is the only thing that has ever helped me. Since going off a carbohydrates/grains, even gluten-free ones, My chronic pain is 85% better. I’m actually losing weight which, that’s a...
    2. DebD5
      - DebD5 replied to ohmichael's topic in Super Sensitive People
      12

      Curious if I should quit my job

      I 100% believe if you were sticking gluten items, especially flour, and breathed it in you could be glutened. I’m a celiac for almost 30 years. For the first ten years as a celiac I’d help my polish family make pierogis at Christmas time. I would only cook them at the stove and I didn’t touch anything with my hands using spoons. But the flour is in the a...
    3. DebD5
      - DebD5 replied to annirosex's topic in Related Issues & Disorders
      2

      Dealing with celiac and menstrual cycle

      Have you had your thyroid checked? I was diagnosed at 24 with celiac. Lost my period permanently at 32. Found out six months after I lost my period that I had 1 ovary with 1 follicle. I had a child already but wanted more. Ended up having two more children with one ovary and one follicle. But my doctors theories are if I would have gotten my thyroid checked...
    4. DebD5
      - DebD5 replied to Katiexox's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Advice please

      This. Scott said it beautifully. Document and start a trial gluten-free diet. I can also recommend an inflammation dietitian I saw last summer if interested. She’s the only one who helped me on a path to healing through an elimination diet. Which is tricky with your little one. But I completely trust her, she’s very expensive though. I figured out I’m se...
    5. DebD5
      - DebD5 replied to StevieP.'s topic in Related Issues & Disorders
      5

      Fodzyme

      I so appreciate you talking about this. Honestly I’m so sick the most part of the last 15 years, I’m going to cross reference your list with my own. Celiac since 24 yrs old diagnosed in 1997. I just saw a specific celiac GI specialist at the celiac disease center in Chicago and when I told her all the food reactions I was having she said she believed me ...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,637
    • Most Online (within 30 mins)
      7,748
    Alice 6
    Newest Member
    Alice 6
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DebD5
      How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?

      By DebD5 · Posted

      I would like to say you saved me. I’ve been so sick the last few years, celiac since 1997. And reading your post about the other glutens/grains that can be sensitive to celiacs, is the only thing that has ever helped me. Since going off a carbohydrates/grains, even gluten-free ones, My chronic pain is  85% better. I’m actually losing weight which, that’s a long story but was impossible. I definitely am like you. Thank you so very much for posting. For some of celiacs I do believe this is the magic key. 
    • DebD5
      Curious if I should quit my job

      By DebD5 · Posted

      I 100% believe if you were sticking gluten items, especially flour, and breathed it in you could be glutened. I’m a celiac for almost 30 years. For the first ten years as a celiac I’d help my polish family make pierogis at Christmas time. I would only cook them at the stove and I didn’t touch anything with my hands using spoons. But the flour is in the air. And I’d get violently ill for 1-2 weeks after the last few years I did it. Wearing a back is a great suggestion and washing your clothes and showering when you get home. Good luck. And I’m so sorry your parents are emotionally supporting you. 
    • DebD5
      Dealing with celiac and menstrual cycle

      By DebD5 · Posted

      Have you had your thyroid checked? I was diagnosed at 24 with celiac. Lost my period permanently at 32. Found out six months after I lost my period that I had 1 ovary with 1 follicle. I had a child already but wanted more. Ended up having two more children with one ovary and one follicle. But my doctors theories are if I would have gotten my thyroid checked sooner and fixed through medication, maybe things would look different. Who knows. I only share my experience so you question your doctors and advocate. Always see an endocrinologist for thyroid care fyi. Actually always see the specific Dr for your specific ailments. I’d also consider seeing a gynecologist that specializes in female hormones/menopausal symptoms. Early ovarian failure happens in celiacs so I read  on the celiac disease center in Chicago website. 
    • DebD5
      Advice please

      By DebD5 · Posted

      This. Scott said it beautifully. Document and start a trial gluten-free diet. I can also recommend an inflammation dietitian I saw last summer if interested. She’s the only one who helped me on a path to healing through an elimination diet. Which is tricky with your little one. But I completely trust her, she’s very expensive though. I figured out I’m sensitive to so many things and follow a gluten-free diet religiously. Just had an upper and lower endoscopy/colonoscopy and zero signs of celiac disease so they said. I’m a celiac since 1997. But my 33 yr old daughter is very gluten intolerant since 20 yrs old. 
    • DebD5
      Fodzyme

      By DebD5 · Posted

      I so appreciate you talking about this. Honestly I’m so sick the most part of the last 15 years, I’m going to cross reference your list with my own. Celiac since 24 yrs old diagnosed in 1997. I just saw a specific celiac GI specialist at the celiac disease center in Chicago and when I told her all the food reactions I was having she said she believed me but there was no clinical evidence to support my reactions(I felt so unseen, she recommended I see a gut psychologist, what the heck). I react with severe body aches to bloating and dizziness to exhaustion:  most lectins except berries and low lectin veg, no eggs, no nightshade veg, no dairy, all carbohydrates including no gluten-free carbs or grains, though a little coconut flour seems ok now, need to test other non grains, certain alcohols that say gluten-free but looking into their process further I get horribly sick if distilled through a gluten grain example Costco vodka….. Because I had an upper and lower GI in 1997(I was 24 and 84#s) and my GI doc came back with celiac disease, this new doc suggested I may not be a celiac. Is running some blood test. Omg. I can’t even. I’m so beyond frustrated. 
×
×
  • Create New...