Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should I Try Gluten Free?

adambryant

Recommended Posts

adambryant Explorer
adambryant
Posted

Hi, I'm a 17 year old male, I've already posted a similar topic about symtoms, I just want advice to just try the gluten free diet. Basically my mums got celiac(as of 8 or 9 years) and I've been having syntoms for 9 months (constipation, lack of appetite, tummy rumbling after meals, bloating, bad gas, and I did have some weird rashes on my leg a long while back not sure if its connect) well I've been to the doctors time and time again, had blood tests and they came bacl negative. Been to a specialist and he just said take a fibre supplement for your constipation.. And that was it, and I've been to the doctors recently and he said try the gluten free diet. This is my third day now. Is it worth trying? Could I be celiac? Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

Hi Adam,

The gluten-free diet is not going to hurt you, so why not? Gluten-free is a very healthy diet if you stick with whole foods and not many processed foods. Your celiac test may not have shown anything if you are early in the damage process, plus younger people tend to heal faster. If you do gluten-free for 3 or so months, and then do a gluten challenge, it should cause some kind of symptoms if there is a poblem. That is using your own body as the test intstrument, vs the doctors tests. Keep in mind there are 300 symptoms of celiac spread around all parts of the body. So you may have headaches, rashes, GI symptoms, joint aches, brain fog, muscle aches etc as a symptoms and not always think they are gluten related. Allergies and gum problems tend to be worse too. People also sometimes report having worse GI symptoms after being off gluten for a while and then being re-exposed. There is also something claled NCGI that isa gluten reaction but there are no tests for it right now.

http://Non celiac wheat sensitivity article https://www.celiac.com/articles/23033/1/Non-Celiac-Wheat-Sensitivity-It-Exists/Page1.html

adambryant Explorer
adambryant
Posted
  • Author

Yeah, think ill stick to it, as when I ate rice (no gluten) my bloating was never as bad. Thanks for your feedback!:)

nvsmom Community Regular
nvsmom
Posted

My kids tested negative but have some symptoms, and since I'm celiac, we thought the same thing as you: why not try gluten-free... it can't hurt. :)

I hope you feel better gluten-free. With your family history, I think it's a wise choice you've made. :) Good luck.

adambryant Explorer
adambryant
Posted
  • Author

Did it decrease the symtoms of your kids? Hopefully it did!

Thanks a lot anyway!:)

nvsmom Community Regular
nvsmom
Posted

So far it has decreased some of my boys' symptoms: My 5 year old used to visit the bathroom up to 8 times a day, and often during a meal. He's down to a couple of times a day now. My 10 year has noticed a decrease in his stomach pains and headaches andI've noticed that he is able to concentrate better on his school work and he's gained a couple of pounds; we're hoping it will impact his growth in a positive way as his growth has really slowed down and his 8 year old brother is now taller than him.

Best wishes. :)

Cara in Boston Enthusiast
Cara in Boston
Posted

You can be gluten intolerant and all the tests will be negative. The most important test is to try the diet yourself. Try to do it for 3 months and take it very, very seriously (no cheating). Sometimes it takes a while to notice that you are feeling better. I found that keeping a journal (just a calendar will do) and tracking your symptoms helps. Then, if you suddenly start having symptoms again, you can usually trace it back to a mistake you made (mine was my vitamins.) When I went gluten free (positive blood test but negative endoscopy) some of my symptoms went away right away, while others took several weeks.

My son had negative blood tests, but a positive biopsy. The tests are confusing and not accurate. You are making the right decision.

Stick with it, it is worth it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


adambryant Explorer
adambryant
Posted
  • Author

Thankyou:) ill definitely stick it out.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,162
    • Most Online (within 30 mins)
      7,748
    Jean Kemling
    Newest Member
    Jean Kemling
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • trents
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By trents · Posted

      A lot to think about here. Does anyone have any recommendations for third party laboratories that will do full panel celiac screens private pay in the U.S.?
×
×
  • Create New...