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Celiac Disease?

camanda

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camanda Newbie
camanda
Posted

Hey guys. So I have a few questions. I haven't been diagnosed with anything or even seen my Dr yet, but I'm kinda thinking I have this disease. I'm doing my own research since my Dr kinda just shrugs off all of my concerns. I just need her for the referral lol. Anyways, I'm hoping you guys will be able to share your opinions with me on wether or not you think this is Celiac.

About 3 months ago I started getting terrible cramps every few nights after dinner. I'd be completely fine all day, then suddenly 20 minutes or so after dinner my stomach would just go nuts. At first I thought I was having really bad luck and just eating under cooked meats so I skipped meat a few nights and it still happens. Ever since I can remember I've had sort of an intolerance to gluten(?).. pasta, potatos, rice, bagels, muffins and pizza. In the middle of eating those things my throat just swells up and I have to take short shallow breaths but I don't freak out cause I'm use to it. I wake up at 7 and am ready for a nap by 9. I often dread eating because I know that it'll make me sluggish right away. My stomach constantly makes really loud gurgly noises even when it's not cramping and it's really embarassing.

btw I'm a 24 yr old female.

Please help me with this!

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shadowicewolf Proficient
shadowicewolf
Posted

hun, if your throat swells up, that is an allergic reaction. That is not normal and can be life threatening.

VeggieGal Contributor
VeggieGal
Posted

Hi, I don't know if you have celiac, you really need to ask for blood tests but make sure youre still eating gluten.

With regards to the throat swelling...I get that from my levothyroxine medication, milk and cheese..so looks like an allergic reaction for me with lactose or something which I'm getting checked out.

You need to see your doctor. Good luck

camanda Newbie
camanda
Posted
  • Author

The throat swelling only lasts for no more than 45 seconds at a time and It's really been happening forever so I've never taken it seriously. I will see my doc about that but I was really to hear something about the random stomach crazies. They jist came out of nowhere and it only ever happens late in the evening with sudden onset of serious serious cramps.

GFinDC Veteran
GFinDC
Posted

Hi Camanda,

Digestive symptoms can be pretty erratic with celiac disease. You may have celiac or some other condition. If you are going to get tested please keep eating gluten as you normally would until the testing is completed. After the testing you can try the gluten-free diet and see if your symptoms improve.

mommida Enthusiast
mommida
Posted

Is it food getting stuck in your throat? Is it difficult to swallow?

Get an appointment with a gastroenterologist. Unfortunately Celiac Disease and Eosinophilic Esophagitus present with a lot of the same tummy troubles. There is also a connection for an individual to have both disorders. Both would require an endoscopy with biopsy for diagnoses. (start with the Celiac panel blood tests)

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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Contact them.
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