Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Finished The Endoscopy, What A Breeze!


guest134

Recommended Posts

guest134 Apprentice

Wow, I cant believe I was freaking out about it, I couldn't even remember half of it, way too easy.

As for the results he said my intestines looked perfectly healthy, no visual signs of inflammation or ulcers or any of that sort. He took 5 biopsies and I will get the results in 3-4 weeks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



VeggieGal Contributor

Hi toworryornottoworry, really glad your experience wasnt unpleasant and thats brill theres no obvious signs of any damage :-) .

I must say I'm dreading mine on the 3rd January. Take it you had sedation? When will you get results? At least you can now chill and enjoy the holidays :)

Celiac Mindwarp Community Regular

Good when it is done, isn't it :)

Let us know how it goes. Are you gluten-free now?

guest134 Apprentice

Yeah I had sedation, I can't for the life of me remember much after that second needle. The biopsy results come back in 3-4 weeks. Seriously, don't worry about the endoscopy I couldn't believe how easy it was, I slightly remember them taking it out and I said "That's it?". All I had was IV sedation and some sort of throat spray.

I am not gluten free, I don't have symptoms so I don't intend really on doing so unless the biopsy comes back positive. I will consider a trial regardless in the New Year but for now I just want to relax for the holidays and not think of all this.

VeggieGal Contributor

Ahh thats brilliant news :) . What brought you here then if you have no symptoms?...well fingers crossed for a good result.

I had an endoscopy about 2 yrs ago but I was never given an option of sedation..I just had this banana tasting throat numbing spray..they then got this pipe about half way down and I started gagging so they stopped the procedure.

Just hope they nearly knock me out this time ..but must admit I am abit of a wimp!

Happy Holidays :)

Celiac Mindwarp Community Regular

nottoworry for now then :) have a great holiday.

(VeggieGal, you should be able to choose throat spray or sedation (UK). The gagging with throat spray is normal and they should be able to talk you through. Maybe phone in advance and check the proceedure where you are. Going for the knock out should be fine, just take someone with you after as you can be a bit spacey :) )

VeggieGal Contributor

Thanks CMW....hope I'm very spacey!! I'll give em a call...be better than me worrying all Christmas.

Happy hols :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



guest134 Apprentice

I would say shop around for a gastro then, I forced my regular doctor to let me choose mine after reading reviews. This guy was very well versed on Celiac, if I have it I know he would find it.

What brought me in was a very slow recovery from Salmonella this summer, although I am better now it took quite a while. I demanded to be tested for Celiac and my TTG came back 16 (neg under 10). Now the thing is that infections can raise these numbers but I figured I should be extra safe and make sure this is the case, hence the biopsy.

I have to admit I would be decently upset to hear I have Celiac, simply because eating gluten doesn't bother me. If I was getting sick like most Celiac's then I would have no problem starting the diet, but it is difficult to do it as an asymptomatic Celiac. Would have no choice though as I don't feel like taking the chance on other A.I's or associated gastric cancers.

VeggieGal Contributor

I would say shop around for a gastro then, I forced my regular doctor to let me choose mine after reading reviews. This guy was very well versed on Celiac, if I have it I know he would find it.

What brought me in was a very slow recovery from Salmonella this summer, although I am better now it took quite a while. I demanded to be tested for Celiac and my TTG came back 16 (neg under 10). Now the thing is that infections can raise these numbers but I figured I should be extra safe and make sure this is the case, hence the biopsy.

I have to admit I would be decently upset to hear I have Celiac, simply because eating gluten doesn't bother me. If I was getting sick like most Celiac's then I would have no problem starting the diet, but it is difficult to do it as an asymptomatic Celiac. Would have no choice though as I don't feel like taking the chance on other A.I's or associated gastric cancers.

Don't think we really get the chance in the UK to shop around but I may be wrong.

I never really had any major stomach problems until I went off gluten for 4 weeks then when I went back onto eating it... booom did I notice it!! (reason I had endoscopy 2 yrs ago was due to acid reflux/bloating which at the time I thought was caused by fatty foods ie cream cakes!) My issues this time were mainly achey arms, headaches, brainfog, rash, mouth ulcers and extreme tiredness but I never knew what celiac was and just thought it was how my body normally should be.

Well good luck with results :)

guest134 Apprentice

Wow, just realized I misheard the biopsies taken. The G.I took 15 not 5, just noticed that on my follow up sheet. That is very comforting, I feel like if I have Celiac he will definitely find it, thank God I have such a determined G.I. He was very knowledgeable on Celiac and the implications of ignoring asymptomatic disease, was kind of morbid though. Went on a long rant about how asymptomatic's think they can eat it once in a while and he had a patient that after decades of cheating got an incurable form of Celiac related gastric cancer.

Does anyone else notice that the specialists are always the most morbid and matter of fact? I would assume being the top G.I in my city that this guy is diagnosing at least one death sentence a week, I suppose that would make anyone extremely depressing and morbid after all those years.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.