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What Do You Use For Shampoo?

RPM

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RPM Apprentice
RPM
Posted

Last I knew, Suave & Garnier Fructis were the two that a lot of people used...are they still fine?

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rosetapper23 Explorer
rosetapper23
Posted

I only use shampoos and conditioners from Desert Essence Organics and EO (Essential Oil). Both are made with organic essential oils, and there is NO gluten to worry about. I get Dermatitis Herpetiformis on my face, so it's essential that my shampoos be absolutely gluten free.

sora Community Regular
sora
Posted

I still use Garnier products.

jebby Enthusiast
jebby
Posted

I am very sensitive and have used Dove products for years without any issues.

NJceliac Apprentice
NJceliac
Posted

So is Everyday Shea, Beautifulcurls, Kinkycurly brands, all available at WholeFoods. Kinkycurly available at Target as well.

pinkdahilia2525 Newbie
pinkdahilia2525
Posted

I am waiting for a blood test to tell me if I have Celiac Disease. But I am pretty sure what the result is going to be. I already have two other auto immune disorders. I have had to use Dove products for body wash for years. I have been having problems with my hair falling out and my head hurting and I had no idea it could be caused by the products I was using on my hair not being gluten free. Are there any other brands I can use for hair stuff and how do you tell?

Takala Enthusiast
Takala
Posted

The Dove products are okay (for gluten). The celiac itself can cause you to be losing hair, and the resulting non- absorbing of nutrients because of damage to the lining of the gut can play havoc with skin and hair quality. Thyroid problems can also cause hair loss. Going gluten free can result in your hair coming back in thicker (mine did).

You can get a rash from ingredients other than gluten (or cross contaminated oats used in some brands), it is not always the gluten. I have to be really careful because I have super sensitive skin, and a sensitive pet with allergies who can react to licking my hand if I use the wrong lotion. This is why I tend to not use commercial hair conditioners, which can leave a residue. Instead I use water and pure apple cider vinegar for a detangling rinse, followed by a bit of pure coconut oil or shea butter.

People tell by reading the labels for the obvious, checking websites for updated information, (doing a search on "gluten free name of product") and contacting the manufacturer and then posting results .... some companies are good about calling out allergens on the labels.

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CarolinaKip Community Regular
CarolinaKip
Posted

I use Johnson and Johnson baby shampoo and Garnier conditioner.

cavernio Enthusiast
cavernio
Posted

I use Live Clean products including shampoo, conditioner, handsoap and moisturizers. Their website claims that all of their products are gluten free, despite nothing on the outward label. I have only seen them on the market where I live, Eastern Canada, for a couple of years. I was surprised to see that WalMart carried a whole slew of their products, but I originally bought their pump handsoap because it wasn't antimicrobial and was vegan. I found it at Sobeys.

I just bought Green Beaver shampoo and conditioner to try out (the cranberry smells so nice, which is a plus since I dislike or get nauseated by so many other smells) as it is labelled gluten free as well. This brand I could only find at my local organic store however. But it's canadian and also appears to create a bunch of other products including gluten free toothpaste.

I don't usually think of myself as having sensitive skin, but the most recent lip balm that I bought (gluten free of course) made the area around my lips break out, and the very natural deodorant I just bought to try out (smells nice) make my armpits itchy. The only ingredient I can fathom that I react to in that deodorant is the shea butter.

I've had dandruff issues since I was about 10, and I still have dandruff although I was hoping being gluten free and using gluten free shampoos would have resolved that. It's the really itchy kind that makes scabs that sorta stick to the scalp and feels much worse if my scalp is oily. It hasn't improved in 6 months. I have to occasionally use Nizoral (the only antidandruff shampoo to have ever had any noticeable effect to me) to keep it at bay. I haven't checked the gluten status of Nizoral.

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  • Posts

    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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