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Sore Tongue, Thirst, Loss Of Bladder/bowel Functio

lorka150

By lorka150
in Coping with Celiac Disease

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lorka150 Collaborator
lorka150
Posted

Hi everyone,

I've been gluten free since late August and noticed some significant changes (note: SOME... But enough to motivate me!).

I've noticed a few things. My tongue is raw on the sides (not the top... And it's not coated). Does anyone get that?

Also, I have extreme thirst, so I pee constantly... But when I have to go, I HAVE TO GO. I'll pee right in my pants, there is no stopping. All of a sudden it is there and needs to be done immediately.

As for bowel, I notice sometimes it just 'comes' out. Does that make sense to anyone?

Hopefully someone will read this and be like, "Yeah, I know what you're talking about!"

Thanks!

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tarnalberry Community Regular
tarnalberry
Posted

Between the urinary and bowel urgency, I might suggest talking to your doctor about pelvic floor issues. Pelvic floor exercises help many women with bowel incontinence, as well as the urinary incontinence. (It's the same muscle that runs along the urethra and anus, but different sections of it can be weaker, so you don't always get both incontinences, but can.)

The extreme thirst also makes me ask if you've been tested for diabetes recently? That is a major warning sign.

Nantzie Collaborator
Nantzie
Posted

Nope, you're not the only one. I've had the bowel movements just coming out too. It's awful. I haven't had an accident in public yet. But I'm a SAHM, and my bathroom is like 6 feet away. But there are times when I have to practically push my kids out of the way to get there in time. When I do go out in public, I either go by myself after my dh comes home or go with a friend of mine, so I can run (!) to the bathroom when I need to.

I had heard that there are kegal type exercises for bowel problems too. I'm planning on asking my doctor about that at my next appt, but I'm first going to have to approach the celiac issue, and I have no idea how that's going to go. So I might not be able to ask until later on. I've also heard that that can happen from having an intestinal parasite called giardia (I think that's what it was called) so I'm going to ask about that too. I know they can run a test called ova and parasites to check for anything like that.

I got invited to go to Europe recently, and I turned it down. Mostly because my kids are too little to take and too little to leave behind. But in the back of my mind, I was like, there is no way I'm going to be able to even handle to plane ride. I'd be so worried about having an accident that I'd probably give myself an upset stomach just from the stress. And then there's the insanely long lines at the bathrooms in all the tourist places. I'm very lucky though because my husband's mom was born and raised in Germany and there is a family trip over there every couple of years where we stay with her brother and his family. So at least this chance to go to Europe wasn't my only chance to go.

Nancy

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