Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Unsure About Getting Tested

julissa

Recommended Posts

julissa Explorer
julissa
Posted

I hope to get some advice about getting tested for sensitivity. Here's my story, I have had terrible symptoms for a little over a year of nausea/diarrhea/dizziness. I had no idea what it could be, went to several docs including 2 GI docs. was given every test that was recommended, including a biopsy. every result came back normal, nothing was wrong. okay, why am I still n/d/dizzy? every doc said the same thing.

did some research, found this board, and decided to give gluten-free a go, as it was like reading my own story. I did and for the first month or so had never felt better. I also went dairy free, looking back probably shouldn't have, but it is what I did.

I will add that the only time in that first month I felt signs of the dizziness coming back was when I baked with flour. I didn't eat anything, but since found out that that can cause a glutening. I believe that gluten caused the dizziness, but now am left with a bit of nausea on and off, possibly caused by other intolerances. but how to find out?

after a month I had some gluten-free pizza, which had cheese on it. felt sick with only nausea (no dizziness) the next day and several days afterwards. I don't know if it was cc or the dairy. ever since then have not felt as great as I did for the first month. at this point, I don't know if there is any testing I can do for food sensitivity.

any advice would be much appreciated, it is getting to the point that I am almost afraid to eat.

and happy new year!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


julissa Explorer
julissa
Posted
  • Author

oh also, not sure if it's relevant, but I was told I have a hiatel hernia.

julissa Explorer
julissa
Posted
  • Author

just bumping this to see if anyone might answer. I have been doing some research and am looking into (Company Name Removed - They Spammed This Forum and are Banned) and entero. (Company Name Removed - They Spammed This Forum and are Banned) is right near my house.

just looking for anyone's input.. thanks

julissa Explorer
julissa
Posted
  • Author

okay, I guess I am not supposed to ask about testing, I see the names have been removed. so sorry, I didn't know.

mushroom Proficient
mushroom
Posted
  On 1/2/2013 at 6:14 PM, julissa said:

okay, I guess I am not supposed to ask about testing, I see the names have been removed. so sorry, I didn't know.

It's nothing personal. Once the board has been spammed, there is a program that automatically removes the name of a spammer and substitutes that sentence.

However, there is a board rule against bumping posts; please do not do that again.

As to your question, there is food testing available through an allergist, but first you might try just the total elimination of dairy as well as gluten since if you do have a damaged gut you will probably have problems digesting dairy products (even though there was no villous atrophy found on biopsy they have been known to miss the afffected areas and give a false negative). The damage done to the small intestine also destroys the ability to produce the enzyme for digesting lactose.

Several companies offer stool testing. You can either order this yourself or it can be ordered through a naturopath. The results are not recognized by doctors as there has been no peer-reviewed research as to their validity in diagnosing celiac.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,025
    • Most Online (within 30 mins)
      7,748
    kdking61
    Newest Member
    kdking61
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • KimMS
      Gluten free thyroid medications

      By KimMS · Posted

      Thanks for sharing that site! Do you know if that site has any information about manufacturing/possible cross contact on it? I can't find it. When I have called manufacturers, most of them say they can't guarantee no cross contact in manufacturing (except Lannett, Mylan and possible Amneal, which aren't available near me).
    • Diana Swales
      Recently qualified Nutritionist looking for support

      By Diana Swales · Posted

      After years of living with Celiac Disease, learning through every bump and breakthrough, and guiding others through the gluten-free maze — I've officially qualified as a **Nutrition Coach** with Precision Nutrition. Now I’m ready to take this journey deeper… but I need your help. To complete my final certification hours, I’m offering **a limited number of FREE spots** (yes, completely free!) to work with me over the next few weeks. I’m looking for **5 people** who: Are newly diagnosed with Celiac Disease or gluten-intolerant Feel overwhelmed, confused, or frustrated with food Want support from someone who truly understands Are ready to build confidence and calm in their daily eating We’ll...
    • Dora77
      Possible cross-contamination – concerned about symptoms

      By Dora77 · Posted

      Hi everyone, I have celiac disease and I’m asymptomatic, which makes things more stressful because I don’t know when I’ve been glutened. That’s why I try to be really careful with cross-contamination. For almost a year, I’ve been having yellow/orange floating stools consistently. I’m not sure if it’s related to gluten exposure or something else going on. I’ve been trying to identify any possible mistakes in my routine. Today, I made myself some gluten-free bread with cheese. Normally, I’m very careful: I use one hand to handle the cheese packaging (which could be contaminated, since it’s from the supermarket and was probably sitting on a checkout belt that had flour residue)...
    • Mswena
      Lubriderm-gluten-free?

      By Mswena · Posted

      So eight days in a row of gluten on top of gluten on top of gluten, I just had to resort to the EpiPen. I wish I could post a picture because you wouldn’t believe how enormous my gut is! It makes my head look like a pinhead.Ahhhgggsahhhhh!!!! I have discovered that I have to read the ingredients when I use a product up that I’ve been able to use without getting a reaction, because they can change the ingredients and bam my toothpaste now has gluten!!! my doctor told me gluten free means it has 20 ppm which someone with a severe a celiac as I’ve got that thing there kills me. I try to find certified gluten-free in everything. I can’t eat any oats unless it’s Bob’s red mill...
    • Mswena
      Lubriderm-gluten-free?

      By Mswena · Posted

      I have been using a little bit of Lubriderm when I wash my hands because it’s the lotion offered at a place I frequent once a week. Assuming it was gluten-free I bought a bottle. I couldn’t figure out why I was getting gluten EVERY night. I use a little of the lotion in the morning on my neck, with no reaction, but at night, I use it on my arms and legs and face and get gluten gut pretty bad. After eight nights of having to have diphenhydramine injections for severe gluten, I googled “is Lubriderm gluten-free” and it led me to this forum. I am going to go back to olive oil as I have been gut sick sooooooo bad with a huge gut and pain eight days in a row now. Sick of feeling sick.
×
×
  • Create New...