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designerstubble Enthusiast
designerstubble
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Wooah, 43 years undiagnosed? That's rough. Is that perhaps why you are taking longer to heal?? You are so positive, actually an inspiration... How did you get through that first endo being told that you hadn't healed. Its my nightmare ( I've become a real pessimist these last few years, prob celiac related). Respect to you, seriously.

So is this why you have cut out so many other foods? If you are intolerant to say soya for example and it gives you gi symptoms... Does this also cause gut damage? Or is it that it doesn't allow the gut to heal because of the inflammation? (I was doing well until Christmas where I somehow lost the plot and started consuming gluten-free kettle chips like crazy! Ok to start with, but then I had a few slices of gluten-free bread, and a few choc mints... Bang! Oooooh my poor guts. Why did I do it. I've undone all my good work. And now have come in random rashes etc. what an idiot eh?) back on my meagre simple diet... Hopefully get back to a happy gut in a few weeks.

Thanks for your posts, and answers, and advice.

One last question. How do you get on with life? As in... How do you let celiac NOT consume life. I'm too paranoid to even go out for a wine with friends. I've become a paranoid food obsessed hermit, stalking the celiac forums, unable to share normal conversation with my nearest and dearest, scouring my kitchen for crumbs, perusing google unsuccessfully for evidence that I'm unlikely to get lymphoma!! I just want to forget it all for a week and not care that my guts hurt, that I can't have nice fatty evil lump of cheese, or a nice cup of tea! Oops, dunno where that came from, ohh the frustration. Aaaaaggghh! :)

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designerstubble Enthusiast
designerstubble
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Well now GFinDC, must admit you've made me laugh!!! Thank you!

Google university!! I'm there now, it's a tough course! Anyway, you saw Dr Fasano? Thanks for the link btw, I've got major brain ache as I have just spent the last 2 hours reading up on him via my cell, and my eyes are crossed now. ;)

Very verrrry interesting indeed! The pregnancy fits for me, had my son 6 years ago (and 2 miscarriages within 14 months after that), followed by noro virus and a severe bout of rotavirus! This was also a time of quite severe personal stress (not inc the pregnancy thing)... So I guess it could've been that. Just wish I could remember when bread started bothering me.

I'm interested... The cat meowing??!! Totally awesome! Obviously not that you were sick etc but, hey... animals and their senses.

So how long have you been gluten free? This food intolerance thing keeps cropping up, what kind of stuff did you cut out? 4.5 years eh? Did you actually have repeat endo's to know you we're still damaged or not? Or was just that you still felt rough with symptoms?

As for grapes?? How did you get to that one??! Is fruit a common one? Do you drink wine?

I'm so nosey, sorry :)

So what I'm really very interested in is this leaky gut. Dr F (so far in my 2 hour research) hasn't explained how to heal it! I fell off the wagon for a few days over Christmas (nothing major, chips and a few chocs and a bit gluten-free bread)... I'm now paying the price for it as I've come up in hives and itches etc... I reckon I have leaky gut.

I must unleak this gut of mine. You are right there are many bogus nasty people trying to make a buck from quick fixes.

But what's the truth? Can you heal a leaky gut? Obviously removing gluten is not enough for some of us. What have you done to feel normal? I want to be normal (never thought I'd say that!)

Where are you from GFinDC?

England has some great history, parts of it are beautiful... But the weather is too cold for me (I'm actually British born but half Spanish, half Hungarian and believe that I don't belong in this country having previously lived in the Spanish mountains for 6 years!)

And thank you for your time once again, I can't tell you what it means to have such support. Sincerely. :)

GFinDC Veteran
GFinDC
Posted

Well now GFinDC, must admit you've made me laugh!!! Thank you!

Google university!! I'm there now, it's a tough course! Anyway, you saw Dr Fasano? Thanks for the link btw, I've got major brain ache as I have just spent the last 2 hours reading up on him via my cell, and my eyes are crossed now. ;)

Very verrrry interesting indeed! The pregnancy fits for me, had my son 6 years ago (and 2 miscarriages within 14 months after that), followed by noro virus and a severe bout of rotavirus! This was also a time of quite severe personal stress (not inc the pregnancy thing)... So I guess it could've been that. Just wish I could remember when bread started bothering me.

I'm interested... The cat meowing??!! Totally awesome! Obviously not that you were sick etc but, hey... animals and their senses.

So how long have you been gluten free? This food intolerance thing keeps cropping up, what kind of stuff did you cut out? 4.5 years eh? Did you actually have repeat endo's to know you we're still damaged or not? Or was just that you still felt rough with symptoms?

As for grapes?? How did you get to that one??! Is fruit a common one? Do you drink wine?

I'm so nosey, sorry :)

So what I'm really very interested in is this leaky gut. Dr F (so far in my 2 hour research) hasn't explained how to heal it! I fell off the wagon for a few days over Christmas (nothing major, chips and a few chocs and a bit gluten-free bread)... I'm now paying the price for it as I've come up in hives and itches etc... I reckon I have leaky gut.

I must unleak this gut of mine. You are right there are many bogus nasty people trying to make a buck from quick fixes.

But what's the truth? Can you heal a leaky gut? Obviously removing gluten is not enough for some of us. What have you done to feel normal? I want to be normal (never thought I'd say that!)

Where are you from GFinDC?

England has some great history, parts of it are beautiful... But the weather is too cold for me (I'm actually British born but half Spanish, half Hungarian and believe that I don't belong in this country having previously lived in the Spanish mountains for 6 years!)

And thank you for your time once again, I can't tell you what it means to have such support. Sincerely. :)

Hi DS,

I guess we might as well support each other. At least we know what it's like to live with this condition, whereas other people don't. Dr. Fasano has a relation to a company working on a drug to treat leaky gut. It's still in testing I believe. Alba Theraputics.

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My food intolerances are listed in my signature. But basically nightshades, dairy and soy plus grapes are the biggies for me. They didn't seem to all hit at once though, but developed over time. Some of them seemed to get much worse over time, like soy. I did a series of elimination diets to find my intolerances. I cut out wine for 4 months a few years ago, but didn't notice any real difference. But I was still eating grapes and raisins. So no wonder, Duh! So last April I cut out all grapes, including wine, raisins, grape jam, grape juice everything. That made a huge improvement for me. Not instantly but over a month or 2. So, no I don't drink wine anymore. It was good while it lasted though! :)

Muffin, my cat, likes to kneed my stomach when my gut is hurting. I don't know how she knows it, but she does.

My opinion is the best thing is to stick to a whole foods diet for awhile, and see how things go. If things don't improve after 3 to 6 months, then it makes sense to look at other food intolerances. It can take 3 to 6 months for people to learn to eat gluten-free in the first place.

I am in Washington, DC, USA. I came here from Ohio though, another state in the US. Spain would be nice to visit. I made it as close as Portugal once, but didn't get to Spain. My ancesters are Irish, English and German though. With a little American Indian thrown in.

We are having a warm winter here in DC so far. Hardly any snow and not too cold. I think it is close to a record warm winter in fact.

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