Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free And Depressed..

lockerbear

Recommended Posts

lockerbear Rookie
lockerbear
Posted

Hi everyone I'm new here and I was just hoping to get some advice on what is wrong with me.

I went gluten free (after being negative for celiac) about six months ago after having a lot of problems and it helped immensely- all of my problems went away, but I got cc'd a few times and then things never got better..

I was becoming intolerant to things i ate a lot and i figured I may have leaky gut so i went on a rotation diet to heal it. I was finally seeing some improvement, but then out of the blue I became constipated. My stomach ballooned up and i felt horrible I couldn't eat because I was so full and eventually i had to take a laxative to get rid of it. Unfortunately though my symptoms have not really gone away

I now have a constant bloated stomach. It doesn't matter if i do or don't eat it will be bloated. When i was having food intolerance problems it would go down if I didn't eat anything I'm sensitive to but now it is always there. It goes from the top half of my abdomen to the bottom. I am not constipated however I feel like I am not completely emptying my bowels...

I also always feel full, i burp a lot when i eat I get flatulence especially when I wake up and after i eat and my food just sort of sits in my stomach. It often comes out undigested

Does anyone know what this might be? I'm really depressed at this point because every time I start getting better something else comes up to bite me... I'm scared that even if i figure this out that something else will happen and it will never end. I have become very underweight since this all started and I'm very scared to go on diets. I've become intolerant to most of the high calorie foods from my leaky gut...

Any help would be appreciated

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaw Community Regular
mamaw
Posted

I can't dx'd you but here is a suggestion.

Have you tried digestive enzymes & Probiotics? I use Digest Gold for my enzyme & I like Dr. O'Hirra probiotic 12 professional formula .. One should not take the same probiotic for a lengthy time but swap to another brand or two .....but to start I like Dr. O'Hirra's.....

just a thought

lockerbear Rookie
lockerbear
Posted
  • Author

I can't dx'd you but here is a suggestion.

Have you tried digestive enzymes & Probiotics? I use Digest Gold for my enzyme & I like Dr. O'Hirra probiotic 12 professional formula .. One should not take the same probiotic for a lengthy time but swap to another brand or two .....but to start I like Dr. O'Hirra's.....

just a thought

Thanks for the reply :) I actually have been taking digestive enzymes for a while now with every meal, but it hasn't made much difference and probiotics haven't either unfortunately =\

1desperateladysaved Proficient
1desperateladysaved
Posted

Make sure you haven't added something to your diet that has agravated gluten or other intolerances. My tummy bloat was constant, next swung form high to low, and currently is debloating. In the meanwhile I have been grain free for 7 months, began digestive enzymes, and vitamin B recently.

I hope you will get it straightened out. I like babies, but I hate to be taken for pregnant when I am not. I guess that would be especially sad for males!

tarnalberry Community Regular
tarnalberry
Posted

You say that you are bloated whether or not you eat, which makes me suggest that you talk to a doctor. There may be non-digestive issues going on which are giving you your digestive symptoms.

lockerbear Rookie
lockerbear
Posted
  • Author

Thanks so much for the replies guys.

I'm not sure if it would be another intolerance or something.. I have been rotating food so I never eat the same thing for 4 days and my stomach is the same every day and the only grain i eat is rice =\ i could try cutting it out though. i did notice i sometimes have reactions to fruit, but most of the time i don't and it can be with low or high fodmaps.. so i don't really know what that means.. I've tried to make an appointment with a gastro as well, but they all just took off for a month for holidays and even though i faxed an urgent referral to them over a month ago i still apparently don't have an appointment.

My ultrasounds and xrays have been fine and I found a really good naturopathy clinic online but they have been closed as well until next week. I have ordered a test for SIBO just recently which I am doing at home (or else i would have to wait 3 months for a test >< so happy they have the at home option) and hopefully that will show something. The only person i've been able to see is a doctor who gave me an antacid, but i just ignored it.. not really looking for any quick fixes. I'm considering going to a gyno as well because my mum told me about something called endometriosis which can (uncommonly) grow on the intestines and honestly (TMI sorry) when i am menstruating the pain is comparable to when my appendix burst inside my stomach... I don't think i have it, but i want to rule everything out since doctors aren't any help. Man I can't believe I thought it was just "go gluten free and get better" doctors should really warn people about this stuff!

Sorry for posting my life story lol! if anyone has experience with anything i've mentioned or any more suggestions for me I'd be glad to hear it =]

JNBunnie1 Community Regular
JNBunnie1
Posted

It is entirely appropriate to check on the idea of endometriosis, that's a good avenue to explore.

Hopefully you get some answers and start feeling better soon!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,902
    • Most Online (within 30 mins)
      7,748
    Patty6133
    Newest Member
    Patty6133
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.