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I Think You're My People!

Madagascar

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Madagascar Rookie
Madagascar
Posted

For 2 months now, I've been reading and commenting on this board, and i have to say how glad i am to have found you all. It's like i've found people who are "my" people!

My first food allergy was at 2 weeks, when my pediatrician had my mom giving me orange juice, and i vomited it across the room. That was the start of the food fun, i suppose. I've had terrible teeth and saw a few posts in the past week about others with that problem, so i looked online and found that celiac is the underlying cause of it! I've been allergic to citric acid since i was about 15 - but never met another person who was. And here there are a bunch of you that have it in your sig lines! Citric acid is evil stuff!

At about that same age, I became lactose intolerant, too. i've been taking digestive enzymes since i found them about 15-20 years ago and no doc could ever explain to me why i needed them to be able to eat - but here there are many people who use them. i've had all these food allergies/intolerances and other than my mom, never known anyone else who also had so many. When I order in a restaurant I have to ask "does this have cinnamon/oregano/basil/thyme/pork/citrus/blah blah in it?" Now I add gluten on to the list. I had the worst acne of almost anyone i knew - and a lot of people here also have skin issues.

I just read someone's post that said they were in their 50's and the first sign that they'd gotten glutened was their face the next morning. YES! I get that face too!

*sigh*

so i know this is a bizarre post but i just had to say thanks for being here. I'm learning so much by reading everyone's posts - so many of my "odd" symptoms seem to be connected to celiac disease. I wouldn't wish this on anyone, but at the same time, am thankful for me not being the only person with all of this stuff. I think people here understand - and after feeling like the weirdest person around, I'm glad for some company living in Food Intolerance Land.

btw, how do you put info into your sig lines?

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psawyer Proficient
psawyer
Posted
btw, how do you put info into your sig lines?

In the upper right corner, click on your username. In the pop-up, click on "My Profile." Click "Edit my Profile." On the left, click "Signature." Don't forget to click "Save Changes" at the bottom when done.

Adalaide Mentor
Adalaide
Posted

I had to come because I laughed when I saw this post. I find myself often mentioning conversations from here to my husband and instead of saying things like "so I was talking to the people on the forums" which takes forever to say I stick with "I was talking to my people" or "my people say" and he knows exactly who I mean. I've been calling everyone here my people probably since I just started coming. :D

mommida Enthusiast
mommida
Posted

Sometimes misery loves company. It was something I could show my kids and say, "Look how many other people have this!!?" You are not alone.

beachbirdie Contributor
beachbirdie
Posted

I had to come because I laughed when I saw this post. I find myself often mentioning conversations from here to my husband and instead of saying things like "so I was talking to the people on the forums" which takes forever to say I stick with "I was talking to my people" or "my people say" and he knows exactly who I mean. I've been calling everyone here my people probably since I just started coming. :D

Your post made me laugh out loud! Very cute!

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    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

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    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
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