Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Headache

Mgyoung77

By Mgyoung77
in Coping with Celiac Disease

Recommended Posts

Mgyoung77 Apprentice
Mgyoung77
Posted

I was diagnosed with celiac November 15. Earlier that week, my OBGYN tested my iron and it was 5.4. After a few days of going gluten free, I could tell a huge difference. My stomach issues and headaches went away immediately. My energy level slowly started coming up. However right before Christmas I started getting headaches again. I thought my iron was dropping due to some female issues. However when I got it checked it had gone up to 10.5, and less than a week later 11. So that is not the cause of these headaches. I have had a headache for two weeks straight now. Medication only provides temporary relieve. Any ideas, suggestions, or similar experiences?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Monklady123 Collaborator
Monklady123
Posted

I was diagnosed with celiac November 15. Earlier that week, my OBGYN tested my iron and it was 5.4. After a few days of going gluten free, I could tell a huge difference. My stomach issues and headaches went away immediately. My energy level slowly started coming up. However right before Christmas I started getting headaches again. I thought my iron was dropping due to some female issues. However when I got it checked it had gone up to 10.5, and less than a week later 11. So that is not the cause of these headaches. I have had a headache for two weeks straight now. Medication only provides temporary relieve. Any ideas, suggestions, or similar experiences?

Are you 100% sure that you've been gluten free? For me the headache is the first sign that I've been glutened. I would suggest taking another look at everything -- your kitchen prep stuff (cutting boards, knives, etc.), toaster, toaster oven, foods you might not have thought of such as regular Rice Crispies which clearly have no wheat in them but are sweetened with barley malt. Stuff like that. Good luck. :)

cavernio Enthusiast
cavernio
Posted

Ditto on looking over everything and everywhere you eat for gluten.

I get headaches when I eat too much tyramine. It's high in cured meats, nuts, aged cheese and pickles and probably a few more things. Some people here follow a very strict low tyramine diet; I don't but my headaches have improved a fair bit and I know I should avoid eating all those foods in one day.

Either low zinc or magnesium can be a cause of headaches, (I forget and I learned about this from when I looked up why pms causes headaches and I remember those 2 minerals being involved) and if you're supplementing with iron your body might be absorbing more iron instead of either of those elements because apparently that's how metal absorption works, all of them using the same method of absorption or something.

KMMO320 Contributor
KMMO320
Posted

Besides stuttering and word slurring, headaches are the first indicator for me that I ate gluten. Tonight, in fact, I came home from the gym with such a headache, I had to lay down. Then the nausea.My husband kept asking me what did you eat? I said, just because I have a headache doesn't mean it's gluten! I ate good today ( I am still fairly newly diagnosed and have a bad day maybe once a month, hopefully never again though) I had yogurt and a banana, and then some gluten free chicken tenders and sweet potato fries. He was like well, maybe the chicken tenders are not really gluten-free. SO, to indulge him, I looked..well, they were certified gluten-free..but...I looked at the bag of sweet potato fries...Ore Ida..and there in the ingredients COntains; WHEAT! DOH!! I really feel stupid. I am so used to eating regular frozen fries with no problem, I just grabbed the sweet ones thinking they would be fine. I am so mad at my stupidity. I threw them right in the trash,because no one else will eat them, and here I sit achy, and sick :( SO, it could be non gluten related, or there could be traces you have not thought about :(

Mgyoung77 Apprentice
Mgyoung77
Posted
  • Author

I don't think it's from gluten. I can think of three occasions where I was glutened and all three times I had tummy troubles from it, not a headache. My husband made gluten free brownies using butter he had double dipped in to.make toast. It took the second time of eating them and getting sick to realize the mistake. The third time I got careless when we had hamburgers and hot dogs. I think some crumbs from everyone else's buns got on my plate somehow. I did eat some tastefully simple garlic 3 weeks ago. I realized after the fact that it was tastefully simple. None of their products are safe. It did not cause tummy troubles, but would it cause a headache to last 3 weeks?

tarnalberry Community Regular
tarnalberry
Posted

My headaches were caused by muscle tension due to poor head posture. Chiropractic, massage, and a lot of work re-aligning my posture is the only thing that made them go away on a permanent basis. (These were chronic, debilitating migraines.)

cavernio Enthusiast
cavernio
Posted

You live in shared house and eat shared meals. Residual gluten could be more diffuse than you think. From what I've read of people's stories here, many people experience full-out attacks when they've eaten enough gluten beyond some sort of personal threshold, but will feel just a little of before that.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KMMO320 Contributor
KMMO320
Posted

I don't think it's from gluten. I can think of three occasions where I was glutened and all three times I had tummy troubles from it, not a headache. My husband made gluten free brownies using butter he had double dipped in to.make toast. It took the second time of eating them and getting sick to realize the mistake. The third time I got careless when we had hamburgers and hot dogs. I think some crumbs from everyone else's buns got on my plate somehow. I did eat some tastefully simple garlic 3 weeks ago. I realized after the fact that it was tastefully simple. None of their products are safe. It did not cause tummy troubles, but would it cause a headache to last 3 weeks?

My biggest symptoms of glutening are headaches, which usually turn into full-on migraines. I get dizzy, and I start to stutter and slur my words. Then, I get nauseous, and then have stomach distress usually the next day.

alesusy Explorer
alesusy
Posted

MyYoung, I don't know if this can help. If drugs don't do much, they might be tension headaches. Tension should ease goin gluten free, but there are relaxation tecniques that can help anyway. I mention this because I was really scared after one continuous month of headaches, and I felt much relieved when my dentist showed me where it was coming from.

Is your headache mounting up from your neck, or is it around your eyes or one of your eyes, or around the temples or on the forehead? In all these cases it might come from tension in your jaws. Try touching the point on your cheeks where the lower and superior jaws meet, and press with your fingers. Aching?

(I don't have headaches any more now but my jaws are still aching if I press them like this).

alesusy

Mgyoung77 Apprentice
Mgyoung77
Posted
  • Author

MyYoung, I don't know if this can help. If drugs don't do much, they might be tension headaches. Tension should ease goin gluten free, but there are relaxation tecniques that can help anyway. I mention this because I was really scared after one continuous month of headaches, and I felt much relieved when my dentist showed me where it was coming from.

Is your headache mounting up from your neck, or is it around your eyes or one of your eyes, or around the temples or on the forehead? In all these cases it might come from tension in your jaws. Try touching the point on your cheeks where the lower and superior jaws meet, and press with your fingers. Aching?

(I don't have headaches any more now but my jaws are still aching if I press them like this).

alesusy

It is difficult to describe. When I first wake up or when it first starts later in the day, my head feels fuzzy inside. It starts out as a minor annoyance. If I do net take something it gradually turns into a very painful headache. It hurts on top of my head and my forehead. Medicine does give temporary relieve.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    2. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    3. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
    4. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much...
    5. Scott Adams
      0

      Häagen-Dazs Chocolate Dark Chocolate Mini Bars Recall Due to Undeclared Wheat and Gluten

  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,076
    • Most Online (within 30 mins)
      7,748
    Deb baker
    Newest Member
    Deb baker
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      KAN-101 Treatment for Coeliac Disease

      By Russ H · Posted

      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.