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Need Help With Sibo In Kids--Input?


mamaupupup

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ALE143 Newbie

Thank you so much for sharing... we struggle with my daughters diet but it has only been 10 months so we are still learning the ropes. 


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Feeneyja Collaborator

These are all low in fermentable carbs, but limit amounts to see what is tolerated (for us, 2 tortillas, two biscuits, one sandwich round) and don't load up on lots of baked goods in a day  I try to limit it to one baked good per day  

Tortilla/ flat bread:  Open Original Shared Link

Sandwich Rounds (good with peanut butter): Open Original Shared Link

Biscuit (these are amazing. Make them sweet and serve with strawberries and coconut cream, savory and make sausage sandwiches, etc):

Open Original Shared Link

Mermaid's Mom Enthusiast

Oh wow!  I haven't been here in days because I have been POURING over the most recent SIBO literature! 

Have you heard of Dr Nemechek?  Open Original Shared Link

His approach is very simple and essentially you STOP using probiotics and start taking Inulin.  It is all very fascinating and falling in with what we are seeing with our daughter.

In a nutshell he says that the bacteria that has overpopulated is "damaging" the system (second brain).  That they are meant to stay in the colon but start to grow out (for multiple reasons) and expand into areas of the intestines that should be populated by other area specific bacteria.  They slowly take over and expand out further. 

Probiotics feed EVERYTHING and make the SIBO worse and Antibiotics kills EVERYTHING and does nothing to solve the problem either.  There is one antibiotic - Rifaximin that stays in the colon and does not permeate its walls.  Other than that he suggests that you FEED the good bacteria and allow them to thrive and naturally win back the territory.  Inulin is the food that they eat and taking Inulin (Chickory root fibre) will nourish the healthy bacteria. 

3 months ago we stripped away Gluten and dairy and saw HUGE results and then lost them.  We also introduced a very high quality multi-strain probiotic.  Dr Nemechek says that the fact that some people see gains when they go gluten-free/DF because they essentially "starve" the bad bacteria and there is a bit of a dying off.  But it is not fixing the core issue and often you can see food intolerances and symtoms worsen even though you are still gluten-free/DF.  This is EXACTLY the dynamic we are seeing with our daughter.  She is eating AIR but is still in pain and now her Sensory issues seem worse than ever (thanks to the probiotic maybe)?

He also says that the healthy bacteria secrete an acidic compound that kills off the bad bacteria which also explains why some people feel better when they consume ACV.

I find the entire thing fascinating!

 

  • 4 months later...
T-lil Newbie

I am curious whether anyone doing the sibo diet has tried this guide: www.siboinfo.com then click on the sibo specific food guide. Eating the green and yellow only but trying to eat only eat green is best.  Also, I’ve heard it you max out on the food that is restricted you can only eat that one limited food (ex:only eat 1/4 lentils, you can’t add the 1/2 cup of broccoli to that meal or you will end up with bloating, etc).

my naturopath recommended that guide. I did it for a month and a half (I was supposed to continue for another month and a half and am now starting over). I experienced amazing results: no more bloating, so much more energy, etc. I was taking supplements (which I’m not sure a kids can take) as well. This webpage is definitely different than the books I’ve gotten which are low-fodmap and sibo and I feel that for me it made a bigger impact. After I stopped the diet (and ate lots of food not on the diet) it took a month before symptoms started coming back. 

I am also curious as to whether any kids with sibo experience eye pain and redness. My son is 5 and has bad eye pain but the eye doctor said nothing is wrong with his eyes. He has some symptoms of sibo as well (although I haven’t had him take the sibo breath test). He also has multi-colored bowel movementswith undigested food. Half will be yellowish and the other half brown with a very visible line that divides the 2 colors. I had stomach problems for several years before he was born and am wondering if I somehow gave him sibo during pregnancy. 

Mermaid's Mom Enthusiast

My daughter had itchy eyes and redness from SIBO.  We learned about her SIBO at the same time that I stumbled across the Nemechek Protocol for SIBO and it made such sense that we went straight to his protocol to resolve SIBO (which has no food restrictions or special diets) - so while I can't give you feedback on the diets I can tell you that the Nemechek protocol worked wonderfully for us :)

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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