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Please Help! (Year And A Half Problem)


smartwater2222

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smartwater2222 Newbie

Hello,

For about a year and a half now I have been dealing with a lot of itchiness and bumps. I am 22 years old and have had red bumps appear all over my legs, thighs, stomach, etc. At first I had a few times where it was only my fingers, but it has become more severe now and my fingers are normally the last to become itchy and covered in bumps. The elbows also seems to be a common spot for me but not as itchy there. I have attached pictures and could realllyyyy use some help if someone has had similar rashes and has since then found out what it was. I have been to doctors and they have told me general allergy to swimmers itch to random other things but none of them were 100% sure. Please please please let me know if you can help!!!! Thank you so much!!!!


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Dukebanta Newbie

I have recently been diagnosed with celiac. Many doctors visits leading to the diagnosis all for the wrong thing. I get very itchy when I have a reaction. I will prevent me from sleeping it's so bad. I would also get some skin reaction but no full on rashes. Once I cut gluten thing improved drastically. But even as I write this I am once again struggling with itching. I also think partly because I finally figured out that I was chronically dehydrated because of the damage to my intestines. To counter that I started salt tablet and pedialite in addition to water which helped alot. Many of my diagnosis were as a result of web research. My doctor has been very supportive as well. I inform him of everything I do because it seems like there are dangers to everything including drinking too much water without adding electrolytes.

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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