Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Australian Cd Sufferers

toxemicfrog

Recommended Posts

toxemicfrog Rookie
toxemicfrog
Posted

hi there

was just wondering how many site members are aussies.

I am in coastal queensland ( and loving it).

Drop a line to say gidday!

Have a great day :P

  • 2 months later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest olenkae
Guest olenkae
Posted

Hez there!

I am not Australian...but spend most of my time inBrisbane, Australia.

Flying back to Oz in a few days - I can't wait! I love Australia!

If you wanna get in touch - here I am.

Cheers,

Alex

hi there

was just wondering how many site members are aussies.

I am in coastal queensland ( and loving it).

Drop a line to say gidday!

Have a great day :P

  • 3 weeks later...
Matthew Newbie
Matthew
Posted
Hez there!

I am not Australian...but spend most of my time inBrisbane, Australia.

Flying back to Oz in a few days - I can't wait! I love Australia!

If you wanna get in touch - here I am.

Cheers,

Alex

Hi, I have just joined, originally thinking I was just allergic to wheat, I am now getting tested for caeliac disease

I am from Brunswick 6km North of Melbourne Australia

kenyan Rookie
kenyan
Posted

Hi Matthew.

I have also just joined, and live in Melbourne.

Where your sysmptoms similar to this?

I have been "struggling" with an illness (??) for as long as I can remember. I am now 35, married with beautiful 2 year old twins. For more than 20 years I have seeing various Doctor with the following symptoms:

Cronic tiredness

Night terrors

loose bowel movements after most meals (although I have only just tomld my current Doctor this due to be not thinking it was relevant (IDIOT!!)

It is also interesting to note that I matured later than most of my peers (I was about 18 when I had my main growing spurt).

I have owned and operated my own business for the past 6 years and more often than not I have been struggling with motivation, tiredness, lack of energy, concentration, anxiety. I often, due to the tiredness feel like I am wasting away my life. This has an enormous effect on me both from a business point of view and a personal satisfaction point of view. My confidence is at an all time low.

Some of the attempted solutions offered by Doctors have been:

ADHD and prescribed ritilin10

Depression and prescribed Zoloft

Haemochromotosis (did not have the gene!)

Neither of these had any positive effect on me at all. Two days ago, my wife heard an interview on the radio about the effects and symptoms of Celiac desease and suggested that I do some research. EVERY THING I have read makes perfect sense to me.

My Doctor, who I have been seeing for over 2 years order me a blood test today, which I did. I am expecting to have these results early next week.

I would like to know if any of my symptoms ring true with any one else?

In a bizarre sort of way I am hoping that the blood test and biopsy are both positive so I can get on with actually working out a way to feel better. If this happens, what can expect to occur and in what time frame?

thanks

  • 1 month later...
dragonfly Newbie
dragonfly
Posted

G'day! From Sydney :) I have a son with celiac disease and also a S.I.L and Nephew - my hubby and I are endevouring to follow gluten-free too for the sake of our son, and for our own health as we find we feel much better overall on it.

  • 1 month later...
olenkae Newbie
olenkae
Posted

Hi Matthew,

I just read your post and even though you sent it ages ago I thought I'd reply.

I have experienced similar symptoms as you and felt miserable for many many years. My life seemed so unbareable for me as a result of which I felt suicidal many times. Life was a real struggle...

At the end I was prescribed Lexapro for Depression and Depakine (Depakote) for mood swings (they suspected I was bipolar). This helped me a lot to maintain my emotional stability, enthusiasm and courage.

I never had problems with my guts. I mean - sore stomach and 'loose bowel movements' never drew my attention - they weren't severe enough.

Anyhow, after two years on drugs I decided to go off them and start a gluten free diet as someone suggested to me.

I have been gluten free for last 4 months and have JUST taken my last pill (it's taken ages to stop them).

I feel really great - down to Earth and stable. Still very sensitive and emotional (I guess this is just my nature) but I can easily control my emotions. Most importantly,

I don't feel depressed even though I have had quite a hard time at work and in my relationship.

But I have never done the tests. To be honest, I don't really care about the results - I feel really great on the diet - don't have the stomach aches or gas anymore...which is wonderful!

Please let me know how you are doing on your diet. Have you noticed any significant difference?

Cheers,

Alex

Hi Matthew.

I have also just joined, and live in Melbourne.

Where your sysmptoms similar to this?

I have been "struggling" with an illness (??) for as long as I can remember. I am now 35, married with beautiful 2 year old twins. For more than 20 years I have seeing various Doctor with the following symptoms:

Cronic tiredness

Night terrors

loose bowel movements after most meals (although I have only just tomld my current Doctor this due to be not thinking it was relevant (IDIOT!!)

It is also interesting to note that I matured later than most of my peers (I was about 18 when I had my main growing spurt).

I have owned and operated my own business for the past 6 years and more often than not I have been struggling with motivation, tiredness, lack of energy, concentration, anxiety. I often, due to the tiredness feel like I am wasting away my life. This has an enormous effect on me both from a business point of view and a personal satisfaction point of view. My confidence is at an all time low.

Some of the attempted solutions offered by Doctors have been:

ADHD and prescribed ritilin10

Depression and prescribed Zoloft

Haemochromotosis (did not have the gene!)

Neither of these had any positive effect on me at all. Two days ago, my wife heard an interview on the radio about the effects and symptoms of Celiac desease and suggested that I do some research. EVERY THING I have read makes perfect sense to me.

My Doctor, who I have been seeing for over 2 years order me a blood test today, which I did. I am expecting to have these results early next week.

I would like to know if any of my symptoms ring true with any one else?

In a bizarre sort of way I am hoping that the blood test and biopsy are both positive so I can get on with actually working out a way to feel better. If this happens, what can expect to occur and in what time frame?

thanks

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      nothing has changed

      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get...
    2. nanny marley
      - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me I tryed lol , another was to have another blood test after...
    3. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel. they offered me an endoscopic biopsy ...
    4. par18
      - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test...
    5. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748
    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      nothing has changed

      By asaT · Posted

      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      IBS-D vs Celiac

      By nanny marley · Posted

      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Is it gluten?

      By par18 · Posted

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.