Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Give Anything To Help Ease Pain When Glutened?


Worried mommy

Recommended Posts

Worried mommy Apprentice

My DD has been gluten-free for a couple of weeks now and I wanted to ask if your child has been glutened or is having symptoms do you give them anything to help. There have been a few times when DD is complaining of her stomach hurting but she hasn't had any gluten that I can think of. We are attending a family birthday party this weekend and so I am trying to prepare myself for a " what if" instance. I do keep snacks with me that she could have but was wondering if anyone has a kept secret...lol to help get over the pain.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

I used to take Gas Rx and ibuprofin myself. I hope someone else can help.

pricklypear1971 Community Regular

Honestly, if its gluten causing the pain I sleep it off. It's the best fix. After that, I've found exercise burns it out of me. Bit she's a child and she may feel differently.

I usually treat the symptom. For me, if my stomach hurts its acid...and I live French fries for it. Or a loaded baked potato.

But she may get low acid so she may need betaine hcl.

Everyone's different. Generally, probiotics and antacids help people. As well as digestive enzymes.

Worried mommy Apprentice

This evening I made a rice and chicken dish for dinner. We eat plain yogurt with our rice as a side dish with and today was the first time I bought Dannon plain yogurt. That was the only thing that she had that was different, I have made this dish a million times and she doesn't complain from it. Today afer dinner about 45 minutes after she had severe stomache pains and diareha. Her pains were so bad they kept her crying for about an hour. I gave her some children's pepto not to sure if they helped or not, but OMG I don't know what happened or if it could of been the yogurt. It doesn't have any gluten in it.

pricklypear1971 Community Regular

This evening I made a rice and chicken dish for dinner. We eat plain yogurt with our rice as a side dish with and today was the first time I bought Dannon plain yogurt. That was the only thing that she had that was different, I have made this dish a million times and she doesn't complain from it. Today afer dinner about 45 minutes after she had severe stomache pains and diareha. Her pains were so bad they kept her crying for about an hour. I gave her some children's pepto not to sure if they helped or not, but OMG I don't know what happened or if it could of been the yogurt. It doesn't have any gluten in it.

She may have a temporary or permanent problem with milk: lactose or casein. Many Celiacs can't tolerate milk in one or both forms. Sometimes it's permanent, other times temporary. You may try taking her off milk products and trying them again in a few months.

It isn't unusual to have other food intolerances, unfortunately. They can be temporary or permanent. Sometimes, after the gut heals you are able to reintroduce the food.

Worried mommy Apprentice

I don't think milk is the issue, she always has cereal, cheese, rice pudding, etc., and no issues with those. My only other thing would be the different brand of yogurt. Thanks for your input though I appreciate it.

pricklypear1971 Community Regular

I don't think milk is the issue, she always has cereal, cheese, rice pudding, etc., and no issues with those. My only other thing would be the different brand of yogurt. Thanks for your input though I appreciate it.

Start a food and symptom journal, and keep the label from any food she may have reacted to. Once you have a few episodes start comparing labels of what she's had in the last 24 hours. I say 24 because we are known to react up to 24 hours.

Also, you may try her on digestive enzymes with meals, if she isn't on them already. It will hep break down her food. I use Digest Gold.

Sometimes it's hard to pinpoint what the problem is. And sometimes it's just a part if healing - random stomach aches. Along with 100 other things, unfortunately.

Hang in there.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

This evening I made a rice and chicken dish for dinner. We eat plain yogurt with our rice as a side dish with and today was the first time I bought Dannon plain yogurt. That was the only thing that she had that was different, I have made this dish a million times and she doesn't complain from it. Today afer dinner about 45 minutes after she had severe stomache pains and diareha. Her pains were so bad they kept her crying for about an hour. I gave her some children's pepto not to sure if they helped or not, but OMG I don't know what happened or if it could of been the yogurt. It doesn't have any gluten in it.

What about for lunch? Breakfast? What was she exposed to during the day? Is there a stomach bug going around where you are? Was the chicken fully cooked?

Sometimes, tracking down a culprit requires big-picture thinking, and sometimes, it's impossible.

Bronwen Newbie

I do probiotics in yogurt and applesauce for my 9 y/o

  • 2 weeks later...
nomorethanfour Newbie

Papaya enzymes. If it gets really bad and she starts vomitting, we have Zofran which can nip it in the bud.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,332
    • Most Online (within 30 mins)
      7,748

    Nicolah
    Newest Member
    Nicolah
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.